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fraac
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24 Nov 2011, 8:37 pm

You really should be on that other forum for sympathy. Check it out: http://forums.delphiforums.com/aspartners



OliveOilMom
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24 Nov 2011, 9:05 pm

You're not likely to like my post either, but I'm going to post it anyway.

Aspies are all different. Some of us have friends, some dont. Some are rigid with routines, some aren't. Some of us like to control our environment strictly, some don't. Etc, etc, etc. It's also not something that can or should be diagnosed by a third party. Did your therapist tell you that he could also have OCD? Did she tell you that he could also simply be a person without a diagnosis who doesn't like to be social?

I have been married to an NT for over 25 years. We have 4 NT kids. I have AS. I have friends and am social. I don't have wierd routines about sex. I'm affectionate with my kids. The tone of your posts was "I'm afraid my husband has AS, I want him to go to a doctor and try to fix it so he's different! I can't be married to someone without friends! I am unhappy with my sex life and it's all AS's fault!" It's not AS fault, it's simply how your husband is.

My NT husband doesn't have a lot of friends. He never goes anywhere except to see his family. I hang out with friends much, much more than he does. Nobody ever calls him either. After 25 years, sex isn't much different than you describe in your post, and my husband is NT! That isn't AS, that's just how the guy is.

I didn't even know I had AS until a few years ago. It's never been a problem. Sure, I had problems when I was younger, but I'm 47 and back then, you were just peculiar or shy if you were like me. I apparantly don't have severe symptoms from my AS, because I was able to force myself to do things like the other kids did them. I enjoyed a social life for a while, but it does get old sometimes, and I do enjoy time alone, and always have. From time to time.

It doesn't sound like you have a whole lot of understanding of how AS can manifest itself in people, and what symptoms they can have. Your husband may very well be simply an NT with strong preferences. What are you going to do if that's the case?

Having AS does not mean that he cannot choose to accomodate your wishes, especially since he sounds very high functioning. Maybe he's an NT who chooses not to. My husband doesn't like to talk about emotions and isn't demonstrative at all. I am the opposite. I want to talk about every feeling that I have and I want him to be interested. He simply isn't like that. He isn't going to get worked up over something that's upsetting me, if it's not a big deal. We compromise by him listening to me vent about it, and I understand that is his way of showing that he cares. Because he does care, he simply isn't me, and he also didn't come from a "Build Your Ideal Man" kit.

Marriage is about compromise. It's give and take. Whether he is AS or NT or whatever he may or may not have. You have to sit down and tell each other what you want from each other, and listen to what the other is willing to give or change. You have to change too, not just him. You have to give up some things and he does as well.

As for anxiety medication for him, has he complained of anxiety, or do you assume he has it because he's not feeling or doing the things you feel and do? The only pill that will make a man do what you want when you want is Viagra, and they only do that until it wears off or they get what they wanted ;-)

Before pushing him into getting an AS diagnosis, I would go to a regular marriage counselor first. It sounds like you both have issues to work on.

Frances



Ellie88
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26 Nov 2011, 3:14 pm

Thanks, Frances. Actually, you were pretty kind. And you are right about a lot of things. I think that my depression is more likely the biggest problem. He wants me to find another way of dealing with it other than meds. That's not likely to happen.

We have been instructed to take a personality test by our counselor to see the differences in our personalities. I think I have an idea of what his might be, but if you throw in OCD or Anxiety, that makes it much worse. My husband does not want to be labeled anything! So if he's told by a doctor that he has OCD or Anxiety, he would likely try to find a natural cure. If there is no natural cure, he would expect me to adjust, which is what has been happening even before my counselor brought up the whole Aspie thing.

I believe that if a person has a disorder, it is cruel to subject and burden loved ones with the effects. It's just wrong. I take medication so I won't burden friends and family whom I love. As I have said before, I am the only one who tells him these things, so I am the only one who takes the heat. I've been doing this for almost 5 years now.


