Anyone else with Restless Leg Syndrome (RLS)?

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I live with it lose sleep over it and have not really gotten any better at dealing with it.
I have changed diet, tried supplements, legal and not legal drugs to no avail.
So I have to live with it the only thing that seems to help me is to not stop moving.

i dropped in here for a look because im not only a habitual leg bouncer but i absolutely cannot stand to have my feet sitting down on the ground and still

if they are down they have to bounce. or i have to elevate them, sit on them or rest a foot on something

they ache if i dont.

i dont think it's a circulation thing.

so yeah, i found this thread interesting, anyone else have this kind of thing? or is RLS always based on movement? does elevation help anyone?

I'm not 100% sure if this is the same but historically I've often had something like a building itch in a muscle where I would feel a need to flex it as hard as I could, it would go away for a few seconds at that point and then start building again almost immediately - this could go on for most of the night or any time that I would sit still for two long.

For sleep melatonin and trying to get better hours has helped. I think part of the problem I had was being on haldol/risperidal with antidepressants for 8 years (from age 11 to 19), from that I ended up with akasthisia (which I'm pretty sure is what I still have now - though I'm not 100% sure if RLS is really a nighttime and lower body only version of it?).

If you can take melatonin try it. Otherwise, if you're on something like an antipsychotic, antidepressant, or anti-anxiety med I would start reading down the list of potential side effects. Likely its part genetic and getting off of or changing a med won't completely remove it but, it'll be a heck of a good start.

I had blood work done about a year ago and the doc asked me if I had leg cramps at night. I was surprised that she knew that most evenings my feet and legs started cramping. She told me I was low on B12 and this could cause it. I now take 5000 mcg B12 every day and don't have RLS. If I forget to take B12 for 2 days, the cramps are back. Good luck.