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Autism Talk TV Ep. 3: Allison Singer at IMFAR

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MathGirl
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26 May 2010, 10:06 pm

yes, but just the fact that she had agreed to say that in a video that would be watched by millions of people is disturbing.

does she still support what Autism Speaks does?


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Ferdinand
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26 May 2010, 10:07 pm

What DOES it do?


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alex
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26 May 2010, 10:07 pm

MathGirl wrote:
does she still support what Autism Speaks does?


Well I think there's a reason she started her own foundation. I don't think the idea of "cure" means the same thing to her as what it means to me. When she says "cure" she wants to make it so her kid can someday talk to her. I think that's what she means when she says cure. Not defending the video though.



Last edited by alex on 26 May 2010, 10:10 pm, edited 1 time in total.

MathGirl
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26 May 2010, 10:09 pm

Ferdinand wrote:
What DOES it do?
research to find a cure, apparently. but that's not the worst thing about it. the worst thing about it is that it promotes this horrible portrayal of autism and that it has so much money, but the money does not go to provide more services for people with autism. it goes straight into the employees' pockets.


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alex
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26 May 2010, 10:11 pm

MathGirl wrote:
Ferdinand wrote:
What DOES it do?
research to find a cure, apparently. but that's not the worst thing about it. the worst thing about it is that it promotes this horrible portrayal of autism and that it has so much money, but the money does not go to provide more services for people with autism. it goes straight into the employers' pockets.


I agree about the horrible portrayal of autism in a lot of their videos. I think you'll be interested in the interviews I got with some of the autism speaks people.



MathGirl
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26 May 2010, 10:11 pm

alex wrote:
MathGirl wrote:
Ferdinand wrote:
What DOES it do?
research to find a cure, apparently. but that's not the worst thing about it. the worst thing about it is that it promotes this horrible portrayal of autism and that it has so much money, but the money does not go to provide more services for people with autism. it goes straight into the employers' pockets.
I agree about the horrible portrayal of autism in a lot of their videos. I think you'll be interested in the interviews I got with some of the autism speaks people.
Definitely.


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Ferdinand
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26 May 2010, 10:11 pm

Weird... Alex, can you find out more information?


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alex
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26 May 2010, 10:14 pm

Ferdinand wrote:
Weird... Alex, can you find out more information?

sure



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26 May 2010, 10:18 pm

alex wrote:
Ferdinand wrote:
Weird... Alex, can you find out more information?

sure


I'm REALLY curious now. Heh.


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lau
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27 May 2010, 8:31 pm

alex wrote:
I interviewed Allison Singer of the Autism Science Foundation at IMFAR. ...

She starts off by mentioning advocacy, then swiftly leaps into "genetics, biomarkers and treatment."

On her way, she explains how it was such a shame ABA wasn't around earlier.

Near the end, she explains how she will get scientists to develop drugs to "return the function that is disrupted..."

No thank you, Alex. I don't care for anything that comes out of Autism Speaks.


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lau
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27 May 2010, 9:04 pm

PS. It might be a good idea to spell her name correctly: http://www.autismsciencefoundation.org/leadership.html


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27 May 2010, 9:56 pm

I've lost interest in anything to do with Autism Speaks, the very first time that I've watched the Autism Everyday video, back in 2007. Autism Speaks does not speak for me.


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lau
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28 May 2010, 6:51 am

Ah well... I tried to use the spam-laden, non-functional, private to Alex, article area, but Alex seems to have deleted one of my responses there.

It sounds as if WrongPlanet is about to be handed over to Autism Speaks. Maybe they will be able to use it. Their pockets are deep.


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alex
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28 May 2010, 10:45 am

lau wrote:
Ah well... I tried to use the spam-laden, non-functional, private to Alex, article area, but Alex seems to have deleted one of my responses there.

It sounds as if WrongPlanet is about to be handed over to Autism Speaks. Maybe they will be able to use it. Their pockets are deep.


What are you talking about? Nothing you said makes any sense and I didn't delete any of your responses.



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29 May 2010, 4:51 am

lau wrote:
alex wrote:
I interviewed Allison Singer of the Autism Science Foundation at IMFAR. ...

She starts off by mentioning advocacy, then swiftly leaps into "genetics, biomarkers and treatment."

On her way, she explains how it was such a shame ABA wasn't around earlier.

Near the end, she explains how she will get scientists to develop drugs to "return the function that is disrupted..."

No thank you, Alex. I don't care for anything that comes out of Autism Speaks.

Alison Singer has NOTHING to do with them anymore and I agree with quite a lot of what she says.


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ringofedwin
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29 May 2010, 6:16 am

alex wrote:
MathGirl wrote:
does she still support what Autism Speaks does?


Well I think there's a reason she started her own foundation. I don't think the idea of "cure" means the same thing to her as what it means to me. When she says "cure" she wants to make it so her kid can someday talk to her. I think that's what she means when she says cure. Not defending the video though.


ahh last i check her child could talk. in said i love you mommy and also said are you crying, why are you crying.