Still trying, but even these anonymous posts are wearing me down. I don't care what people's opinion is if it's negative or "dry humor". Whatever. I hope it's not AS. But something tells me that whatever it is, he will not address it with the urgency that he should, rather I should adjust, which is what I have always done. Because he doesn't have friends or confide in anyone, he can not know how much adjusting I've done just to stay in the relationship. That's the really sad part to me.



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27 Nov 2011, 2:54 am

OP, I'm going to encourage you to put aside your concerns about your husband's diagnosis for a moment. What's coming across in your latest posts is a story of a couple who seems to be locked in a power struggle. You want him to be medicated; he wants you to stop your medication; you want him to be diagnosed; he refuses to be labeled; he participates in massage therapy; you don't like the way he participates. You blame him for your depression, while seeming to take none of the responsibility yourself. Look, I understand your despair, but you did choose this man. You knew what he was like before you married him, and you went ahead and married him. I'm sorry that your marriage is depressing you, but you have to take responsibility for the decisions that brought you to where you are.

If your husband is on the spectrum, it's very possible that he'd have a difficult time understanding that problems in your relationship have to be addressed by both of you (theory of mind difficulties). But you have to own your contribution to your relationship woes as well. I'm concerned that unless you do that - fearlessly and honestly - you won't see any real progress in repairing your relationship. Good luck.


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fraac
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27 Nov 2011, 3:16 am

You're more optimistic than I am. I think OP has already decided her future will be denial and comfort. Though I don't understand why she's posting here rather than aspartners.



blondieamc
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27 Nov 2011, 9:15 pm

Ellie88 wrote:
I am married to a business man who I suspect has AS. He doesn't want to do the testing for it, saying, if he is AS, "what then?". I don't know what harm can come to him if he is diagnosed with it. I don't want the diagnosis just to say that (my therapist) was right. No, I need relief from his behavior and a better understanding of how to deal with it. I can not see living with it for the rest of my life. It's not that he is or isn't, it's about how it affects the people in his life.

Guess what? I am the only person in his life! He has no friends. He confides in no one. I am his only friend. So when I told him what my counselor said, that he might have AS based on my frustration and depression, he immediately dismissed it. Since I am the only person in his life, the only one who knows him well enough to put two and two together, I am the only one he knows who has said this. That makes me the bad person. He's sure there would have been some kind of intervention by now. He manages well at work and functions normally around co-workers. He never receives phone calls from anybody. I did a lot of reading on and off line. I think he has it.

Please understand that everybody's AS does not look the same, but that doesn't mean it's not AS! My daughter, for instance, did not meet the full criteria for ADD as a child, so me and her dad (my first husband) did not put her on medicine. We, along with the leadership at her school, thought it best to keep her in 2nd grade another year. She did ok, but when she was 14, we consulted another doctor who told us that just because she did not meet the 4 out of six criterion for an official diagnosis of ADD didn't mean that she couldn't be helped by medication. WOW! What a difference it made for her!

My husband may have AS and although there is no cure, he could probably benefit from an anti-anxiety drug because he can be obsessive about things (health, weight, diet, planning, meal schedule, exercise, etc.) and it is maddening to live with since I like to bake. And cook. And I am not fat and sloppy! I am a professional business woman myself. We have no children together and he doesn't have a real relationship with my children, now 17 and 22, although he thinks he does.

Some disorders are not defined by the person who has them but rather by the people who are affected by that person's behavior. In this case, me. My husband was a loner who has a wonderful family that he is rarely in touch with although he would say they talk "often".

Sex is not good most of the time because he has sensitivity issues. And he's a germaphobe.

Oh, and he also has a twin brother who disconnected from the family 23 years ago. They didn't go to find him and he has not come back. I have a friend who is a licensed private detective and found out that he (the twin) is an engineer and has moved almost every year to a new address while he continues to work for the same fortune 500 company, has no connection to other people and no record of a driver's license. Strange, considering where he lives. I am trying to hold on to a man I love and knew was flawed, but didn't know it was 'chronic'. Didn't know that anybody could be wired this way. I don't want to leave and will stay as long as I can. I've known him most of my life. How do I live with him if he doesn't accept the diagnosis. I am beginning to resent him for this. I wonder if he would rather be divorced than deal with this reality. We are in counseling for the third time together. He will do this as long as we can find something wrong with both of us and take the focus off of AS. Any suggestions?

