Do you have unexplained medical issues?

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skibum
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20 Jun 2025, 3:40 pm

Recently, some of the medical issues that I have had are getting much worse and much more severe. No doctors have ever been able to explain why I have the medical issues that I have. No matter how many tests they run, they can't find anything. I know that these issues are very real, and I have become an expert in managing them. As I am experiencing more severe episodes, I tried to find out if there had been any significant research on Autism and psychosomatic issues. I know that my issues have a very strong psychosomatic component, and I had hoped that more research had been done about this with Autistic people. But I have not found anything in my search. I am wondering how many of you also have medical issues that really affect you and cannot be explained medically.

I am not a doctor or a scientist so whatever I say is literally just my own thoughts from my own understanding and logic and from what I have learned from talking to many Autistic people and from analyzing my own situation. Now, I actually am an analytical savant, and I am excessively self-aware, so I am able to come up with pretty good theories that can make a lot of sense. But I don't have the resources to do all the research that I would love to do so I always hope that someone out there has also thought to do it.

Often times psychosomatic issues show up as anxiety and depression and ruminations and they are treated with medications and/or therapy. But from my conversations with some of you and with other Autistic people whom I know in real life, and from my own personal experience, I know that medications and therapies often do not work for these conditions with us. I think that the reason for this is that when we have these conditions and when we have psychosomatic health issues, the reasons we have them are different from the reasons that neurotypical people have them. So, the treatments don't work because they are designed to work under very different circumstances.

I am curious about what you guys think of this.


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20 Jun 2025, 8:42 pm

Could one factor be the medical professionals treating someone differently because of the neurodiverencies?


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Edna3362
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20 Jun 2025, 9:29 pm

I might be.

And...
I don't know. It's been almost a month now.

I suddenly lost a lot of unexplainable symptoms that I've been dealing for years when I wished (and wish granted) that I stop spiralling in any way.

It could just be an accumulation of years of self work on my part.
To a point that I wish that a lot of I deal is psychosomatic and I'll directly deal with it myself.

And I might've been, when the loss of many symptoms in one swoop is the outcome of that self work.

Headaches, tension, certain sensation that feel like my insides are working harder, unexplainable fatigue, feeling heavy, getting clumsy, being intolerant, gut issues, etc.
Even sneezing fits.

I stop taking supplements.
I lost my sugar cravings.
I might be stop stimming overtly altogether.
I even stop taking the anti-asthma inhaler that stopped the symptoms of chronic rhinitis.

I still get stressed and overstimulated.
I still have crappy executive function.
I still am swayed by hormonal changes.

But not any step closer to any shutdown or meltdown despite all that.
There was no environmental changes either, only that transition of me aging to 30 like it's magic because of that 'wish'.


It's fricking weird.


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Last edited by Edna3362 on 20 Jun 2025, 9:35 pm, edited 1 time in total.

EstelleTenebrica
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20 Jun 2025, 9:35 pm

People are so complex, and so different from each other, it's a miracle that any health issues can reliably be explained medically to the point where they can get resolved. I've been misdiagnosed in my small city enough that my family doc sends me to Seattle for specialists. They at least have the gumption to say the words "I don't know," which I've never heard locally.


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MrsPeel
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21 Jun 2025, 10:59 pm

I have a lot of undefinitive health issues which are hard to pin down to a cause. Things like fatigue, headaches, joint pains, digestive problems, periods of anxiety etc.

I went so long without knowing what was wrong that in the end I decided it must be psychosomatic. But then last year I got a test showing I have really high anti-thyroid antibodies, so now I think some of it is autoimmune. But it's hard to be sure, and it's possible there is a psychosomatic aspect to autoimmunity too. It's all rather confusing.

Anyhow, I think I agree. My belief is that with autism our bodies and minds function a bit differently, which means that the reasons behind our symptoms may not be the same reasons as neurotypicals, but doctors tend to make assumptions based on thier NT patients and try and treat us the same way.



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21 Jun 2025, 11:55 pm

So maybe just maybe, if autopsies on Autistic brains have typically show a greater amount of density of Neural
fibers . So if this is So ? Typical neurological responses have a greater intensity of neural fiber connectivities .
In Aspie persons . So responses in the nervous, might typically be a stronger physiological responses.. throughout the body . Consequently stressors might affect Autistic persons differently ( more strongly?). Have personally been through the mill with Doctors diagnoses. Eventually found that my own cause of Serious health issues often came down to
Managing things that create inflammation . That included personal stressors..and most types of supplementations of
various types of more natural Anti Inflammitory vitamins and supplements. Including some avoidance of certain personality types,of people ,that can create intellectual stresses. Have done extensive personal research in these issues concerning myself.With the help of medical testing and input of many medical professionals.Over a very long period of time.
( Curiousity Opinion): If the Aspie brain has hyperdevelopment of Neural connections,in the brain, Why wouldn't the rest of a Aspies body , not develop extra neural connections in other parts of the body?
Any input from anyone on this ?


