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Jamesy
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07 Apr 2011, 5:12 pm

I had a big bust up with my family earlier and 2 hours ago my dad was talking to my mother and my dad remarked "I think James has full blown autisim" 8O

Scary to hear that because i thought i had aspergers not full blown autisim.

What is full blown autisim and what can i do about this?



Phonic
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07 Apr 2011, 5:22 pm

Bluntly put, I don't think you could be on the internet with "full blown autism" or talk

Did you have delayed learning of language? Do you have a learning disability? (low IQ in this case)

If yes to both then you would have classic autism, if yes to the first then you have High Funtioning Autism, if no to both then it's aspergers

That's Lorna Wing's criteria for the spectrum, I think I agree with it since it doesn't really mention severity, someone without a speech delay or learning disability can still be very severely crippled by aspergers, and someone with a speech delay and low IQ (classic autism) can get on fairly well in life with support, so it's inaccurate to say aspergers is mild autism and classic autism is severe autism, it doesn't add up.

from what you've said, maybe your dad doesn't know what he's talking about.


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Jamesy
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07 Apr 2011, 5:26 pm

I think i might have had a delayed langauge development when i was a child

I have been told i have semantic pragmantic disorder which is something to do with langauge and is related to AS and Autisim

I thik i have a learning disability as well because i needed Learning suppourt assistants in school. Not sure about my IQ level?

Unlike NTs and people with AS i am angry alot and use violence becuase i have meltdowns and day to day living i find hard. basilcy small things bug me which is why i am angry and violent a lot of the time. Because of my agession i got punched around the head by my brother earlier and he sent me flying to the floor because i ruined my mothers birthday and i threw milk over him:( Got what i deserved really.



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07 Apr 2011, 5:46 pm

Jamesy wrote:
I think i might have had a delayed langauge development when i was a child

I have been told i have semantic pragmantic disorder which is something to do with langauge and is related to AS and Autisim

I thik i have a learning disability as well because i needed Learning suppourt assistants in school. Not sure about my IQ level?

Unlike NTs and people with AS i am angry alot and use violence becuase i have meltdowns and day to day living i find hard. basilcy small things bug me which is why i am angry and violent a lot of the time.


I don't know. I think the whole distinction between HFA and AS is nonsense (and I wholeheartedly agree with the psychiatric community's decision to subsume both under the title "Autism Spectrum Disorders"). You are either on the spectrum or you aren't. The rest is personality, and you can take the Myers-Briggs test for that.

When I was a kid, I heard (and overheard) a good number of conflicting words and acronyms describing me. I was labeled by various people as everything from EFD (Executive Functioning Disorder) and ADHD to SPD and NVLD. Now, according to what I've seen on the internet (which, of course, is the most reliable source one can find), SPD is exclusive to HFA, and is not part of AS. I've also heard that NVLD is associated with and possibly related to AS. Yet of the aspies I personally know, most have had at least some manifestation of SPD, and I am no different. I also have had relatively minor difficulties in social interactions with my peers, which I hear is not nearly the case in basically every HFA case. So again, I postulate that it is a difference in personality that distinguishes them.

About you personally? I wouldn't sweat it. Whether you have AS or "full blown autism," you are still you and nothing your dad says can change that.



Jamesy
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07 Apr 2011, 5:52 pm

What can i do from here about having full blown autisim?????? I want to be able to live a good quality of life.



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07 Apr 2011, 6:19 pm

Your dad says you have full blown autism for the same reason my dad always said I needed to be hospitalized. He is probably a little bit of a drama queen.



Phonic
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07 Apr 2011, 6:49 pm

Ask someone to help you find a therapist/doctor who specialises in autism, get checked for a new diagnosis and they will help you with treatment options.


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Jamesy
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07 Apr 2011, 7:15 pm

There is a chance i may not have full blown autisim though cause people like that can't even speak or realise what is wrong them.

What is full blown autisim anyway? :?



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07 Apr 2011, 7:28 pm

How did he say the remark? I get the impression that he wasn't being serious.

Honestly my mum has said I've had MS, Bipolar and who knows what else but she wasn't being very serious.

Really it sounds like maybe your behaviour is frustrating him and he said that remark out of frustration. It's like if someone said that I was a 5 year old child. I'm not, I know that but they said it because my they got sick of my behaviour. I've been called that before.