I know this sounds really bad. It's only because I go through this alone. No one could possibly relate. If I talk to his family, it would get back to him and he would explode. If you have questions I am happy to answer. Thanks.




I just sent you a private message about a site that might provide the information you are looking for.



TheygoMew
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27 Nov 2011, 10:39 pm

Ellie88 wrote:
The_Face_of_Boo wrote:
You NT women come here to justify your divorce or why you'd divorce.

Do what you really want (which is divorce) and spare us the drama stories.


I resent this. I did not tell you every tidbit of our story, but I have always made excuses for him. I have always supported him and I think that is why he wanted marriage with me. I think that he probably had some idea that he was this difficult from his other relationship(s). I take more depression medication and anti-anxiety pills and what I keep hearing from his is that when he does things that are rude or strange or controlling, that's just the way he is. I guess I will start believing that, but it's not fun to live with. The inflexibility, control (which I really don't think is intentional), rudeness and most of all for me, always pulling back and killing the spirit of fun and excitement. I actually stopped (for a minute) being so affectionate to my son (17) because he said that I didn't need to do all the hugging and kissing on him. My son is normal, lives with his dad and is doing well in school. We have always had a close, appropriate relationship. But he is uncomfortable with our level of affection! My son was rightfully upset at me for pulling back. I have started to resume being me even if it makes him uncomfortable, but I can't do anything about a sex partner (my husband) who wants/needs control in bed which doesn't mean that his philosophy is "Nice guys finish last". No, when he finishes, there's not much left for me. In years past (we dated in our 20's), I thought he hung the moon. I never voiced my needs and being with him was enough. We had great fun! But I didn't know that he couldn't be open to responding to what I want. I had no idea. Now I know.

To be clear, I came to this site so that I could connect with NT women who had been successful at dealing with someone who, at times, seems like a jerk! I know it's the AS, but how do you live with someone who is this way? who wants sex? who doesn't want to live in separate bedrooms. who wants to share life the only way it plays out IN HIS OWN MIND??? THis is what I have discovered. It might be AS, it might be something else. But, as his WIFE, I deserve and ANY NT spouse deserves to KNOW what they are dealing with. I should not have to GUESS. I should not be in therapy just to cope with whatever he is lacking. I suspect that he could be helped by medication because he has obsessive behavior and lots of anxiety issues. IF he were found to clinically have these issues and get proper treatment for them, that would give m SO MUCH RELIEF! We could move forward with a new focus. THat's why I'm trying because I believe it could help SAVE MY MARRIAGE! Nobody gets married to get divorced.

By the way, I haven't found a thread for women like me. I don't need to hear from narrow-minded people who want to accuse me of something that may not be true. Get a clue! To me, this is not normal, even if it is to Aspies. It's HARD!!


...But this is aspie dominant messageboard.

Anyways, he might not even recognize his own behavior. He may feel it's too late for him. Have him take the aspie quiz. How about both of you take it and if your views of him are a much higher score than his views of himself, he is not aware of himself and what he is doing.

http://www.rdos.net/eng/Aspie-quiz.php

You can post the results here.

I am not NT but you shouldn't just hope to be surrounded by NT support at an aspie dominated message board. Do you want solutions for real or more like sympathy for what you are dealing with. If it's sympathy you are after, can't help. If it's solutions, pm me but please refrain from overly complaining about autistic traits, aspergers etc.. unless you would like it if someone were to bash you for your non-autistic traits.



swbluto
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28 Nov 2011, 3:17 am

HopeGrows wrote:
OP, I'm going to encourage you to put aside your concerns about your husband's diagnosis for a moment. What's coming across in your latest posts is a story of a couple who seems to be locked in a power struggle.


