sola, strange, i noticed an email this morning about that, (i have a feeling it may be you in the group, im a member there (doordoctor2002)and dont post much at all.
it seems that she may be an independent advocate that is just not taught long enough or done much research on how to treat people with retts.
same with autism/aspergers, there are people out there that are "curebies" and some out there that are anti=cure, some are experts in the disorder and some just think differently because of not much experiance with or knowledge about the condition.
great example, i remember being told by a psychologist when i was in high school that aspergers is a mental disorder, in some ways the person is true, but not totally, since there are comorbidities to aspergers that some may think are mental based. but its really a developmental disability falling under same spectrum as autism/pddnos.
seems she may have to have someone help her or she has to do more research on retts before she goes and terrorizes more people with retts or children with it, if she hasn't done so already.
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