Does the heterogeneity of autism undermine the neurodiversit

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firemonkey
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18 Jun 2020, 4:48 am

The trouble is Carlos spreads his net far too wide in condemning the ND movement . Most of the ND community are sensible people . They're not in denial about the debilitating effect of severe autism . Their main criticism,as far as I can tell, is over how help and support is provided for those at the severe end of the spectrum .


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HeroOfHyrule
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18 Jun 2020, 5:15 am

I've already expressed on here the fact I don't believe that for everyone ASD will really hold up as a diagnosis in the future, anyways. There's too many genes and traits associated with it for everyone who currently has an ASD diagnosis to just have the same exact disorder, especially with how vast the spectrum is. There very well could be people who have "autism" that are just technically what people call "neurodiverse". The heterogeneity of autism might be the actual problem here and it should be looked into more, which it seems like it is.

Quote:
For this study, an international team of researchers from more than 50 sites collected and analyzed more than 35,000 participant samples, including nearly 12,000 with ASD, the largest autism sequencing cohort to date. Using an enhanced analytic framework to integrate both rare, inherited genetic mutations and those occurring spontaneously when the egg or sperm are formed (de novo mutations), researchers identified the 102 genes associated with ASD risk. Of those genes, 49 were also associated with other developmental delays. The larger samples size of this study enabled the research team to increase the number of genes associated with ASD from 65 in 2015 to 102 today.



Edna3362
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18 Jun 2020, 6:01 am

HeroOfHyrule wrote:
I've already expressed on here the fact I don't believe that for everyone ASD will really hold up as a diagnosis in the future, anyways. There's too many genes and traits associated with it for everyone who currently has an ASD diagnosis to just have the same exact disorder, especially with how vast the spectrum is. There very well could be people who have "autism" that are just technically what people call "neurodiverse". The heterogeneity of autism might be the actual problem here and it should be looked into more, which it seems like it is.
Quote:
For this study, an international team of researchers from more than 50 sites collected and analyzed more than 35,000 participant samples, including nearly 12,000 with ASD, the largest autism sequencing cohort to date. Using an enhanced analytic framework to integrate both rare, inherited genetic mutations and those occurring spontaneously when the egg or sperm are formed (de novo mutations), researchers identified the 102 genes associated with ASD risk. Of those genes, 49 were also associated with other developmental delays. The larger samples size of this study enabled the research team to increase the number of genes associated with ASD from 65 in 2015 to 102 today.

Autism alone is the least of neurodiversity's worries.

If the majority of autistics are just allistics stuck with several to severe comorbidities, they'd still benefit from neurodiversity and supports that comes with it.

NTs themselves, do already.
It's already in forms of educational mediums under different names.
It's already under the guise of mental health awareness.
Ergonomics definitely fits the bill of being an ally first hand.



Where does this exclusivity came from?
And who here are -- seriously -- aware of neurodiversity outside autism? :|

No?? Then what exactly did you get yourselves into? :twisted:


:D Then do 'expand' autism as others believe to be until the label disappears.
Or, 'compact' what autism is. The limitations of the label itself had no bearing -- as long as it caters those who need it.



If the autistic label's all one person worries about, one isn't really practicing neurodiversity.

They're practicing identities to process and move on to -- which is neurodiversity is supposedly a guide of identity-labels transition.
In which identity and labels by themselves are not the whole basis of neurodiversity, that includes autism.


How I wish some people knew better than to make neurodiversity defined in limited terms. :lol: Or made autism too vague, defined too much on behaviors.

I seriously don't see the fuss about it.


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HeroOfHyrule
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18 Jun 2020, 6:14 am

Edna3362 wrote:
Autism alone is the least of neurodiversity's worries.

If the majority of autistics are just allistics stuck with several to severe comorbidities, they'd still benefit from neurodiversity and supports that comes with it.

NTs themselves, do already.
It's already in forms of educational mediums under different names.
It's already under the guise of mental health awareness.
Ergonomics definitely fits the bill of being an ally first hand.



Where does this exclusivity came from?
And who here are -- seriously -- aware of neurodiversity outside autism? :|

No?? Then what exactly did you get yourselves into? :twisted:


:D Then do 'expand' autism as others believe to be until the label disappears.
Or, 'compact' what autism is. The limitations of the label itself had no bearing -- as long as it caters those who need it.



If the autistic label's all one person worries about, one isn't really practicing neurodiversity.

They're practicing identities to process and move on to -- which is neurodiversity is supposedly a guide of identity-labels transition.
In which identity and labels by themselves are not the whole basis of neurodiversity, that includes autism.


How I wish some people knew better than to make neurodiversity defined in limited terms. :lol: Or made autism too vague, defined too much on behaviors.

I seriously don't see the fuss about it.