This is what it's sounding like to me, too. He seems to be an "unwielding boss" type that's pretty typical of bosses, and to think this behavior would carry over into marital matters is unsurprising. To think that this characteristic makes him "Aspie" is, well, pretty tenuous of a link and it seems very improbable he'd be aspie because of that trait alone.



BasilB
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28 Nov 2011, 6:18 am

Hi. I'm sorry you've been getting so many rude responses. For what it's worth, I found it really helpful when my mother informally diagnosed me with Asperger's a few years ago. Partly, I'd always known I was different, and having the quasi-diagnosis gave evidence that I really was different and it wasn't that I was crazy, and partly because the diagnosis helped me understand the world better. People in this thread have said that your husband has probably learned all he's going to, but I'm learning new things continuously, including ways of compensating for the hard aspects of Asperger's, and expect to continue doing so until I die.

Quote:
My husband thinks that I should be able to handle my depression without medication. Any success stories with that out there?

Meh, I dunno, it seems to me this would be hard to figure out, because I don't know how you'd measure depression. If someone handles their depression without medication, maybe the drug company can say that means they weren't really depressed in the first place? On the other hand, isn't depression one of the side effects of most depression medications?

I have, however, heard that (1) just getting out and doing things and (2) making friends/improving your social life are both things that help with depression. So you can try doing those things, they won't hurt and may help.

Quote:
what I keep hearing from his is that when he does things that are rude or strange or controlling, that's just the way he is.

I do things that are rude or strange, hopefully not controlling, and that's just the way I am, but when friends point them out to me, I can work on changing those behaviours. (Some of my efforts to change are more successful than others, of course.) Although I'd hope that a girl friend/wife would accept some of the things that are merely strange! :)

Quote:
I believe that if a person has a disorder, it is cruel to subject and burden loved ones with the effects. It's just wrong. I take medication so I won't burden friends and family whom I love


Hmmmm, well, that won't work with Asperger's, as there's no medication and the only "treatment" is to diagnose it in childhood and dedicate a specially-trained teacher to the kid for a year or two. Another reason it won't work with Asperger's is that the symptoms of two Asperger's people can be completely different. So for me, I am really bad at understanding body language but my understanding of "theory of mind" is normal, while another Aspie might understand body language but be have a lot of trouble with theory of mind. In both cases communication between the Aspie and other people is problematic, but something that really helped one of us probably wouldn't do much at all for the other one. Also, a lot of people really don't want to acknowledge that they or someone they care for has Asperger's.

The better approach, I think, is to identify particular problems and then look for solutions to those problems, rather than trying to "solve" Asperger's in one giant step or with one magic pill. So, for example, I can read books about body language and train my conscious mind to recognize body language that normal people recognize instinctively. For an example for you, you've mentioned him not having friends and you as a couple not having any friends over at Thanksgiving. But there's nothing stopping you from making your own friends, and inviting them over for Thanksgiving or going over to their place, by yourself if necessary. Also, having more friends of your own will probably help with your depression. And your making friends is something you have control over, so you don't have to wait on him to do something about it.

As for him making friends, if he is Asperger's he should have Interests, is it not so? You've lived with him a long time, you should be able to figure out what those Interests are. Other people who are interested in those things are his natural friends. (All of my friends are people who share one or more of my Interests: I simply don't see any reason to talk to people who don't.) I wouldn't be too surprised if all his Interests are at work, though (and that's where he does some socializing).

As for the sex, I'd get really frustrated with a woman who behaved in bed like your husband does, so I don't think that's definitively the fault of Asperger's. Which doesn't stop it from being a big problem. Good luck.

fraac wrote:
You're more optimistic than I am. I think OP has already decided her future will be denial and comfort. Though I don't understand why she's posting here rather than aspartners.


She said that she wanted to talk to others who had dealt with these problems successfully ;)



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28 Nov 2011, 7:18 am

I don't think the diagnosis will really do anything except perhaps make him see what he's like, but of course he can deny it.

You don't need a diagnosis to get anti anxiety medication.

