Autism Speaks drops cure/prevention from Mission Statement

Page 3 of 3 [ 45 posts ]  Go to page Previous  1, 2, 3

ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 66
Gender: Male
Posts: 34,480
Location: Long Island, New York

22 Oct 2016, 3:51 am

If it is not autism specific treatments at best it is partially useful and often harmful. ABA is not readily available for older adults diagnosed with with autism. CBT is. But if you are not diagnosed because you are believed not to be really autistic there are no treatments likely for you. If I were to receive payment for every time I have read about adults seeking autism diagnosis only be to told "you do not need a label" or "I am not going to diagnose you because there is nothing we can do to help you" I would be able to find a clinician willing to give me any treatments I desire.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

It is Autism Acceptance Month

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


Shahunshah
Veteran
Veteran

Joined: 6 May 2016
Gender: Male
Posts: 2,225
Location: NZ

22 Oct 2016, 4:06 am

ASPartOfMe wrote:
If it is not autism specific treatments at best it is partially useful and often harmful. ABA is not readily available for older adults diagnosed with with autism. CBT is. But if you are not diagnosed because you are believed not to be really autistic there are no treatments likely for you. If I were to receive payment for every time I have read about adults seeking autism diagnosis only be to told "you do not need a label" or "I am not going to diagnose you because there is nothing we can do to help you" I would be able to find a clinician willing to give me any treatments I desire.
I did CBT last year and the thing is it is a clear cut example of a therapy that benefits people with High Functioning Autism over those who are more severely autistic. Basically their is little way CBT is going to help if you can't sit in a room and communicate. Their is also a reason why ABA is not available for High Functioning Autistic people. It goes over allot of basics that High Functioning Autistic people would have mastered.

Well a diagnosis for many autistic adults may be something of a liability. It may not help you get employed if people see you as someone with a disability.



Shahunshah
Veteran
Veteran

Joined: 6 May 2016
Gender: Male
Posts: 2,225
Location: NZ

23 Oct 2016, 1:58 am

Just asking out of interest but ASPartOfMe but what do you think from yours or others experience of the autism therapies being offered to adults?



ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 66
Gender: Male
Posts: 34,480
Location: Long Island, New York

23 Oct 2016, 6:52 pm

The only therapies that were available to me were support groups and for me they were helpful but for many others on the spectrum going out and meeting with group of people they have never met is traumatic.

From what I read here help for older adults is most often non existant. If they do exist they exist they are sometimes helpful for co morbids but not Autism as a whole, or they are counterproductive as they are geared for NT's.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

It is Autism Acceptance Month

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


Shahunshah
Veteran
Veteran

Joined: 6 May 2016
Gender: Male
Posts: 2,225
Location: NZ

24 Oct 2016, 4:10 am

ASPartOfMe wrote:
The only therapies that were available to me were support groups and for me they were helpful but for many others on the spectrum going out and meeting with group of people they have never met is traumatic.

From what I read here help for older adults is most often non existant. If they do exist they exist they are sometimes helpful for co morbids but not Autism as a whole, or they are counterproductive as they are geared for NT's.
I can see why that would be the case and I am by no means saying that the amount of therapies provided for people on the spectrum. I personally know a score of autistic people who are too afraid to meet face to face with people. Would you say their is much in the way of treatment available for them?



ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 66
Gender: Male
Posts: 34,480
Location: Long Island, New York

24 Oct 2016, 11:54 am

CBT and hypnosis?


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

It is Autism Acceptance Month

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


Shahunshah
Veteran
Veteran

Joined: 6 May 2016
Gender: Male
Posts: 2,225
Location: NZ

25 Oct 2016, 8:23 pm

ASPartOfMe wrote:
CBT and hypnosis?
Not sure about CBT what about the other one.



ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 66
Gender: Male
Posts: 34,480
Location: Long Island, New York

26 Oct 2016, 2:28 am

Turning autism upside down: When symptoms are strengths

Quote:
A novel approach to treating children diagnosed with autism spectrum disorder could help them navigate their world by teaching them to turn their symptoms into strengths. A researcher has developed a treatment method that teaches affected children how to control their psychophysiology and behavior using computerized biofeedback and clinical hypnosis.


I am not endorsing these, that is why I put a question mark.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

It is Autism Acceptance Month

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


vermontsavant
Veteran
Veteran

Joined: 7 Dec 2010
Gender: Male
Posts: 6,110
Location: Left WP forever

26 Oct 2016, 5:26 am

what is CBT


_________________
Forever gone
Sorry I ever joined


ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 66
Gender: Male
Posts: 34,480
Location: Long Island, New York

26 Oct 2016, 12:34 pm

vermontsavant wrote:
what is CBT

Cognitive Behavioral Therapy


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

It is Autism Acceptance Month

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


looniverse
Sea Gull
Sea Gull

Joined: 19 Oct 2015
Age: 45
Posts: 233
Location: Saint Paul

26 Oct 2016, 12:37 pm

weak



Shahunshah
Veteran
Veteran

Joined: 6 May 2016
Gender: Male
Posts: 2,225
Location: NZ

26 Oct 2016, 7:08 pm

looniverse wrote:
weak
Why?



mistersprinkles
Pileated woodpecker
Pileated woodpecker

User avatar

Joined: 11 Feb 2015
Posts: 182
Location: Toronto Canada

27 Oct 2016, 9:50 pm

As far as dropping a cure from their mission statement, I for one do not want to be cured. I can understand how severely autistic people might want to be, but I do not.

I have aspergers, and I am a functional (semi-functional, really) person. Sure, I get hired and fired faster and more frequently than Ubisoft puts out a half-finished game, and I have some problems understanding people, and I have a bit of face blindness, but there are so many things my autism gives me that I can only partially quantify with words that I would be sad to lose.

I can sometimes just read people. Not everybody, but some people. I can tell what they're thinking about. I am very good at picking out inconsistencies visually. I went looking for praying mantises with an entimologist once in some tall grass. I found a few dozen, he found zero. We were like ten feet apart.

I have perfect pitch. I can pick up a new musical instrument and be competent at it inside a month or two. I remember all my dreams in their entirety, and lots of other great things that I attribute to my autism.

I have seen autistic kids- mildly autistic I mean, do absolutely amazing things. My neighbor when I lived up north had an autistic six year old. The things this kid made with lego (this is before you could design lego things on PC) were MINDBLOWING. They were better than any licensed lego set I had ever seen. He just saw them in his head and built them. He could pick up a video game, play online, and be eviscerating everybody he came up against in minutes. I watched him play Homeworld once for an afternoon and people would tell him how amazing he was at it in chat and he'd say "I'm six" and they'd think he was joking. My friend's son, also six, is autistic. His understanding of 3 dimensional space is better than most adults. He builds incredible things. He can solve any puzzle in minutes. Amazing stuff.

I saw a video once, I'm so sad I don't remember this lady's name, she's a quantum physicist who has come up with EXTREMELY novel ideas that have blown the minds of her peers who say they would have never thought in those terms and she is considerably on the ASD spectrum to the point of having irregular speech and facial expressions. But she's a genius. She says society NEEDS people like us and doesn't realize it- because we think outside the box. We know we do that because we can't for the life of us know where the box IS but that's besides the point. Any autism where the person is able to be functional and is not crippled and isolated by their autism can be as much a gift as a burden if that person focuses and applies themselves- which again is hard for us... but I'm just saying.