I think I pretty much agree with you? I'm not entirely sure, to be honest. It's late where I am, so I'm tired. lmao

There are people who say that the neurodiversity movement is null due to the fact that there are people on the autism spectrum who have "severe" autism, and thus are disabled. But I'm essentially trying to say that I don't think that makes it automatically null, due to the fact what we know as "autism" is a lot more complicated than people commonly think, and a lot of people who are considered higher functioning "autistic" (and who a lot of people say the neurodiversity movement are only really representing) have the chance of not even being considered to have the same disorder as "severely" autistic people.

I probably explained this horrendously, because as I said before I'm tired, but to break it down I think the neurodiversity movement is still important and that people having "severe" autism doesn't completely destroy the notion of it.



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18 Jun 2020, 7:04 am

Seems like some people are unable to answer a basic question- is the social disability model Adequate for John yes or no

Instead they blow a fuse, does not compute like putting a play station game in an Xbox everything crashes.

All that’s left is to attack a person’s character call them a troll, hater ism etc etc etc... rather than the viewpoint or give a proper logical answer which is a common avoidance trick.

Actions have consequences.

In the Uk like nearly all countries you need money to survive, if you can’t earn it you have to get it from the gov.

The gov gives money to you under 2 circumstances in the US I believe it’s a lot harsher:-

1. You are unemployed, capable of work and can prove you are looking for a job if you can’t prove that you are cut off from money

2. You are disabled and can prove you are disabled i.e you have a medical condition like severe autism

In the UK the gov tried to reduce its welfare bill by assessing disabled people harshly as “fit to work” some of these were autistic.

The result and you can ask anyone from the UK or google is many we’re left destitute and killed themselves.

There’s lots of Johns on the streets also who slipped through the net. Someone prob thought they weren’t disabled enough.

So facts matter like severe autism being real, read and learn

https://www.ncsautism.org/blog//abnormal-neurobiology


Despite my limitations from my aspie diagnosis I have never shyed away from any truth however difficult.


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18 Jun 2020, 7:52 am

Uh-huh. And I'm proud of you. 8O


You've already led this thread's topic in question astray.
But oh yes. I definitely agree actions have consequences. :twisted:


The rest of the post? Eh.. Why say are you still saying all this?

What does the UK's system had anything to do with the autistic heterogeneity endangering the foundations of neurodiversity??

Isn't UK too busy with the pandemic, like any countries do too?
Sorry, I'm at the short end of the stick here. I don't even live in UK.


Good luck. With... Whatever you're pinning.
I hope you can help homeless LFAs, desperate parents, or whatever you want to do favors with humanity.

I can't take you seriously anymore.


firemonkey wrote:
Most of the ND community are sensible people . They're not in denial about the debilitating effect of severe autism . Their main criticism,as far as I can tell, is over how help and support is provided for those at the severe end of the spectrum .

This is true.


The current premise is usually the lack of technological advancement, lack of resources, some cultural beliefs and the bottomless pit of unknowns.

Yet as of for now, that bridge between most of severe cases doesn't exists yet.
Some may already do -- it is either obscured, not yet spreaded out, difficult or tricky...
Or in some attempts, it works with one but not with another.

To say neurodiversity helps the severe cases now is unrealistic by itself. Let alone all of it.


But there's the option of genetic editing -- a shortcut, supposedly direct workaround if and if neurodiversity is too slow.
Maybe diversity itself, if not careful.

And even as of now, as the article already presented itself, that scientists had yet to tangle which autism is and which really isn't.


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18 Jun 2020, 8:26 am

The learning curve on autism is just beginning,just look at how wrong people were about autism even in the 1980's.

There are people alive who remember the day's of refrigerator mother theory,they used to say autistic people never make eye contact,they used to say no autistic person could ever speak.

It is so so to soon to make any absolute judgements on the truth's of autism because we still know so little,we have come a lifetime since I was diagnosed in 1989 but there is a lifetime left to go.Maybe I sound glib and pseudo philosophical but I believe it's true that there is much to learn.The neurodiverse and the cure/medicalists are just pending theory's and are not yet proven.


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carlos55
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18 Jun 2020, 9:43 am

You and other advocates still never answered the question -

is the social model of disability model ND promotes enough for John?

How does it improve his life on a day to day basis?

Is he disabled in the physical brain sense not just discriminated against?

I’m beginning to feel like one of those interviewing a politician :)

Avoidance Avoidance I wonder why :)


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18 Jun 2020, 10:00 am

Joe90 wrote:
I never understand what these articles are talking about. Too many big words that I've never heard of.
That's because it was written by a philosopher.  If he didn't use big, esoteric, and vaguely-defined words, no one would ever take him seriously, and especially not the peer-review board that examines the document.

