proposal to create a specialized forum for sensory things

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Would you like to see a special forum created just for sensory integration disorders
YES 56%  56%  [ 18 ]
NO 34%  34%  [ 11 ]
DONT CARE 9%  9%  [ 3 ]
Total votes : 32

Strapples
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17 Dec 2007, 9:03 pm

Anubis wrote:
KBABZ wrote:
I think that a more appropriate term would be "Other Syndromes and Disorders Discussion Forum", but yes I can see it come in handy.


well.. i wouldnt want bipolars and people with disorders that could possibly bring the site down so maybe "other autistic spectrum disorders and syndromes" since most of the time a SID/SPD is related to the ASD


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23 Dec 2007, 8:04 am

Strapples wrote:
Sora wrote:
Sensory issues make a very big part of my autism too. I'd appreciate such a forum that is specialised on sensory issues, no matter whether they're diagnosed separately or considered as part of an ASD. There's already a forum on social realtionships too, so I think it would be legitimate to have one about sensory issues too.


i am in huge agreement as i hardly have mental aspect except obsessiveness... other than that its all sensory... i think we should keep voting in this thread until it becomes so huge the admins HAVE to do something!
Yes, I also would like to see a separate forum on sensory issues as they are the things that most affect me and some other aspies I know.


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Strapples
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23 Dec 2007, 10:15 am

Pandora wrote:
Strapples wrote:
Sora wrote:
Sensory issues make a very big part of my autism too. I'd appreciate such a forum that is specialised on sensory issues, no matter whether they're diagnosed separately or considered as part of an ASD. There's already a forum on social realtionships too, so I think it would be legitimate to have one about sensory issues too.


i am in huge agreement as i hardly have mental aspect except obsessiveness... other than that its all sensory... i think we should keep voting in this thread until it becomes so huge the admins HAVE to do something!
Yes, I also would like to see a separate forum on sensory issues as they are the things that most affect me and some other aspies I know.


yeah... sensory is like 90% of my autism... the other 10% is my majorly obsessive nature


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Pandora
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27 Dec 2007, 9:20 am

Yes, I'm much like that, only I also have issues with regulating emotions and in projecting body language.


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Strapples
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27 Dec 2007, 9:22 am

Pandora wrote:
Yes, I'm much like that, only I also have issues with regulating emotions and in projecting body language.

recognition of body language with me is total toilet... socialization with people of my own age unless they meet a lot of different constraints is limited to online interaction. most adults are easier for me because i just need to go to the right place... powerchair obsession go to my powerchair dealers office :D


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Strapples
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31 Dec 2007, 10:47 am

KBABZ wrote:
Strapples wrote:
KBABZ wrote:
Strapples wrote:
ShadesOfMe wrote:
That would go under general autism discussion. Is anyone really going to make enough threads about it for a whole section to be devoted to it?

yeah... ME!! ! i am an absolutely sensory obsessed person... and also slightly intellectually obsessed with sensory integration disorder

I have felt that given this is an AS Forum, an Obsession Section would be highly appropriate.

he he he he he... i am also thinking of all the people who seek information about their relatives or kids sensory issues... why make people dig when we can have a seperate centralized place for all sensory information and talk

The kids one could be found/created in the Parenting Forum, I beleive. Relatives could just be regular AS Discussion.


woah your reply flew under my radar for a long time..

why do we need it in the parenting forum... we need one for us auties/aspies to talk about it too...

I WANT A DANG FORUM FOR IT!! !


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02 Jan 2008, 5:19 am

Apart from communication issues relating to difficulties in projecting emotions, sensory issues are the main thing about having autism that I find hard to handle. This is why I'd be interested in seeing a forum specifically for these things and see how others are affected and if they have any strategies to make it easy to cope with their sensory issues.


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08 Jan 2008, 8:09 pm

ed wrote:
. . . My sense of smell, especially of fragrance (including real fragrances, like flowers) and cleaning solutions, is increased so much that I am diagnosed as "allergic to fragrance." It is impossible for people without this problem to imagine what it is like. It means, for starters, that I am literally allergic to many people. I would love to be able to discuss this with others who have the same problem. Perhaps a separate section would help.

I agree with Ed - it's an important topic, because one's sense of smell is a great source of pleasure, but also of unbelievable pain.

Acute sense of smell becomes a real problem in school and/or the workplace, because we are forced to sit near people who reek so much it literally makes us sick.

