Page 1 of 1 [ 9 posts ] 

Henbane
Veteran
Veteran

User avatar

Joined: 4 Apr 2011
Gender: Female
Posts: 6,071
Location: UK

05 Apr 2011, 5:24 pm

Hi,
I posted this in the New Person's forum, but I think it may have been too long or not appropriate for that forum, as noone has responded, so I am posting it here too. I hope that's ok. Sorry if it isn't.

Hi. I'm new here. I'm not really sure if I should be here or not, but I wanted to see if I could get any advice. Sorry if this turns out a bit wordy.

I don't have an Asperger's diagnosis, but I think I have it. I've always struggled with fitting in, but never considered this diagnosis until recently. I have had several psychiatrists over the last few years, and seem to aquire a new diagnosis with each one. Past labels have included Bipolar Disorder, Avoidant Personality Disorder, Social Phobia, Agoraphobia, Generalised Anxiety Disorder, and my newest one Borderline Personality Disorder. But although I recognise some aspects of myself in most of these labels, none of them completely fit me. Sometimes I think psychiatrists just have favourite labels.

Anyway I started reading more about Asperger's when someone suggested it to me. And it really seems to fit me. I did two online tests, one of which I scored 167/200 for Aspie characteristics and only 36 out of 200 for NT ones. It says I am very likely an Aspie. The other one = AQ test - I scored 43 on, and that too said I might be Aspie. Can I trust this result?

I really need to get an accurate diagnosis, because my life is very confused and difficult. I'm completely socially isolated and haven't worked for years. But I don't think my current psychiatrist will change my diagnosis. She seems very fixed on it and won't listen to any disagreements.

Sorry if I have gone on a bit. Any advice would be appreciated. Thankyou.



RainingRoses
Veteran
Veteran

User avatar

Joined: 28 Oct 2010
Age: 54
Gender: Male
Posts: 731
Location: New York City

05 Apr 2011, 5:54 pm

Henbane wrote:
The other one = AQ test - I scored 43 on, and that too said I might be Aspie. Can I trust this result?

Yes. You can trust it as a screening indicator that says that you should...

Henbane wrote:
get an accurate diagnosis ... But I don't think my current psychiatrist will change my diagnosis. She seems very fixed on it and won't listen to any disagreements.

Much depends upon whether your current psychiatrist is a specialist. Mine was not -- admitted that he had never made an AS diagnosis in his career but tried with me anyway. I then went to a specialist -- not for a "changed diagnosis" per se (because he wouldn't commit one way or the other) but for one I trusted. She diagnosed me with AS without any hesitation.

Good luck!



Georgia
Sea Gull
Sea Gull

User avatar

Joined: 21 Oct 2010
Age: 55
Gender: Female
Posts: 242
Location: At the foot of the mountain

05 Apr 2011, 7:38 pm

Someone here once mentioned going to a neurologist. Someone else told me Occupational Therapists might be of help.


_________________
Hoppiness is lurv.


Moopants
Raven
Raven

User avatar

Joined: 30 Sep 2010
Age: 51
Gender: Female
Posts: 122
Location: UK

06 Apr 2011, 4:01 am

a specialist will look at the psychiatric diagnosis to see if the symptoms if mental illness are indeed aspergers or autism or of they are due to mental ill health.

What you should do is perhaps write down about your experiences with mental illness without referring to diagnostic criteria. While there are co-morbidities and many people with autism also experience mental ill health, the brain is such a complex organ that many things diagnostic of e.g Aspergers can also be found in the likes of different personality disorders.

Some things to consider:

The social issues seen in Aspergers can also be seen in many mental health conditions so taking them out of the equation, what is left?

Look back at when your problems started or had they always existed?

What are the biggest/most disabling problems you have encountered?

Did any medications help with the symptoms?

Its important to remember, given your dislike of psychiatrists labels, that Aspergers is just another label. There is no "cure". Diagnosis may provide some answers or understanding but it wont suddenly change your life. You will just be labelled an Aspie and all the same problems you encountered will still exist until you find ways of coping with them.



RainingRoses
Veteran
Veteran

User avatar

Joined: 28 Oct 2010
Age: 54
Gender: Male
Posts: 731
Location: New York City

06 Apr 2011, 7:37 am

Moopants wrote:
Its important to remember, given your dislike of psychiatrists labels, that Aspergers is just another label. There is no "cure". Diagnosis may provide some answers or understanding but it wont suddenly change your life. You will just be labelled an Aspie and all the same problems you encountered will still exist until you find ways of coping with them.

+1



Henbane
Veteran
Veteran

User avatar

Joined: 4 Apr 2011
Gender: Female
Posts: 6,071
Location: UK

06 Apr 2011, 1:51 pm

Moopants wrote:
a specialist will look at the psychiatric diagnosis to see if the symptoms if mental illness are indeed aspergers or autism or of they are due to mental ill health.

What you should do is perhaps write down about your experiences with mental illness without referring to diagnostic criteria. While there are co-morbidities and many people with autism also experience mental ill health, the brain is such a complex organ that many things diagnostic of e.g Aspergers can also be found in the likes of different personality disorders.

Some things to consider:

The social issues seen in Aspergers can also be seen in many mental health conditions so taking them out of the equation, what is left?

