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Jiheisho
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12 Nov 2020, 4:45 pm

From the BBC: Textbook makes autistic people 'sound like toddlers'

Quote:
A publisher has said it will conduct an "immediate review" into an A Level textbook accused of being "deeply offensive to autistic people".

Pearson's A Level Psychology Revision Guide says children who have "tantrums" due to routine changes may be autistic.

The National Autistic Society called it "misleading" and has urged the publisher to correct the book.

It said: "A meltdown is not a tantrum. It is an intense response to an overwhelming situation."

The revision guide, aimed at but not approved by the AQA exam board, says some autistic children "like to stick to the same routine, and little changes may trigger tantrums".

But George, who is autistic and studying A level psychology says: "It makes us sound like toddlers."

He says: "If that's how they describe meltdowns what other inaccuracies are there going to be? Calling it 'tantrum' feels condescending."

His concerns are echoed by Tom Purser, Head of Campaigns at the National Autistic Society.

He said: "It's really disappointing to see this misleading phrase in an A-level textbook."

Mr Purser says a meltdown happens when "someone becomes completely overwhelmed" by a situation and they temporarily lose control of their behaviour - "they may shout, scream or lash out".

He says: "To call it a 'tantrum' suggests that this reaction is naughty, over the top or even intentional, which is simply not true and deeply offensive to autistic people and their families."

In a statement, Pearson said it was investigating the matter "urgently".

"We are committed to ensuring our products are held to the highest standards and will be consulting with an independent expert to help us conduct an immediate review."



KT67
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12 Nov 2020, 5:12 pm

Connotations matter a lot to NTs, generally speaking.

As well as to some of us on the autistic spectrum.

"Autistic meltdown" implies something medical which we can't help and which isn't deliberate, which could be cured for eg through sensory needs being met.

"Tantrum" in an adult implies selfish, manipulative behaviour in order to get our own way, or that we are being irrational.

There's some people on this site who don't care about the difference. Maybe they technically mean the same, broadly speaking, I'm not sure. But it's good for "PR" both internally (self-messages, making yourself know you're not inherently broken or selfish) and externally (making it so NTs who have nothing to do with autistic people, and those who do have something to do with us but don't want to extend empathy, don't hate us for being 'manipulative brats').

In my experience, other autistic people I've met have been the least manipulative types. Blunt to the point of rudeness sometimes, yes, but that's almost the opposite of being manipulative. I hope we don't begin to get this false stereotype attached to us, the way that for eg lack of empathy has been attached to us despite also not being very true.


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Jiheisho
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12 Nov 2020, 6:05 pm

^ This.



MrsPeel
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13 Nov 2020, 8:16 am

Agreed.
'Tantrum' usually refers to either:
- loss of control by a young child (eg under 5 years) who has not yet developed much self control, or
- a deliberate display of emotion or temper by an older child (or immature or manipulative adult) who has learnt it may get them what they want

Even if an autistic meltdown is physiologically similar in nature to a tantrum, using the word meltdown shows more precisely that we are not referring to either of the above.



firemonkey
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13 Nov 2020, 9:35 am

Pre depot AP , and regular meds, I could react very strongly when afraid/stressed. I'm sure it was seen as me 'acting up'. Other reactions were flu like symptoms/derealisation . Sometimes I'd drink a lot of alcohol to crash out.


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