http://edsresearch.weebly.com/the-brigh ... score.html
It seems like I meet at least these 4 minor criteria:
Quote:
· A Beighton score of 1, 2 or 3/9 (0, 1, 2 or 3 if aged 50+)
· Dislocation/subluxation in more than one joint, or in one joint on more than one occasion.
· Abnormal skin: striae, hyperextensibility, thin skin, papyraceous scarring.
· Eye signs: drooping eyelids or myopia or antimongoloid slant.
I'm thinking of seeing a geneticist. I can bend my thumb to my forearm on both hands, so I have a Beighton score of at least 2. My knees often sublux out and pop back in. My skin is hyperextensible. And I have borderline moderate-to-severe myopia--I have to wear glasses for basically everything, even reading (because otherwise I'd have to move what I'm reading right up to my face).
I'm in contact with a family friend with EDS, and she said she got diagnosed by a geneticist a 3 hour drive away. I'm thinking of seeing that geneticist.
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"You have a responsibility to consider all sides of a problem and a responsibility to make a judgment and a responsibility to care for all involved." --Ian Danskin
26 Jul 2014, 9:47 pm
