What do you hate the most about having autism/aspergers ?

Page 13 of 14 [ 214 posts ]  Go to page Previous  1 ... 10, 11, 12, 13, 14  Next

CapedOwl
Snowy Owl
Snowy Owl

User avatar

Joined: 25 May 2025
Age: 48
Gender: Male
Posts: 143

Yesterday, 3:53 am

amusedviews wrote:
I just hate seeing the confusion in someones eyes when im explaining something even slightly complex. 8O And they look at me like im crazy or a moron (when i'm smarter than them, thats REALLY annoying).

This is the thing that really bothers me also. People who are not just (all in a flash) affronted, but threatened, then further competitive and disdainful - all punishments for my natural level of intelligence.


_________________
"The presence of those seeking the truth is infinitely to be preferred to the presence of those who think they've found it." - Terry Pratchett


CapedOwl
Snowy Owl
Snowy Owl

User avatar

Joined: 25 May 2025
Age: 48
Gender: Male
Posts: 143

Yesterday, 5:07 am

MrEGuy wrote:
1. The constant fear that I'm missing the punchline to some social interaction.

2. The constant fear that if I explain a problem to another person, they will freak out on me for being mean instead of focusing on fixing the problem. Defensive behavior laid down as a means of protecting the ego scares me s**tless, because so many people do it.

Yes, it's kind of scary how many NT people are like this. To my mind, they're sort like Chimpanzees instantaneously and instinctually baring their teeth (to show a willingness to attack), but they're not quite literally baring their teeth. It's a slightly socially-softened human version of it.


_________________
"The presence of those seeking the truth is infinitely to be preferred to the presence of those who think they've found it." - Terry Pratchett


kadanuumuu
Blue Jay
Blue Jay

User avatar

Joined: 26 May 2025
Age: 49
Gender: Male
Posts: 78
Location: Belgium

Yesterday, 10:22 am

Nice topic CapedOwl,

My biggest hurdle is the simple fact that everything(social) takes more steps and effort, in both directions (me to them or them to me). :)

bonus addon-opinion: I am of the firm belief that nothing has only 1 side, i.e. there is at least 1 positive and 1 negative side to everything worthwhile. I.e.: I have come to accept that there is no good without bad, etc...
And the same here, as much as I can sometimes curse everything about the world, how it is and how I am, I cannot but also be grateful, and would honestly not want to trade places with any NT-peer :)

kind regards,
Kada



Tamaya
Deinonychus
Deinonychus

Joined: 8 May 2025
Age: 35
Gender: Female
Posts: 319
Location: England

Yesterday, 12:02 pm

I'm starting to change my tune now. The only thing I hate about autism is the fact that I was diagnosed in childhood. I just know things would have been different if I hadn't of been. But that's just personally speaking, I'm not speaking for anyone else. Just in my circumstances in my experience I know things would have been better if I hadn't been diagnosed so young.



Aaron Hamill
Blue Jay
Blue Jay

Joined: 15 Mar 2020
Age: 35
Gender: Male
Posts: 77

Yesterday, 12:49 pm

Tamaya wrote:
I'm starting to change my tune now. The only thing I hate about autism is the fact that I was diagnosed in childhood. I just know things would have been different if I hadn't of been. But that's just personally speaking, I'm not speaking for anyone else. Just in my circumstances in my experience I know things would have been better if I hadn't been diagnosed so young.


I was diagnosed as a kid too ( age 8 ). Why do you think your life would have been happier without that early diagnosis? I'm just curious.



Last edited by Aaron Hamill on 12 Jun 2025, 4:42 pm, edited 1 time in total.

Tamaya
Deinonychus
Deinonychus

Joined: 8 May 2025
Age: 35
Gender: Female
Posts: 319
Location: England

Yesterday, 1:23 pm

Aaron Hamill wrote:
Tamaya wrote:
I'm starting to change my tune now. The only thing I hate about autism is the fact that I was diagnosed in childhood. I just know things would have been different if I hadn't of been. But that's just personally speaking, I'm not speaking for anyone else. Just in my circumstances in my experience I know things would have been better if I hadn't been diagnosed so young.


I was diagnosed as a kid too (age 8). Why do you think your life would have been happier without that early diagnosis? I'm just curious.


Hooray, another person my age who was diagnosed as a kid! I don't feel so alone after all. :)

Read this post of mine in this thread. I would copy and paste it here but I'm not sure if that's cross-posting, which is against the rules. But I explain it pretty good here.
viewtopic.php?f=35&t=416910&p=9695026&hilit=+Diagnosed+childhood#p9695026



CapedOwl
Snowy Owl
Snowy Owl

User avatar

Joined: 25 May 2025
Age: 48
Gender: Male
Posts: 143

Yesterday, 8:55 pm

kadanuumuu wrote:
Nice topic CapedOwl,

Thanks! Great post yourself, very insightful!
kadanuumuu wrote:
My biggest hurdle is the simple fact that everything(social) takes more steps and effort, in both directions (me to them or them to me). :)

Me too! It's very wearisome. There is one tool I've discovered which can help me lessen the beleagerment (when I can remember to do it). When I know I'm about to enter a social situation, or I'm in a social situation, I keep reminding myself (to take the edge off any anxiety): "Quit predicting... quit predicting... quit predicting". That's my mantra when around other people.

