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A.S.D & Disabled, When You get Older
Willl have a hard time and will need assistence most definitly 13%  13%  [ 6 ]
Willl have a hard time and will need assistence most definitly 13%  13%  [ 6 ]
Will have some problems indipendently, will need some help 7%  7%  [ 3 ]
Will have some problems indipendently, will need some help 7%  7%  [ 3 ]
Might have problems with quality of life issues, but believe I will do ok 24%  24%  [ 11 ]
Might have problems with quality of life issues, but believe I will do ok 24%  24%  [ 11 ]
Needs no help, fully indipendent. 7%  7%  [ 3 ]
Needs no help, fully indipendent. 7%  7%  [ 3 ]
Total votes : 46

sc
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29 Mar 2006, 12:05 am

A.S.D & Disabled, When You get Older and parents pass on.. For those with disabilities..

A Poll

For those of the adult age now..



sc
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29 Mar 2006, 1:23 am

To those that are insulted by saying A.S.D’s are a disability

I’m extremely insulted that anyone would dare challenge the reality of those who are disabled with a form of autism. I’m sorry you do better, or might have some difficulties, yet there is a reality to contend to that is the truth.

I’ve witnessed a post concerning that, you won’t silence my words by any sort of peer pressure, I never responded to such nonsense in High School, I will not do it here or anywhere else.



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29 Mar 2006, 5:12 pm

sc wrote:
To those that are insulted by saying A.S.D’s are a disability

I’m extremely insulted that anyone would dare challenge the reality of those who are disabled with a form of autism. I’m sorry you do better, or might have some difficulties, yet there is a reality to contend to that is the truth.

I’ve witnessed a post concerning that, you won’t silence my words by any sort of peer pressure, I never responded to such nonsense in High School, I will not do it here or anywhere else.


Although I agree with you sc, I would just like to say it depends on the degree of severity of the ASD concerned. For some it does have a huge impact on their lives leaving people disabled whereas for others the impact isn't so huge (like with myself).

I'm looking at both sides of the argument here, as there are two sides after all. I also feel offended by the idea that ASD's as a disability is challenged as it shouldn't be. Some people with ASD's genuinely feel and are greatly affected by them, fact! But then some others challenge the idea that those with ASD's cannot possibly have, for example, a loving relationship with someone else and this offends me also.

Although I'm fully aware that we do not live in an ideal world, I don't understand how some of us are intolerant or challenge what others are going through or what we think etc. Being as the vast majority of us have some form of ASD on this site, I would have thought that we would all understand that ASD's have different degrees of severity and that it affects individual people differently owing to that severity and personality of the individual. Its the lack of understanding that I cannot understand, if you know what I mean, sc. This is just my 2 pence worth anyway.



sc
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29 Mar 2006, 7:45 pm

That is basic subjectivism, I already know of that, just by observing people like I usually do when I am around them. As for the statistical relevancy inter-group wise of dependence upon parents and what will happen after they pass, a serious issue, is what this is about. Coming to the truth of it, also preparing for it, requires the inter-group statistical information’s.

It is already known that persons with M.R who are likely not on this forum, yet I am not understanding of that mentality are in need of services. Persons who have difficulties among us, it is important to understand, as some are into the political advocacies that might not realize to the extent and seriousness of it.

The total goal of this post, is to make aware the challenges in % within the group that we face. My hope is a unique agenda in advocacy just for quality of life issues. Some people of a form of autism might end up homeless, like veterans can become.

For me myself, I will likely share what is given with me with others, yet doing it on my own is the first option, yet the first poll option is broadened, there are many realities in functionality that might be concluded of it.

---

As for myself, I am entirely scared shi*less, a saying that denotes truth despite cogency. It is my truth, some share it.



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30 Mar 2006, 10:50 am

sc wrote:
To those that are insulted by saying A.S.D’s are a disability

I’m extremely insulted that anyone would dare challenge the reality of those who are disabled with a form of autism. I’m sorry you do better, or might have some difficulties, yet there is a reality to contend to that is the truth.

I’ve witnessed a post concerning that, you won’t silence my words by any sort of peer pressure, I never responded to such nonsense in High School, I will not do it here or anywhere else.


First of all, ASD isn't a true disability, it's a difference of ability, what makes some more 'disabled' than others is the co-morbid issues like ADHD/MR/Sensory Issues, etc that make some have more difficulties than others. If you take out the co-morbid things that can occur in those with ASD, we'd be all more equal on ability and differences. The co-morbid disorders just add onto the spacings between individuals on the spectrum even with the spectrum as it is. Yes we all have our ranges of difficulties and challenges but calling it a disability isn't always right because then you get the negative stereotype people focus on and forget the strengths even the most challenged individual may possess. I despise the label 'disabled' because as soon as someone is labelled it, people limit what they expect of them and then in turn give up on their potential as well.

Add on the fact of this poll is not everyone knows what their future holds for them as far as challenges so the fact that an 'other' category was left out makes it hard for some potential individuals to weigh in properly on their thoughts of this topic. I may not feel I'll need help later, but I don't know what is going to happen, my arthritis alone may cause me to 'be disabled' and require help with living and all, it may not, my anxiety or depression could do the same or not. I'm not one to try to predict future outcomes when noone is able to do that.



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30 Mar 2006, 11:16 am

I think I'll do okay also long as I don't become one of those people with 50 cats and 23 dogs living with me :D


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sc
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30 Mar 2006, 11:25 am

Look at the DSM-IV and medical documents, some do well some do not. For those that do well, that want to make it all positive and say "it's not a disability" are lacking in truth. Thats the point being made, thats the truth and thats reality.

Nothing will change that fact look at the poll, we have already displayed a subjective arguement.

