Crohn's Disease / Ulcerative Colitis

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TornadoEvil
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27 Jan 2014, 6:24 pm

I was wondering if anyone here has any experience dealing with these diseases. I only middle of last year started getting rather severe diarrhea combined with mouth ulcers, testing has not turned up anything that great. I have a doc who will try and figure out exactly what to use to get me into remission, but I could use advice regarding diet for inflammatory bowel disease.



Meistersinger
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27 Jan 2014, 7:21 pm

TornadoEvil wrote:
I was wondering if anyone here has any experience dealing with these diseases. I only middle of last year started getting rather severe diarrhea combined with mouth ulcers, testing has not turned up anything that great. I have a doc who will try and figure out exactly what to use to get me into remission, but I could use advice regarding diet for inflammatory bowel disease.


While I don't have experience with Crohn's or Colitis, the senior pastor of my church does, as his son just went through another major surgery due to Crohn's. PM me if you want pastor's contact info.



Marcia
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27 Jan 2014, 7:48 pm

I found this information on-line, which might be helpful for you.

http://www.uhs.nhs.uk/OurServices/Diges ... isease(IBD).aspx

I had severe stomach pains and diarrhoea myself last year. An ulcer was suspected, but an endoscopy revealed only some inflammation. I am awaiting results of an ultrasound to see if there are problems with my gall bladder.

Dietary changes have helped me, but there was a bit of trial and error involved. I have been able gradually to reintroduce some foods a few months down the line.

Cutting out spicy and fatty foods helped. Fruit was much easier on my stomach if it was cooked rather than raw, so stewed apples or plums were ok. I also cut out coffee for a while too, and had almond milk instead of cow's milk. I still can't eat pizza at all and it doesn't seem to matter what kind of topping I have on it.

Initially, I tried eating less fibre, but between that and the medication I was on, I became constipated which was not at all pleasant.

You could ask your doctor for some suggestions and options about what to eat and what to avoid. I would say that for me the issue of whether to eat more or less fibre was the most contentious. Low fibre turned out not to work for me.

I hope you feel better soon and that the tests provide you with answers.



willa
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27 Jan 2014, 9:29 pm

The vast majority of these kinds of things are usually diet and/or stress related. I had a lot of issues about a year and half back, severe constipation coupled with lots of stomach pains that all pointed a lot to stuff like IBS and ulcers and after testing none of that seemed to be the case and just dropping 30lbs and cleaning up the diet fixed it.


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AardvarkGoodSwimmer
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27 Jan 2014, 10:15 pm

I'm pretty sure Crohn's is considered to be an autoimmune disease.

Now, what you describe as severe diarrhea combined with mouth ulcers, the doctor has to make his or her best judgment call given the clinical picture and the tests. Meaning, it's okay to reconsider the original diagnosis from time to time.



AardvarkGoodSwimmer
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27 Jan 2014, 11:41 pm

So, for an autoimmune condition . .

Kind of the classic treatment of steroids and the like, or

Newer experimental treatment called "Helminth Replacement Therapy." Based on the idea that we humans need our worms, and then the idea of using pig whipworms which only live a couple of weeks in humans. So, a temporary solution which might need to be repeated.
http://m.gut.bmj.com/content/53/1/7 <----- this seems largely by proponents
And it seems to work for some people but not for others.