I came to learn that I have this energy-expensive, and subconscious, very deeply-ingrained habit of always trying to think ahead what the other might say, or how things might go. Social predicting is expensive. Far better is just to "ride the wave", as it were, allowing every moment to be fresh and spontaneous. I can never predict what the other person might say next, so why bother even trying. The trick is to give up such predictive trying. Anxiety turns to relaxing, then fun, then joy, when I can manage to do it!

I also use a trick where I steadfastly keep my mindfulness on the empty space between myself, and whomever else I am around, as the grounding, anchoring thing, which keeps me from getting lost in thought. This applies no matter where we go, or what we might do. It's the 100% top priority, above whatever might happen, or what might be said by any person.
kadanuumuu wrote:
bonus addon-opinion: I am of the firm belief that nothing has only 1 side, i.e. there is at least 1 positive and 1 negative side to everything worthwhile. I.e.: I have come to accept that there is no good without bad, etc...
And the same here, as much as I can sometimes curse everything about the world, how it is and how I am, I cannot but also be grateful, and would honestly not want to trade places with any NT-peer :)

I feel the same way, and you've earned a place on my forum "friend list" for that inspired utterance, Kada! :D


_________________
"The presence of those seeking the truth is infinitely to be preferred to the presence of those who think they've found it." - Terry Pratchett


10Lubak
Hummingbird
Hummingbird

Joined: 12 Jun 2025
Gender: Non-binary
Posts: 20
Location: Greater Chicago area

Yesterday, 11:08 pm

When people just give up on you understanding and say "it's not important". Maybe it isn't- but is it so wrong that I want to know what is going on/what people are really feeling about your words or actions.



funeralxempire
Veteran
Veteran

User avatar

Joined: 27 Oct 2014
Age: 40
Gender: Non-binary
Posts: 32,964
Location: Right over your left shoulder

Yesterday, 11:19 pm

10Lubak wrote:
When people just give up on you understanding and say "it's not important". Maybe it isn't- but is it so wrong that I want to know what is going on/what people are really feeling about your words or actions.


Have you never been on the other side of that interaction? Where you're the one who's frustrated by someone else's inability to understand?


_________________
The Party told you to reject the evidence of your eyes and ears. It was their final, most essential command.
If you're not careful, the newspapers will have you hating the people who are being oppressed, and loving the people who are doing the oppressing. —Malcolm X
Real power is achieved when the ruling class controls the material essentials of life, granting and withholding them from the masses as if they were privileges.—George Orwell


10Lubak
Hummingbird
Hummingbird

Joined: 12 Jun 2025
Gender: Non-binary
Posts: 20
Location: Greater Chicago area

Yesterday, 11:22 pm

funeralxempire wrote:
10Lubak wrote:
When people just give up on you understanding and say "it's not important". Maybe it isn't- but is it so wrong that I want to know what is going on/what people are really feeling about your words or actions.


Have you never been on the other side of that interaction? Where you're the one who's frustrated by someone else's inability to understand?


I have, but not when they're trying to. I respect the effort, the struggle even if they're not catching on- but I give a lot less credit to people who are insisting on only seeing something the way they originally did.



funeralxempire
Veteran
Veteran

User avatar

Joined: 27 Oct 2014
Age: 40
Gender: Non-binary
Posts: 32,964
Location: Right over your left shoulder

Yesterday, 11:28 pm

10Lubak wrote:
funeralxempire wrote:
10Lubak wrote:
When people just give up on you understanding and say "it's not important". Maybe it isn't- but is it so wrong that I want to know what is going on/what people are really feeling about your words or actions.


Have you never been on the other side of that interaction? Where you're the one who's frustrated by someone else's inability to understand?


I have, but not when they're trying to. I respect the effort, the struggle even if they're not catching on- but I give a lot less credit to people who are insisting on only seeing something the way they originally did.


So, you're familiar with reaching the point where you've ran out of ways to rephrase something for someone else, or have they always eventually gotten it?

I feel like once a person has run out of ways to rephrase something they have no real choice but to stop investing more energy because all that will happen is them becoming more frustrated.


_________________
The Party told you to reject the evidence of your eyes and ears. It was their final, most essential command.
If you're not careful, the newspapers will have you hating the people who are being oppressed, and loving the people who are doing the oppressing. —Malcolm X
Real power is achieved when the ruling class controls the material essentials of life, granting and withholding them from the masses as if they were privileges.—George Orwell


Edna3362
Veteran
Veteran

User avatar

Joined: 29 Oct 2011
Gender: Female
Posts: 13,277
Location: ᜆᜄᜎᜓᜄ᜔

Yesterday, 11:32 pm

Mine is just a matter of profile preference.
Not cognitive, but emotional.

I never like the fact that I did not get the type of autism with alexithymia, preferably that has little to no affective empathy to put up and regulate -- since there's no strong enough executive function to compensate into cognitive empathy to balance it.