About the Author: Jonathan A. Hughes is Senior Lecturer in Ethics in the School of Law at Keele University, UK.  His training is in philosophy and political theory.  His research in the field of bioethics has focused on conscientious objection, resource allocation, research ethics, risk and precaution.  He has also written on criminal justice ethics and environmental politics.

He obtained a BA in Philosophy from the University of Bristol and a PhD in Political Theory from the University of Manchester.

His first full academic post was in the Philosophy Department at Keele from 1994-1997.  He returned in 2001 and became a founding member of the Centre for Professional Ethics, and was its Director between 2005 and 2009.  He has been a member of the Law School since 2006.

He has also been a Lecturer in Political Theory and Research Fellow in Philosophy and Politics also at Manchester.


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18 Jun 2020, 10:27 am

carlos55 wrote:
You and other advocates still never answered the question -

is the social model of disability model ND promotes enough for John?

How does it improve his life on a day to day basis?

Is he disabled in the physical brain sense not just discriminated against?

I’m beginning to feel like one of those interviewing a politician :)

Avoidance Avoidance I wonder why :)

You ask questions that science doesn't have answers to yet.Common sense tells me a person is discriminated against because there disabled in the brain,common sense answer is both are true.

That is one hole in the neurodiverse theory,without disability,what is societies motive to exclude and discriminate.

Society is angry with us because we communicate poorly. :|


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18 Jun 2020, 2:58 pm

carlos55 wrote:
You and other advocates still never answered the question -

First of all, it's not easy to figure out who you are talking to if you don't quote people.

Quote:
is the social model of disability model ND promotes enough for John?

I think there is more to the neurodiversity movement than the social model of disability, and I don't think that promoting the social model of disability implies that only social factors cause disability. I don't think anyone has ever said that the social model is "enough" for anybody. I think we need to clarify what the sociopolitical positions of neuordiversity actually are to make this discussion meaningful.

Quote:
How does it improve his life on a day to day basis?

Well not being discriminated against helps John achieve whatever he is capable of, not being seen as worthless helps people try to work around John's limitations to help him or give him a chance to do something, and being seen as having a life that's worth living helps John avoid being murdered/neglected to death by his parents/caregivers.



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18 Jun 2020, 9:34 pm

firemonkey wrote:
If, as suggested, this belongs in the political section then please could it be moved to there.


Nope,
This post definitely belongs here, imo. :wink:



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18 Jun 2020, 9:53 pm

Edna3362 wrote:

I think I wasted my time.
I'm really sorry, I thought you're anti-ND because the world failed you or something.

I'm so disappointed. :oops:


Please, just please -- get more experience or understanding next time. Suggestion? Stay away from supremacists.
And I won't hold my breath on it.


Ouch! 8O



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18 Jun 2020, 10:02 pm

ASPartOfMe wrote:
Anything about "neurodiversity" belongs here in the "Autism Politics" section


That's what I thought. :scratch:



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18 Jun 2020, 11:37 pm

I didn't even know there was an 'Autism Politics' section till the thread got moved to there.


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carlos55
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19 Jun 2020, 9:01 am

The WP quoting function hasn’t worked on my new iPhone since I got it & don’t always have access to pc.

But was directing question to ND advocates in general.

Some people grossly inflate the discrimination element of severe autism and grossly trivialize and whitewash the oppressive life destroying symptoms at the same time to make them appear of equal value. They are not.

Bellow is the Neurodiversity paradigm from Wikipedia I’ll break it down:

The neurodiversity paradigm is a view of autism as a different way of being rather than as a disease or disorder that must be cured.

So no research for a cure for John guess that means no biological treatment research too to make him more functional and give him a better life, although he does get a little flag to wave once a year on autism day when he might get taken out in front of the cameras. What more could he want?

[40][42] Autistic people are considered to have neurocognitive differences[34] which give them distinct strengths and weaknesses, and are capable of succeeding when appropriately accommodated and supported.

Well John can’t speak, work, poor memory, can’t live on his own guess a girlfriend is a no no too. Difficult to see anything that replaces hard bio research that can help him achieve anything in his life which is likely to end a lot earlier by stats

[40][42] Efforts to eliminate autism should not be compared, for example, to curing cancer but instead to the antiquated notion of curing left-handedness.[43]

Probably the most absurd comparison out there. They seem to believe being incarcerated for the rest of your life in an institution as mentally disabled is the same as being left handed

If little old me and many other autistics can see the absurdities in this I wonder what gov and top scientific minds will make of it.

By the way Edna when gov get involved with ND it’s disability opportunities they are promoting. ND is just a catchy word for it. They are not promoting the paradigm for reasons given.

Autism will never be de-Disabalised the severe end will remain like cartoon cat Toms finger on Jerrys tail in Tom and Jerry. It’s not going anywhere.


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