Nice to be back! And a vent on the medical system

Post Reply New Topic

I had to take a hiatus because life got a little crazy, but it feels good to be back! My FIL passed away unexpectedly and it's been extremely hard on my DS because he was really close to his Grandpa. Then we had Spring Break so we rented a cottage and took off for a week. Perfect timing! We all needed the getaway.

Got the report from the OT on his SID assessment. Out of his 7 senses, only 2 are within the "normal" range. He has severe deficiences in the other five. At least this report gives us something to the bring to the school so that they can start planning providing more support for next year. They're not bothering with a report card this year because he's only half days and doesn't have what he needs in place to really fulfill his full potential which is just fine by us. He's doing awesome for him, but compared to his peers he's not. I don't need paper to tell me that. I'm happy to celebrate every little step he takes in the right direction.

Monday was supposed to be our AS assessment at the hospital. Our GP referred us to a neuropsych at the hospital. So I was shocked when I realized I had a 90 min appt with a paediatrician! Not too mention making S sit there for the entire time! The Ped was surprised that he didn't know my age when she asked him. Uhm...don't know many 7 yo's who DO know their parents age.

So I found out that the Ped is basically the intake dept and I have to go through her first. She wants to see me on my own, then S on his own, and then she'll take her findings to her "team" and tell me who I'm supposed to see next.

It really sucks that this woman only books appts on Monday's so the next available was May1 and then S has his next appt on May 8. I'm sure there will be yet another wait list for whomever we're supposed to see after that. But the special ed dept at the school said their wait list is a year so I guess in the end we're still better off.

I'm just really frustrated because he can't catch a break. Every day at shcool that he has a meltdown is another blow to his self esteem and he's trying so hard.

Then we have family who says we're trying to rush a dx and that the more we wait, the better off we'll be because we don't have to "label" him. You have GOT to be kidding me! There are so many great programs in our area but I need that little piece of paper before I can get my foot in the door.

Okay, rant done.

Good news - A teacher stopped me in the hall to say S was amazing at school today. There was some sort of guest speaker in his class which would have been too much for him so the resource teacher pulled him and set him up in the library with a computer program where you type out sentences and it reads them back to you. He went from typing random words, to making complete sentences! It's so nice when someone takes the time to tell you the GOOD stuff about your kid.

I hope the teacher took the time to tell your child what a good day he had. He probably needs to hear that more than you do. I have always felt so sorry for my son. He is 18 now and in college, but growing up all he heard were negative messages from the teachers and rejection from his peers. Hang in there.

She did! She was so great about it. She heaped praises on him and gave him a bookmark.

hey, who's footing the bill for the neuropsych ? as frustrating as it is, if the school system is paying...i'd put up with a long wait.........

Ha! I do have to say one of the things that I love about living in Canada is free medical! The government is paying for it because it's through the hospital. If I went to a private ed psych outside of the school or the hospital it would cost approximately $1500 CDN.

private one cost us $1500 American $...glad to hear that at least you don't have to pay

Bless that teacher!

The intake doc sounds like a lulu! MY children (at ages 13 and 14) probably don't know my age!

Your vacation does sound like it was...ahem...exactly what the doctor ordered. I'm glad you were able to take it.


My sympathies on the passing of your FIL. Death is never easy to deal with an an unexpected one is harder yet.

BeeBee

I have both my kids trained (11 and 6)- if asked they both spit out 29 for my age.... ROFL. Since my oldest is 25, you can imagine the looks they'd get.

People outside the "alphabet system" don't realize how important that label can be when it comes to accessing services. What it means for your family and your child is entirely another thing.