I understand its hard I've watched the same thing with my parents. But you can't make someone do or think what they don't want to.

Try to think how the diagnosis will benefit or help. It won't help with any of the problems you listed. Only anxiety medication will.

The only solution here imo is getting him to see that he needs help and perhaps get on some anxiety medication.

Ellie, please ignore the people here giving you a hard time. I have seen what aspergers partners can do to people and although it's not the aspergers partners fault, it damages the NT partner. Looking at the transformation of my mother is an example.

I have aspergers, so I can only give you a point of view to which I think seems fair. A lot of these men are taking offence because they have issues with being rejected by NT women.



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28 Nov 2011, 7:40 am

Ellie88 wrote:
I am married to a business man who I suspect has AS. He doesn't want to do the testing for it, saying, if he is AS, "what then?". I don't know what harm can come to him if he is diagnosed with it. I don't want the diagnosis just to say that (my therapist) was right. No, I need relief from his behavior and a better understanding of how to deal with it. I can not see living with it for the rest of my life. It's not that he is or isn't, it's about how it affects the people in his life.

Guess what? I am the only person in his life! He has no friends. He confides in no one. I am his only friend. So when I told him what my counselor said, that he might have AS based on my frustration and depression, he immediately dismissed it. Since I am the only person in his life, the only one who knows him well enough to put two and two together, I am the only one he knows who has said this. That makes me the bad person. He's sure there would have been some kind of intervention by now. He manages well at work and functions normally around co-workers. He never receives phone calls from anybody. I did a lot of reading on and off line. I think he has it.

My husband may have AS and although there is no cure, he could probably benefit from an anti-anxiety drug because he can be obsessive about things (health, weight, diet, planning, meal schedule, exercise, etc.) and it is maddening to live with since I like to bake. And cook. And I am not fat and sloppy! I am a professional business woman myself. We have no children together and he doesn't have a real relationship with my children, now 17 and 22, although he thinks he does.


I can definitely relate to your husband and some of the symptoms and behaviors you described. I was diagnosed several times by doctors and at the largest mental health institution in the United Kingdom before I started to come to terms with the diagnosis. I didn't have any idea what it was until my late teenage years and I can tell you that it really helped me to understand certain aspects of my life and how I was. I can very much relate to some of the symptoms that your husband is showing. For instance, I follow a strict disciplined routine of exercise and a diet and if I don't, I become very distressed or agitated and when I've had girlfriends in the past, they mainly became my social life and I've never enjoyed going to functions or parties. If you had seen my phone when I've been in a couple of long term relationships, all you'd see is hundreds of text messages from one girl, I don't know if this is normal or not since most people seem to text several people, maybe he's just not very sociable but it can be a positive thing if you are both reserved and don't enjoy socializing so you can look at it from different angles. For instance, following a routine and diet is keeping him healthy and slim, you really need to perceive traits in a positive light rather than a negative light.

I do believe diagnosis shouldn't be used as a scape goat to explain a certain sets of undesirable characteristics or behavior. It really does depend on the circumstances of the situation and the marriage, people on the spectrum are individuals and certainly all don't pertain to a distinct behavior. I think it's wrong to assume someone is on the spectrum unless you're professionally qualified to do so but I do think in this case, a diagnosis seems appropriate and it would give you and him a mutual understanding of how to deal with certain reoccurring traits and habits that may occur.



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28 Nov 2011, 8:04 am

Ellie88 wrote:
We are in counseling for the third time together. He will do this as long as we can find something wrong with both of us and take the focus off of AS. Any suggestions?


Really though, if you can't see yourself being with him long term or can't see certain traits in a positive light, I don't think it's going to work long term without a huge amount of compromise. You both seem very set in your ways and seem to follow very different lifestyles despite being together, he enjoys his space and being alone, you enjoy socializing, he enjoys eating healthy and following a workout program and you enjoy bakery. It really does sound like a recipe for disaster but I'm glad you're willing to give it a go and try to understand the diagnosis better.