For example, because a co-worker drenches himself in nauseating cologne, and it was making me desperately ill, my boss suggested that I have my olfactory nerve severed, and then became annoyed that I found the idea insulting and barbaric.

She said that she could not ask him to stop wearing the perfume because it might "hurt his feelings", but she had no problem at all asking me to have two of my senses, taste and smell, literally amputated!
:pig:



Last edited by CityAsylum on 09 Jan 2008, 12:14 am, edited 1 time in total.

Strapples
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08 Jan 2008, 8:10 pm

CityAsylum wrote:
ed wrote:
. . . My sense of smell, especially of fragrance (including real fragrances, like flowers) and cleaning solutions, is increased so much that I am diagnosed as "allergic to fragrance." It is impossible for people without this problem to imagine what it is like. It means, for starters, that I am literally allergic to many people. I would love to be able to discuss this with others who have the same problem. Perhaps a separate section would help.

I agree with Ed - it's an important topic, because one's sense of smell is a great source of pleasure, but also of unbelievable pain.

Acute sense of smell becomes a real problem in school and/or the workplace, because we are forced to sit near people who reek so much it literally makes us sick.

For example, because a co-worker drenches himself in nauseating cologne, and it was making me desperately ill, my boss suggested that I have my olfactory nerve severed, and then became annoyed that I found the idea insulting and barbaric.

She said that she could not ask him to stop wearing the perfume because it might "hurt his feelings", but she had no problem at all asking me to have two of my senses, taste and smell, literally amputated!


ack... i cant stand that type of person... heavy pefume and clogne make me close up and breathing screw up..

WE... NEED... A... SENSORY... FORUM...


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16 Jan 2008, 8:14 pm

I haz started my own forum... and Sensory Integration Disorders has its OWN header!! !

anyone interested http://www.alinssite.info


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02 Feb 2008, 11:11 pm

Cologne doesn't usually bother me on its own but when people wear it and perfume to cover up body odour and don't do anything about the underlying problem it makes me want to throw up.


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Strapples
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04 Feb 2008, 7:24 pm

Who here thinks i should send this to Alex for consideration at this point?


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04 Feb 2008, 7:46 pm

Hi Alin - Yeah, well for me personally it would be a great forum, because some of my sensory issues are literally disabling, and I have big problems at the office as a result - I'm just not sure how many others are as affected as I am though. Hope you are doing well!



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04 Feb 2008, 7:47 pm

CityAsylum wrote:
Hi Alin - Yeah, well for me personally it would be a great forum, because some of my sensory issues are literally disabling, and I have big problems at the office as a result - I'm just not sure how many others are as affected as I am though. Hope you are doing well!


If you have seen other threads of mine you get a picture as to how they affect me... i cannot relax for ANYTHING unless you have one of my sensory sweet spots being hit on... It would be great if we had a whole forum devoted to it... but i dont think we will get that :(


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04 Feb 2008, 7:52 pm

Strapples wrote:
If you have seen other threads of mine you get a picture as to how they affect me... i cannot relax for ANYTHING unless you have one of my sensory sweet spots being hit on... It would be great if we had a whole forum devoted to it... but i dont think we will get that :(

Hahaha, I only have ~sour~ spots - can't stand people touching me, clothing touching me in the wrong places, or breathing all the fragrances people have all over themselves these days!

No one else seems to have that problem though, although Tony Attwood mentions that a lot of Aspies can't tolerate fragrances. I feel as if I'm alone on that particular planet!



Strapples
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04 Feb 2008, 7:54 pm

CityAsylum wrote:
Strapples wrote:
If you have seen other threads of mine you get a picture as to how they affect me... i cannot relax for ANYTHING unless you have one of my sensory sweet spots being hit on... It would be great if we had a whole forum devoted to it... but i dont think we will get that :(

Hahaha, I only have ~sour~ spots - can't stand people touching me, clothing touching me in the wrong places, or breathing all the fragrances people have all over themselves these days!

No one else seems to have that problem though, although Tony Attwood mentions that a lot of Aspies can't tolerate fragrances. I feel as if I'm alone on that particular planet!


I have some sour spots... but i have lots of sweet spots.. listed below..

my sensory integration disorder / autism is calmed/relaxed/comforted by the following i love soft silky straps and restrainy thingies!(see what i mean at http://bodypoint.com) tight warm things and places, deep pressure, sensory deprivation, being mummy wrapped, extremely tight hugs, blood pressure cuffs, lead aprons, soft latex/PVC thingys


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