Contact the DSM-V Committee to Protest the Newest Changes

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@ KenG: What are the details of the changes you are asking people to protest about?

I'm starting to wonder if you haven't misread the NY times article, as it seems you are have missed that those involved currently in the DSM revisions disagree with the findings of the study based on data from 1993. They are not, as you would have it, turning the clock back to 1993, and they dispute and refute the findings of the study which did look back almost 20 years.

So links, please, to the changes which you are asking people to contact DSM about.

AFAIK..

the ICD-11 is due in 2015… and no elimination of aspergers syndrome is planned…

also…

the DSM-V is supposed to become on par with the ICD-11….



some basic logic is completely lost.

well… there are probably to many NT's at work.

Well, given that DSM V is to have effect 2 years before ICD-11, it's hard to see how it could be on a par with it.

that is what wonders everybody in the rest of the world that uses WHO's ICD…

AFAIK the plan is that there is a planned revision of the upcoming DSM-V, to make it on par with the ICD-11 after 2015…


which could mean that aspergers syndrome has to be reintroduced…..


i'll try to find some documentation that supports what i remember to have read somewhere…. some interview with a important leader working on the ICD-11 stating this.

i could be totally wrong having misread it!

haven't found any documentation if the DSM-V is going to be revised later to match the ICD-11…

but…

here is what the ICD-11 alpha draft says about asperger syndrome:

http://apps.who.int/classifications/icd ... cd%23F84.5

You don't create a diagnostic category without an intent to use IT.

http://www.dsm5.org/ProposedRevisions/P ... x?rid=489#

Decisions are made by verifiable facts and reproducible studies. I suspect quite a few studies concerning ASDs will be done(over the next year) THAT will show critical distinctions and as a result play a major role in how clinicians diagnose their patient. (Read the abstract)

http://onlinelibrary.wiley.com/doi/10.1002/aur.178/full

"The DSM V committee will not finalize its new diagnostic criteria until December. However, according to Lord, the results of the first two field trials they’ve run are in, and the committee is pleased with the results."( I would like to see those results made public.)

http://www.thedailybeast.com/articles/2 ... -says.html

*This will be my last post on this subject matter.

TheSunAlsoRises

From GRASP:
==========
Our petition is over 3,700 at the time of writing. Thank you for whatever help you’ve given in signing and (more importantly) forwarding. Thank you for your emails and (daily?) calls to the APA. Don’t stop. This is all about momentum, and because GRASP doesn’t have the numbers of parent organizations, we especially need you to keep lobbying parent organizations to take part in preventing innumerable tens of thousands from losing special education funding, adult services, or self-esteem.

We got a boost today as the Autism Society of America (ASA) and the Autistic Self-Advocacy Network (ASAN) issued a joint statement calling for the DSM Committee to keep the diagnostic criteria in the DSM-5 as broad/restricted (depending on your views) as the DSM-IV has been. Comparing their statement to the literature you’ve seen from GRASP over the last 12 days, you may notice different points emphasized, and a different tone. But as every org will have differing realities to honor, this shouldn’t be seen as a controversy. As more and more orgs jump into this (and they have to), you will see wide disparity in WHY each org wants the current criteria maintained. But this is semantics. No one should care. Support them all. Sign everyone’s petitions, and have them all sign each other’s.

We urge members of these two orgs to lobby ASA and ASAN to follow up their statement with heightened activity (of ASA and ASAN’s choosing). ASA especially could be key in this due to the size of their membership, and the fact that, unlike GRASP and ASAN, they are a primarily parents org.

But we more urge members of (thus far) silent parents orgs to really lobby their leadership to get involved. Parents and their children are the most threatened by these proposed changes, and this particular threat is the greatest to them that I’ve seen in this field in all my years at GRASP. They should all be active, and not allow statements of “Well, your child may or may not qualify. But don’t worry. Let’s just see what happens” to lull their members into inactivity that may or may not be as devastating as this could be.

Tomorrow, GRASP will address some of the points being raised by those who feel there is nothing to worry about. Call it the “Naysayers Edition.”

What can you do?

If reducing the criteria threatens your child's special education funding, your services as an adult, or your self-esteem as an adult, then please maintain the following outline without letup:

1. Sign the GRASP petition found here, and forward the link with your appeal for people to sign everywhere and anywhere. Again: forwarding (especially through any and all appropriate social media sites) is arguably more important than signing.
2. Call the American Psychiatric Association (APA)—during normal business hours; once every day, if possible, at 703.907.7300. Yes, they are telling you to email instead. But we ask that you please instead be the articulate, impassioned, and peaceful nuisance that is needed in this debate, and not adhere to their instructions.
3. Email the your letters to apa@psych.org and to dsm5@psych.org
4. Check our Facebook page for updates, as well as to view the history and prior articles surrounding this issue since it broke 12 days ago. This is especially helpful for those of you who feel you need talking points for your emails to the APA.

Yours, y'all,

Michael John Carley
Executive Director
GRASP
The Global and Regional Asperger Syndrome Partnership, Inc.
www.grasp.org
===

i reported the 5's official fb page a while ago. and i have a bunch of anti-DSM 5 petitions on my youtube channel, "necelticsox", if you'd like to sign any of them.

http://www.change.org/petitions/dsm-5-c ... -the-dsm-5

In case anyone wants the APA's contact details for this purpose:

http://www.dsm5.org/pages/Contactus.aspx