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MrsPeel
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22 Jun 2025, 1:10 am

Yeah, maybe.
Also I think with autism sometimes our immune system works differently as well.



King Kat 1
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22 Jun 2025, 12:59 pm

So when the seasons change or there is a drastic shift in weather, my GERD acid reflux symptoms start giving me trouble.



ToughDiamond
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22 Jun 2025, 5:32 pm

EstelleTenebrica wrote:
They at least have the gumption to say the words "I don't know," which I've never heard locally.

Yes I've seen a sense of total certainty in a number of doctors in Arkansas. It's hard to imagine anybody could be that good. It's ironic that one of the core principles of science is that we're never certain of anything. Are they trying to instil a sense of confidence in the patients that they're in highly reliable hands? Doesn't work on me.

Anyway, I've got several unexplained medical issues simply because I rarely consult doctors, as I found my UK GP to be somewhat unhelpful (I used to live in the UK full-time). I've heard that the UK health service under-treats patients while the US health service over-treats them, if the patients can afford treatment at all. Don't know which is worse, but according to the statistics the state of health in the UK used to be twice as good as it was in the US a few years ago.



Edna3362
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22 Jun 2025, 11:38 pm

Jakki wrote:
So maybe just maybe, if autopsies on Autistic brains have typically show a greater amount of density of Neural
fibers . So if this is So ? Typical neurological responses have a greater intensity of neural fiber connectivities .
In Aspie persons . So responses in the nervous, might typically be a stronger physiological responses.. throughout the body . Consequently stressors might affect Autistic persons differently ( more strongly?). Have personally been through the mill with Doctors diagnoses. Eventually found that my own cause of Serious health issues often came down to
Managing things that create inflammation . That included personal stressors..and most types of supplementations of
various types of more natural Anti Inflammitory vitamins and supplements. Including some avoidance of certain personality types,of people ,that can create intellectual stresses. Have done extensive personal research in these issues concerning myself.With the help of medical testing and input of many medical professionals.Over a very long period of time.
( Curiousity Opinion): If the Aspie brain has hyperdevelopment of Neural connections,in the brain, Why wouldn't the rest of a Aspies body , not develop extra neural connections in other parts of the body?
Any input from anyone on this ?

Do you know anyone else who basically got rid of their triggers and drainers?

And see if they improved physically and functionally as they mentally and emotionally internally improved?

I'm curious myself. I just want to know...
Just how common the phenomenon that had just happened to me was.


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kadanuumuu
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23 Jun 2025, 7:17 am

@skibum
Maestra Skibum,

->Thank you for the post!

First a quick feedback to @Jakki :
You stated: "( Curiousity Opinion): If the Aspie brain has hyperdevelopment of Neural connections,in the brain, Why wouldn't the rest of a Aspies body , not develop extra neural connections in other parts of the body?
Any input from anyone on this ?"


-> Perhaps, but: The issue with this theory is that neurologists have looked and not found extraneous or surplus neural connections either in throughput or raw number in our vertebrae, or brain stems. There's even been studies showing slightly fewer synapses in ASD-brains vs NT peers (https://medicine.yale.edu/news-article/ ... ng-people/)

Maestra Skibum,

Could I ask you some clarification on the symptoms you are describing in your initial post, and/or some help in clarifying what you are looking for? I seem to understand that you are looking at psychosomatic root casues to the medical issues you are experiencing.
As this could be true or false depending on a wide variety of factors, I'm left a bit unsure on what I could offer you as a reply here. There are issues with our brain's chemistry that could cause medical-issues, there are situations(no sleep, stress, diet,…) that create a context for our bodies, which if persistent can invoke an hormonal-inbalance, leading to physiscal symptoms. Next we have the ASD familly of issues with interoception; i.e. our internal feedback systems (body-to-brain communication) wich are know to have possible impairments vis-a-vis Neurotypical peers. And then there are the "true" psychosomatic afflictions wich are entirely internal and also create a top down imposed unbalanced perception or given enough time even physical impairment.

Perhaps I could offer you a clear answer, but I need some guidance from you on where and what you are looking for feedback on.
Many thanks and kind regards,
Kada