For those who have no disabilities, impairment or what not, then by my understanding of the current diagnostic criterion it is not fitting the discription.

The different ability, is a push line, meaning a positivity arguement for self-esteem. There is no same different ability universaly amoung those with A.S.D's. It's false, lacking of fact and is not real.

To view it properly, A.S.D is simply a set of challenges and or differences, It is not what is wrong or right, but what is different, I do think there need to be a seperation between exreme and very mild, mild being personality traitism in similarity, not fitting the entire "picture" diagnostically.

What I think will help, is for those with differences that make employment challenging, is to create further developed vocational programs for proper placement in employment and higher education.

If your intent is to not go by the DSM-IV, then it is outside of the scope of my willingness to view..

Disabilities become differences in ability with proper understanding, yet understanding for a % will indeed not revert the fact of reality.

Your a mother, I understand the parental ego complex.



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30 Mar 2006, 11:38 am

I don't understand the parental ego complex although I am a parent. What is it?

ASD is a spectrum. Some people have more challenges than others. Some people need more help than others. Some people believe they are completely independent, but I wonder how independent anyone truly is. I believe most people are more interdependent than they think. I did not realize how much I depended on my mother's help until she died.



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30 Mar 2006, 11:55 am

Parental ego complex..

I'll start a new topic for this later...

Desires to view his or her child with positivity, rather then accepting challenges his or her child has. Also to view those challenges as a defect of some sort...Positivity is not a bad thing, all want the best for a child, unless the parents are bad.

Disability to a parent in a child is a hard thing to accept.

Many of the other relevant issues to this topic while I can accept are to sensitive I think to display, some here are adults with A.S.D and are mature enough I think to read what I am saying, otherwise the other viewers are not.

What is different now in this time in history, rather then before is accomobility in education in upbringing, so it is better, in the long-term it is perhaps different because of that.


----

The issue with the spectrum terminology is that it is broadened, all encompasses varying degrees of disability / differences. Yet disabilities I will admit, sometimes are really hidden abilities, enabled in the correct environment and circumstances becoming less relevant.

That is why, I think in A.S.D's disability is furthered psychologically by the lack of understanding in the form of accommodation. For instance depression might be due to lack of accommodations and what not, whereas with assistance depression is greatly reduced if not entirely removed..

Had to edit for an error, if you already read.**



Last edited by sc on 30 Mar 2006, 12:03 pm, edited 1 time in total.

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30 Mar 2006, 12:01 pm

My views have little to do with my views as a parent as I had those views well before I ever became a parent, secondly I watch my son doing very well despite having Moderate Autism and was told he'd likely never talk... I've seen the improvement and all he has made with help and all mainly from me and all. I've seen the improvement I've made in my life in many areas as now an adult dx'd with Aspergers. It has nothing to do with Parental Ego or anything... it seems you like making assumptions that are not yours to make. I don't like limiting anyone by a label because every person no matter how challenged they are has something to offer the world no matter how small and labels just put too many stereotypes that give people an excuse to not expect as much out of a person which is more harmful to the person than taking one's chances on seeing what that person truly can or can't do based on allowing the individual to experience it with guidance if needed.



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30 Mar 2006, 12:05 pm

Nope I am not, Autism is not an identity, it is not the person, autism is something seperate.

That is the truth, it is symptoms not a person. In your case they reduced.

The people who continuelly desire to view it as something positive are false.



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30 Mar 2006, 12:19 pm

sc wrote:
Nope I am not, Autism is not an identity, it is not the person, autism is something seperate.

That is the truth, it is symptoms not a person. In your case they reduced.

The people who continuelly desire to view it as something positive are false.


Aspergers is just as part of who I am as Autism is a part of who my son is. It is genetic-based in our family (we have several autistics on my father's side of the family) so it's not a group of symptoms, it is part of our nature, part of our temperment and part of our lives and not to go forward positively, we might as well sit on our asses and expect others to care for us and have no hope period... hell we may as well be like those that wish autism didn't exist the way you are talking. And as far as I'm concerned, you're in no position to make any judgements about me so I suggest you stop.



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30 Mar 2006, 12:25 pm

Other debilitating conditions are genetic based, viewing the label as part of yourself is just setting yourself up for persecurotry delusions. Inteligence can be genetic, so can other things, just becuase of the genetic factor does not mean society in its efforts to treat and or cure symtoms is trying to distroy your family line.

You call them sterotypes, this is attachmental. It is if genetic, not always seen in others in the family, are indeed debilitating. Sometimes parents view themselves in there children to relate to them, my mom does the same thing, she does not have A.S.



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30 Mar 2006, 12:33 pm

I have a diagnosis that was given unofficially to me by an autism expert thank you, it is off the records because I chose to ask it be left off them for potential custody issues that could arise because of it. So if you're trying to imply that I am only a fake, you're wrong and honestly I wouldn't need to justify it to you. I think maybe you should stick to topic versus bashing others for their opinions that you only asked for. I am not ashamed of having AS, and my son will not grow up ashamed of what and who he is and he will not grow up to think he is diseased due to 'symptoms', symptoms are part of illness and disease, my son and I are not diseased.



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30 Mar 2006, 12:40 pm

I am not saying your fake, you are upset at my truths..

I am not bashing anyone.. Your mad.

I suspect it's best not to speak with you, I am more into inteligent debate then what is trying to make me out to be, becuase you disagree. There is propaganda online concerning autism, all over the place..

I like professional opinions, not P.R doctors to sell books and make money.



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30 Mar 2006, 12:48 pm

It's terminology, dispite disability.

That's the nature of pathology, it's just a word, no one needs to feel attached to it becuase people have been practically brain washed to be so.