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Darialan
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05 Nov 2016, 3:53 pm

So within the last 2 years, I've been battling with Fibromyalgia. I believe we've found the balance of the right medication, but although it started to take the pain away, I've started to feel more and more fatigued. Now I was told about Fibro fog, but that is more manageable based on what I've heard and understand. So I'm describing it better and more often to people. It's not just fog. I want to sleep all the time and it is an awful feeling. I want to be awake, but my body wants me to sleep 50-70% of the day away. It comes on and if I don't nap or even if I do, it keeps it's grip on me. Some days I'm more likely to do things. The worst of it starts just after noon. If I'm riding along in someone's car for long enough, my eyes shut and I'm partially gone, but not asleep. I can't sleep unless I'm in my couch or bed and that's normal for me, so anywhere else I'm not really truly out, but I'm nearly gone. If I fight it, my shoulders, jaw and head suffer from pain. I will be tested for Narcolepsy, but I haven't been given a date or time yet and in the mean time I want to know if there is a way to fight it off without hurting myself. What can I do to keep it from coming on?



yournamehere
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06 Nov 2016, 9:34 pm

Sounds like me. I never put a name on it. Been like that all my life. I need to have an active lifestyle, or I get pritty sleepy, and gloomy. Can't read boring either. I fall asleep fast. School=sleep. Car rides, yes. Watching sports, out like a light. Desk job, forget about it. Drive a car for more than 4 hours, pull over, and take a nap or walk, or something.

Living in the fog is something everyone does not realise I am doing. It is alot like drinking and driving really really well. I doubt someone will tell you that you are narcoleptic. If you are, let me know. I don't have doctors or anything. Maybe I will get a clue. In school I got books whacked over my head, and whatever else, but nobody ever told me what was wrong with me. I just got punishment for being me. Things are different now. Kids don't go through any of that.



nick007
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06 Nov 2016, 10:18 pm

I wonder if a stimulant or a wakefullness promoting med like Modafinil would help. A doc may not want to try those meds till the narcolepsy or other test have been performed thou. You could try taking caffeine pills on an as needed bases to see if they might help some.


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yournamehere
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07 Nov 2016, 8:22 am

nick007 wrote:
I wonder if a stimulant or a wakefullness promoting med like Modafinil would help. A doc may not want to try those meds till the narcolepsy or other test have been performed thou. You could try taking caffeine pills on an as needed bases to see if they might help some.


Caffeine makes me crash. I can stay active. I make myself every day. Sleeping is an easy thing when life is a bore. Pritty sure narcolepsy can happen when you are actually active.

My special interests keep me awake too.