Mindslave wrote:
Your dad says you have full blown autism for the same reason my dad always said I needed to be hospitalized. He is probably a little bit of a drama queen.


Or this.


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Jamesy
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07 Apr 2011, 7:31 pm

Well i am not in my dads good books tonight because i ruined my mothers birthday. my mum is 52 now so you can see why my dad was hacked of with me.



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07 Apr 2011, 10:32 pm

Jamesy wrote:
What can i do from here about having full blown autisim?????? I want to be able to live a good quality of life.


It seems like you're basing your future on a label you might not even have. I also agree that it is good to combine things under the ASD heading. Really, whether you have Aspergers or High-Functioning Autism--both of which are the same, IMO, that shouldn't determine your future quality of life. If the doctors said, "sorry, we made a mistake, you don't have Asperger's, you have classic autism", for one that change in label is not going to change who you are. You already are you with or without the label. And two, there is no significant difference, or any at all, between AS and HFA, so regardless of the label, you are going to have the same quality of life. If you were "low-functioning" autistic, you probably would not be on here questioning it--you, your parents, and your doctors would know.



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07 Apr 2011, 11:05 pm

Jamesy, just about everyone who fits the criteria for AS also fits the criteria for autism.

Phonic wrote:
Bluntly put, I don't think you could be on the internet with "full blown autism" or talk


Plenty of people fit this description and are on the internet. Very few of them come here (although a few do, at least one posts here fairly frequently).

Quote:
That's Lorna Wing's criteria for the spectrum, I think I agree with it since it doesn't really mention severity, someone without a speech delay or learning disability can still be very severely crippled by aspergers, and someone with a speech delay and low IQ (classic autism) can get on fairly well in life with support, so it's inaccurate to say aspergers is mild autism and classic autism is severe autism, it doesn't add up.


I'll also add that Leo Kanner's patients didn't all have speech delays and many would have fit in fairly well with Hans Asperger's patients. "Classic autism" is not actually classic autism.

/pedantic



Jamesy
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08 Apr 2011, 4:37 am

At the moment i am just living a reclusive life at home with my NT brother harrasing me everday and my parents not doing anything about it. Your 20's tend to be the toughest times and before i enter the world i am going to need some coping mechanisims.



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08 Apr 2011, 5:01 pm

Jamesy wrote:
What can i do from here about having full blown autisim?????? I want to be able to live a good quality of life.
The first thing would be for you to find out, from a professional, exactly what it is that you do have.

And in relation to this and earlier threads/posts - have you been to your doctor yet and discussed any your concerns and problems?
Your family is clearly (again, from your posts elsewhere) unable or unwilling to do anything to assist you.


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08 Apr 2011, 5:19 pm

Phonic wrote:
Bluntly put, I don't think you could be on the internet with "full blown autism" or talk


I'm said to have full-blown autism and I'm on the Internet.

Quote:
Did you have delayed learning of language? Do you have a learning disability? (low IQ in this case)

If yes to both then you would have classic autism, if yes to the first then you have High Funtioning Autism, if no to both then it's aspergers


Funny then, how most of Kanner's original subjects didn't have classic autism, despite "Kanner autism" and "classic autism" being supposed to be the same thing. Also, using IQ as a determining factor in what kind of autism you have seems kind of ridiculous considering that nothing about autism says you have to have an intellectual disability.

Also, by those criteria, there are tons and tons of people who have "classic autism" can speak and use the Internet. I think you underestimate people with intellectual disabilities: Most people who have them can speak, and many can read and write, and that applies to people with autism and purported intellectual disabilities as well. The idea that you couldn't speak if you have a speech delay and low IQ says a lot about the person who has that idea and very little about autistic people's abilities.


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Phonic
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08 Apr 2011, 5:55 pm

it was something Lorna Wing talked about and I thought it was interesting since it didn't define differences by severity, just delays and cognition.

That said, I think it should all be scrapped and replaced with a single diagnosis and a severity scale, then we all have Autism Spectrum Disorder and varying degree's of severity, much simpler.

And when I read "full blown autism" i didn't take it as necessarily meaning kanner autism, just very severe autism, and kanner's autism isn't necessarily severe in the long run.

I can't wait for the DSM V :(


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