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Autism Speaks Unveils New Scientific Agenda

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ASPartOfMe
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14 Dec 2017, 1:47 am

https://www.disabilityscoop.com/2017/12/14/autism-speaks-unveils-agenda/24528/

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The organization is looking to further biological research aimed at developing personalized therapies. At the same time, the plan recognizes that people with autism need immediate solutions to address co-occurring conditions like epilepsy, sleep issues, gastrointestinal troubles and mental health concerns, as well as evidence-based programs to support the transition to adulthood and aging in general.

As part of the process, Autism Speaks solicited feedback from families, researchers and other stakeholders in the community earlier this year, ultimately garnering input from more than 6,000 people.

How Autism Speaks chooses to allocate its science budget is meaningful. The group distributed $12.6 million in grants in 2014, trailing only the U.S. government and the Simons Foundation in spending on autism research, according to a federal report.

Going forward, the nonprofit said that its science agenda will continue to evolve.

“The plan released today is a living document,” said Thomas Frazier, Autism Speaks’ chief science officer. “We will continue to review progress and incorporate feedback in the coming years.”


Strategic Plan for Science 2018 – 2020


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BeeFarm
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14 Dec 2017, 9:46 am

Notice that they didn't consult people that actually have autism.



ASPartOfMe
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14 Dec 2017, 12:50 pm

BeeFarm wrote:
Notice that they didn't consult people that actually have autism.

Out of the 30 members of their board of directors 2 are autistic. I have no idea if they were consulted.


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CockneyRebel
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17 Dec 2017, 5:21 pm

ASPartOfMe wrote:
BeeFarm wrote:
Notice that they didn't consult people that actually have autism.

Out of the 30 members of their board of directors 2 are autistic. I have no idea if they were consulted.


I hope the rest of the people on the board actually take the time to listen to the concerns of the two autistic board members.


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