Look back at when your problems started or had they always existed?

What are the biggest/most disabling problems you have encountered?

Did any medications help with the symptoms?

Its important to remember, given your dislike of psychiatrists labels, that Aspergers is just another label. There is no "cure". Diagnosis may provide some answers or understanding but it wont suddenly change your life. You will just be labelled an Aspie and all the same problems you encountered will still exist until you find ways of coping with them.




Thankyou for your reply. I'll have a proper think about what you've said.

I know that I have had problems since early childhood. I was always alone as a child, I found it very hard to make any friends, and impossible to maintain friendships. I was bullied from primary school onwards. I found it very easy to learn to read, which I taught myself to do, but was terrible at writing, I had remedial handwriting lessons. I was anxious as a child too. I used to chew my hair, bite my nails (still do), pick at my skin, rock, wet myself at school although not at home. I was always oversensitive, bright lights and certain noises would make me shy away and cause crying fits. From early childhood until my 20s I was prone to seizing up, just being unable to talk at all which would drive my mother potty, but the more upset she would get the more unable to talk I was. I have always been rigid, in the way I like things done, and in routines. I have always become very disturbed and upset by unexpected things happening, such as people arriving early or late, or new people coming into my life. I've always been easily overwhelmed, by too many things happening at once, more than one person talking, the tv, the radio, dripping taps, the noise of the central heating, or next door's central heating, fireworks, car alarms, banging, barking, tapping, rustling etc etc. I definitely have what other people call control issues. I can't explain my emotions to people such as psychiatrists. I seem to be perceived as something eg angry, when I am feeling completely the opposite to what they say I am feeling. I had several obsessions as a child that still remain today. I learned everything I could about dog breeds, read the same books over and over and over again, was completely obsessed with converting all my classmates to vegetarianism for about 2 years, and must have annoyed them intensely. I collected penpals from around the world, I wanted to get one from each country.

My mental health issues are primarily severe anxiety and depression. I still need routine to keep my anxiety at bay, and do things like rocking, flicking my feet constantly, picking at my hair until my scalp bleeds, and more. I think the depression is caused by my complete inability to do the things I feel I ought to be able to do, hold down a job, keep a relationship, make friends, have kids. I feel completely out of synch with the rest of society, and so overwhelmed by other people and the confusing nature of the world that I have isolated myself from all except my mother. I've gone though perhaps 15 different kinds of antidepressant and only one has had any impact, although that's minimal. I've tried mood stabilisers, antipsychotics and sleeping pills, but nothing does anything to me, except give me horrible side effects. This might be why my diagnosis keeps changing.

I don't actually mind labels as such, I just object to it being changed every time I see a new psychiatrist, plus although some seem to apply others have seemed unlikely to be right.

I haven't really got a lot of insight into why I can't do the things others can do such as make friends, just that the world seems completely obsessed with trivial things, other women find me quite odd (I don't ever wear makeup, get my hair or nails done, couldn't care less about the things they are interested in such as 'celebrities' and fashion.) I moved to a rural area a few years ago, which was some relief from the noise and stress of towns.

I spend my time watching Star Trek, and other sci fi programmes and films. I also read a lot, about religion, politics, animals, and I'm doing a science degree online. I collect books, cds and dvds, everything bought online of course.

Sorry, I've just realised I've gone on a bit, its just easier to write these things down rather than have to try to say them to a psychiatrist. Sorry again. Thankyou.



Georgia
Sea Gull
Sea Gull

User avatar

Joined: 21 Oct 2010
Age: 55
Gender: Female
Posts: 242
Location: At the foot of the mountain

06 Apr 2011, 8:57 pm

No need to feel sorry. In my experience, WP is at least one place where you are not unfairly judged by what you say.

I think there is a link between depression and autism. I had a lot of the same feelings about myself growing up. Someone here called it "breaking the social codes." It was/is impossible! Since I've accepted my self-diagnosis of aspergers, I've been able to be less critical of myself. I can think "Why is this so hard? Oh yeah, the Aspie thing." What to do after that realization, I don't know yet.

I don't have much advice about the diagnosis stuff. Off and on I want to get one, but then I'm hindered by cost and the overwhelming task of navigating the services. Just imaging tracking down the information to get started keeps me from going further. I'm glad that you have support from your mom. Great place to start :)


_________________
Hoppiness is lurv.


peterd
Veteran
Veteran

User avatar

Joined: 25 Dec 2006
Age: 73
Gender: Male
Posts: 1,374

07 Apr 2011, 8:09 am

Remember, when you're growing up you're a stranger in a strange land. Language - usually written language - is your only access to how other people think, but the picture of human life conveyed by the language doesn't match up to your experience. It matches up to everyone elses experience (I think).

Is this a recipe for crippling stress? Yes, it is.



seaside
Snowy Owl
Snowy Owl

User avatar

Joined: 10 Jun 2010
Age: 59
Gender: Female
Posts: 163

08 Apr 2011, 12:53 am

Omigosh all those things you list sound as if AHA AS is the answer and missing explanation--- can you find an AS specialist (not a layperson nonexpert psychiatrist) to discuss? Nonexperts may not know and may not have met hundreds of people on the spectrum.