Allergies

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What are you allergic to?

Dust, mold, ragweed according to an allergy test I had over 20 years ago but I suspect that list has grown. I've been getting rashes, itching, hives, sore throat, swollen nasal canals which seem to be getting worse and worse. I have been having increasingly bad reactions food. I am looking into a Mast Cell Activiation Syndrome which I discussed with my doctor at length today and he said it is worth checking out. Mast cell disorders run in my family.

I know you have Ehlers-Danlos Syndrome and apparently Mast Cell Activation Syndrome is related. Are you diagnosed with that as well? It is a relatively new diagnosis, only recognized in 2007 I think, and diagnostic criteria established in 2011. It is when you have overactive mast cells can lead to having a lot of allergies, asthma etc.

http://www.jacionline.org/article/S0091-6749(14)02927-3/abstract

Copy paste the link if it doesn't work.

I did the urine test and it came in negative as well, but I am allergic to almost everything. The last time they did an allergy test it put my into anaphylactic shock.

dustmites
mold
grass
most trees
perfumes
onions
garlic
mustard
tumeric
annato
nitrates
artificial sweeteners

and I have celiacs



NOCA - how is the oxytocin study going?

MCAS tests can come back falsely negative if the lab does not put the labs on ice according to this article. Some labs are unaware of the specific instructions for this test.

http://www.dysautonomiainternational.or ... -and-mcas/

Feral I am 100% certain I got the placebo. It hasn't done a thing lol. However the study is not a loss as I received the most thorough autism assessment available. According to the doctor is the gold standard for autism testing and was rediagnosed as autism spectrum disorder level 2. This testing would have normally cost $3500 CAD plus they gave me some $20 in gift cards lol. My diagnosis will never come into question again from any doctor in the future which is nice. I will continue the study till it's end which lasts another 3.5 months. The psychaitrist at the autism clinic is pretty cool too and he offered me a spot in the clinic if I wanted. Normally it is hard as hard to find any doctor that understands autism whatsoever.

Problem is my physical health is really decling. My IBS-D is severe (possibly related to a mast cell disease) and entire body itches as bad as chickenpox, I am having rashes on my chest, hands and face. My skin on my forehead and nose is peeling like it was sunburned. My throat is sore and swollen, my nasal passage is swollen up. These are symptoms I have been having for a long time but are becoming more severe and more frequent.

I am really scared because I have 3 blood line relatives with systematic mastocytosis and the leukemia form which is the most severe and rare. I have watched my aunt in particular suffer through absolute misery for my entire life and I am really scared to get this disease.

I discusssed this with my GI doctor and my mom today at length, the nurse even lifted my shirt up and my chest was completely covered in a rash which later disappeared as fast as it came. My GI doc agreed with me that I should get screened for it. He gave me a script for 300mg of Zantac for its H2 antihistamine effects which I am taking with benadryl and zyrtec but I gotta wait till I can see my family doctor to get him to refer me to the specialist my aunt sees to be screened which is gonna take a while probably.

I am glad you got the thorough diagnosis.

I get the peeling skin, but only on my head, hands and feet.

I have read about the more severe forms of the mast cell disorders and they do not sound good. I tried the treatment for a month, oral cromylon 3/day. it did not help, but it won't hurt if you don't have it. I didn't help me, but maybe you can ask your GI doctor about it. I think it is supposed to help with IBS.

I have never been on the hydroxyzine, does it help and does it have severe side effects? I no longer get very drowsy from the over the counter antihistamines.

I usually take between 20-40 mg of Zyrtec and 25-100 mg of Benadryl a day.


I take Tagamet for acid reflux, it is an antihistamine not a proton pump inhibitor. I was on Prilosec, but it always made me feel weird.

The Tagamet will do the same for opiods.

It is a cytochrome P450 inhibiter.

Off the top of my head~ I'm allergic to grass, pollen, dogs & cats. I take the antihistamine Xyzal/Levocetirizine & the med Singulair/Montelukast for them. I also sometimes use the nasal spray, Flonase, occasionally take Sudafed & occasionally take Prednisone for a while. I take Prednisone more for my skin eczema that allergies can aggravate or because my skin gets dried out cuz of the winter air & floor-furnace heater. The only med allergy I'm aware I have is Penicillin

I forgot, I use Triamcinolone cream for the dry peeling skin. It is prescription only in the states.