So instead of going into a concrete more of thinking, focus on executive functions, put whatever internal sensory issues into a way side, I get "too emotional" :roll: with distorted emotional crapity that never reflects real life.



Well...
I now know not know much how much this applies to me now that I had granted a wish to never spiral.

I just hate the fact that it took basically more than 20+ years to reach this point for me to ever start feeling and being more of my willful self than this "body's noises" or that "whatever the limbic system all it never knew". :roll: :x


_________________
Gained Number Post Count (1).
Lose Time (n).

Lose more time here - Updates at least once a week.


10Lubak
Hummingbird
Hummingbird

Joined: 12 Jun 2025
Gender: Non-binary
Posts: 20
Location: Greater Chicago area

Yesterday, 11:34 pm

So, you're familiar with reaching the point where you've ran out of ways to rephrase something for someone else, or have they always eventually gotten it?

I feel like once a person has run out of ways to rephrase something they have no real choice but to stop investing more energy because all that will happen is them becoming more frustrated.[/quote]


If I can't figure out how to communicate, I end up asking for help as others have different/more relatable ideas. But yes, a lot of times I end up feeling like a failure for not saying something in a way a 'normal person' would understand.
(Unrelated- me who has always been so gullible- I read your location and start to look over my shoulder every time!)



funeralxempire
Veteran
Veteran

User avatar

Joined: 27 Oct 2014
Age: 40
Gender: Non-binary
Posts: 32,964
Location: Right over your left shoulder

Yesterday, 11:45 pm

10Lubak wrote:
Quote:
So, you're familiar with reaching the point where you've ran out of ways to rephrase something for someone else, or have they always eventually gotten it?

I feel like once a person has run out of ways to rephrase something they have no real choice but to stop investing more energy because all that will happen is them becoming more frustrated.



If I can't figure out how to communicate, I end up asking for help as others have different/more relatable ideas. But yes, a lot of times I end up feeling like a failure for not saying something in a way a 'normal person' would understand.
(Unrelated- me who has always been so gullible- I read your location and start to look over my shoulder every time!)


Yeah, it's frustrating, but I feel like once you've been on both sides of that situation it's easier both to handle being in the explainer's shoes, and in the one who doesn't get it's shoes.

Basically, you're not stupid for failing to understand an explanation, and they're not a jerk for giving up.

Communication deficits are pretty typical for autism, but often you can figure out what was being communicated afterwards, either by asking more people, or gaining some experience with the problem, or some other means.


_________________
The Party told you to reject the evidence of your eyes and ears. It was their final, most essential command.
If you're not careful, the newspapers will have you hating the people who are being oppressed, and loving the people who are doing the oppressing. —Malcolm X
Real power is achieved when the ruling class controls the material essentials of life, granting and withholding them from the masses as if they were privileges.—George Orwell


10Lubak
Hummingbird
Hummingbird

Joined: 12 Jun 2025
Gender: Non-binary
Posts: 20
Location: Greater Chicago area

Yesterday, 11:51 pm

Yeah, it's frustrating, but I feel like once you've been on both sides of that situation it's easier both to handle being in the explainer's shoes, and in the one who doesn't get it's shoes.

Basically, you're not stupid for failing to understand an explanation, and they're not a jerk for giving up.

Communication deficits are pretty typical for autism, but often you can figure out what was being communicated afterwards, either by asking more people, or gaining some experience with the problem, or some other means.[/quote]


Intellectually I agree completely, and I know that I am not a burden- however I have not gotten over the years of thinking I am, so the feelings remain. I need to work on it, it's kinda the genre of internalized ableism I have more generally as well.



funeralxempire
Veteran
Veteran

User avatar

Joined: 27 Oct 2014
Age: 40
Gender: Non-binary
Posts: 32,964
Location: Right over your left shoulder

Yesterday, 11:57 pm

10Lubak wrote:
Yeah, it's frustrating, but I feel like once you've been on both sides of that situation it's easier both to handle being in the explainer's shoes, and in the one who doesn't get it's shoes.

Basically, you're not stupid for failing to understand an explanation, and they're not a jerk for giving up.

Communication deficits are pretty typical for autism, but often you can figure out what was being communicated afterwards, either by asking more people, or gaining some experience with the problem, or some other means.



Intellectually I agree completely, and I know that I am not a burden- however I have not gotten over the years of thinking I am, so the feelings remain. I need to work on it, it's kinda the genre of internalized ableism I have more generally as well.[/quote]

I deal with those feelings, although I've never really thought of it as internalized ableism since it's significantly rooted in being identified as gifted despite the other issues I had. I expect myself to learn quicker than average and don't like when I only learn at an average pace, let alone slower than that.

Also, unrelated: When you quote someone you need to keep the part with their username to avoid wrecking the formatting.


_________________
The Party told you to reject the evidence of your eyes and ears. It was their final, most essential command.
If you're not careful, the newspapers will have you hating the people who are being oppressed, and loving the people who are doing the oppressing. —Malcolm X
Real power is achieved when the ruling class controls the material essentials of life, granting and withholding them from the masses as if they were privileges.—George Orwell