Want to do things & my body says "NO, you are not."

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kitesandtrainsandcats
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21 Mar 2021, 9:01 pm

Jakki wrote:
, and coffee to make it through more difficult days ..but pay for it later .

And the 'interest' on that payment makes those payday loan places' interest rates look like free money!

Aw man, I didn't realize you had so many struggles. Wish ya didn't.
This stuff is truly far, far, in to "wouldn't wish this on my worst enemy, that would be just plain sadistic" territory.


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kitesandtrainsandcats
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21 Mar 2021, 9:12 pm

Jakki wrote:
And your projects on the shelves ?

Because it is fun to show them off;

Here's what one looked like out of the box in 2009 followed by after I had some fun with it a few years later and out on a friend's under-construction garden railway; and then 'the kitty in the window, the one with the long frizzy tail', enjoying the box the train came in,

Image

Image

Image


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Jakki
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21 Mar 2021, 9:35 pm

Agreed with so called health scientists and many many medical providers have be down a similiar research route on my own, with much trial and error using my body as a test dummy . Was at my wits end a few years ago .
Had been on as healthy as a diet as I can achieve given my circumstances . Can provide dissertations on bacterial type infections based on my own and others research had followed . It seems most docs will not do not want to deal with FMS or CFS and in the USA , ME and mycoplasmas are almost unheard of. Modern medicine is not , in my opinion.


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Jakki
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21 Mar 2021, 9:37 pm

Kitty in the Railway box looks sooo cute. Nice model railroad stuff ! Engines and scenery .


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kitesandtrainsandcats
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21 Mar 2021, 9:52 pm

Jakki wrote:
Kitty in the Railway box looks sooo cute.

:D During the years I was on Facebook that photo was submitted to a FB group titled "Cats Sleeping in Awkward Positions" and eventually they asked if I would give them permission to publish it in a little German language hard cover booklet they were publishing & my 'payment' would be a copy of the book.
Sure! :D

So I'm "a published photographer" and Grumman cat is an "international literary celebrity" :lol:


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kitesandtrainsandcats
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21 Mar 2021, 10:01 pm

Even though having my own pair of real life rescued critters sharing my home it remains uplifting to read the rescue stories here,
https://www.lovemeow.com/


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Jakki
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21 Mar 2021, 10:15 pm

kitesandtrainsandcats wrote:
Jakki wrote:
Kitty in the Railway box looks sooo cute.

:D During the years I was on Facebook that photo was submitted to a FB group titled "Cats Sleeping in Awkward Positions" and eventually they asked if I would give them permission to publish it in a little German language hard cover booklet they were publishing & my 'payment' would be a copy of the book.
Sure! :D

So I'm "a published photographer" and Grumman cat is an "international literary celebrity" :lol:


Congrats on being published. And having a celebrity kitty :D


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Jakki
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21 Mar 2021, 10:21 pm

kitesandtrainsandcats wrote:
Even though having my own pair of real life rescued critters sharing my home it remains uplifting to read the rescue stories here,
https://www.lovemeow.com/

Thank you those were darling :D


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kitesandtrainsandcats
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21 Mar 2021, 10:27 pm

Thanks!

And I wanted to add a YouTube channel I enjoy by a guy in Turkey, Walter Santi is the name of the channel but not his name, Walter is a family dog and Santi is a family cat.

The channel owner is an excellent story teller with his videos.
The stories about their various family and rescue cats are told by captions in English.

Here's one from March 20, a day or so ago,

Quote:
Rescue Kitten Found The Father He Never Had And Now They Are Inseparable!
This kitten was found all alone. But after he got rescued and adopted, he found the father he never had in his new home and now they are inseparable! They play all day long and at the end of the day they cuddle and sleep together..



Quote:
Pinned by walter santi
walter santi
1 day ago
Hi everyone. I've read all the replies under my last community post. Thank you to everyone who left a comment there.
As for this video; there is actually a happy coincidence in this story. As you know, Pamuk is our neighbor's cat and some time ago he started living in our front yard with the permission of his owners because he was already spending most of the days here in our garden with our cat Junior (his best friend). And the happy coincidence is that the people who called me about this kitten are actually Pamuk's owners. So in a way they found another best friend for their cat Pamuk without even realizing :)
Also, in case some of you wonder, Pamuk got neutered 1.5 years ago so there is no chance that he is the real father of the kitten. (All of our cats have been spayed and neutered except Pamuk Jr.)
More videos of Pamuk Jr will be uploaded in the coming weeks. Take care!



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Earthbound_Alien
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22 Mar 2021, 1:47 am

kitesandtrainsandcats wrote:
Juliette wrote:
When the body is fighting to function on a level that comes easy to others, all we can do is listen to the warning. If we don’t we suffer furthermore and for longer.

Truth, and demonstrated enough times I no longer fight the warning.
(at least not much)

Quote:
It’s about altering expectations

But I don't want my expectations altered, I want them fulfilled!


Sometimes altering your expectations and making them realistic can help you to fulfill them...



kitesandtrainsandcats
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22 Mar 2021, 5:18 am

Earthbound_Alien wrote:
Sometimes altering your expectations and making them realistic can help you to fulfill them...

The thing is, the degree to which those expectations need to be altered when you have a constellation of diseases which affect your body all the way down at the mitochondrial level and to the point where your body produces only about 1/4 of the energy level it used to.

Want to fix a meal?
NO.

Want to finally do the load of laundry you needed to get done a couple days ago?
NO.

Want to go out and do something?
NO - getting ready to go out used up all your energy for the day, now that you are showered and dressed it is back to bed for you.


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kitesandtrainsandcats
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22 Mar 2021, 5:50 am

Seen just now on Tumblr, which has quite an active disability community.
(also has an active writer community, which some call 'writeblr')

Quote:
fatigued-fate
howtobeapersonwithfibro
Avatar
compassionatereminders

I wish disability positivity was less about preaching "you can do anything you put your mind to if you work hard" and more about telling disabled people "what you can do right now matters even when it's less than or different from what society expects."


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Jakki
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22 Mar 2021, 8:22 am

Thank you for the lovely kitty video storytelling


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kitesandtrainsandcats
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22 Mar 2021, 6:45 pm

Jakki wrote:
Thank you for the lovely kitty video storytelling

Welcome!

And now I am weary of sitting around pretty much doing nothing.
Pharmacy is only 2 miles from home so I drove there to get BP meds refilled.
Was online here and there a bit.
But I want more.
Those were not fulfilling enough.

What is there enough dexterity and especially energy to do?
Laundry and vacuuming/hoovering need to be done but not enough energy.
Might have energy to do some small thing to some project.
But is there enough dexterity?
And will I be able to concentrate though this accursed headache?
:?
Wanna do something constructive to something there on the hobby table,

Image


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Jakki
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22 Mar 2021, 9:04 pm

That table looks inspiring , love the rockets . Looks very creative . Looks fun .


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Jakki
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22 Mar 2021, 9:07 pm

Wish my body would allow me more use of it . Just did Grocery shopping it is very hard to finish off each time . Loading unloading . Housework is beyond me mostly . Stairs. To do the laundry . Ugh .


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