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budgenator
Deinonychus
Deinonychus

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Joined: 2 Aug 2009
Age: 71
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Posts: 389

26 Sep 2009, 5:10 pm

whitetiger wrote:
I've had two sleep studies and found I have severe sleep apnea. The Cpap isn't working for me, due to sensory issues with the mask, AS related. I take it off in the middle of the night and don't remember doing it.. six weeks.. five masks!

Getting your Dentist to make a bite guard or a real sleep apnea device can work wonders too. I can't sleep without mine now.



ebec11
Veteran
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Joined: 17 Jan 2008
Age: 33
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Location: Ottawa, Ontario

26 Sep 2009, 5:39 pm

Eh, my risperdal is helping me sleep again, so I don't need a sleep study. I think they can be useful for people though, just not me.
Plus, I can only sleep while having a mask and earplugs in because I struggle to sleep (it's not as bad now, but now it's a habit to have the mask/earplugs on) and I don't think that would be allowed



saywhatyamean
Snowy Owl
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27 Sep 2009, 12:03 am

Yeah I had both my boys done at the same time. What a disaster. Unless you need a CPAP machine or something I would not bother with them. They say they want as close as possible to natural sleep. How can any child let alone one with sensory issues sleep naturally with all the wires, electrodes, nasal thingy, lights,people coming in and out to replace/restick electrodes. My boys had problems with excessive movement in sleep, restles leg type symptoms, sleep walking, getting to sleep, one had issues with obstructed breathing. absolutely nothing came up in the study.

I discussed this with my GP and she said the same thing happened with her husband and they went ahead and just treated all the seperate issues anyway. We also ended up doing the same thing. I now give my oldest Melatonin (which you need a script for in Aus) which I have compounded. This gets him to sleep and an added and unexpected side effect is that he moves far less in his sleep. He uses a weighted blanket and if he goes through a rough patch of waking during the night we also give him some 5 THP which is designed to keep you asleep.

The younger one (6) has the obstructed breathing and we are tossing up between surgery(turbination) and expensive specialist orthodontic work to stretch and flatten out the palate. We are leaning towards the later because he will also have crowded teeth issues and many other issues (there is actually a whole sydrome that goes with high palets in children)if nothing is done now. We have just found someone that will work on such a young child with the support of an Osetopath or Chiroprctor to do realingment of the cranio plates as his head is remodeled.

Cheers