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cat303
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30 Jan 2021, 10:45 am

Thanks to admin for letting me post this.

Hi lovely people of Wrong Planet!
I'm currently researching autism at university and am looking for participants for a survey. The project has full ethical clearance, all data is entirely anonymous and is protected and participation is entirely voluntary. Even if you begin the survey and don't want to answer some of the questions, just skip them (apart from a few at the start) or leave the survey completely.

It can take upto 40 mins, although it hasn't really taken anyone this long that I know of and is made up of other questionnaires, inc. the AQ and the reading the mind in the eyes task. I've already had and read some interesting conversations on here about screening measures but for the time being this is what I have to work with!

If you are 18 or over and have an official (NHS or private) diagnosis (no offence intended to self-diagnosed people, in my next project you'll be the stars!) please help this recently diagnosed fellow autistic person out.

I really do appreciate that 40 minutes is a big ask but you'll be contributing to important scientific research and have my eternal gratitude!

Click here for more info and to take the survey -https://kentpsych.eu.qualtrics.com/jfe/form/SV_e5TIIt9ODhMsQi9

Thanks :heart:



Mountain Goat
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30 Jan 2021, 10:49 am

It is a shame that I can't take part. I am on a waiting list to see if I am on the spectrum or not.


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magz
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30 Jan 2021, 11:08 am

How official the diagnosis needs to be?
I stopped at an informal opinion from a qualified psychologist, supported by agreement from child psychiatrist who diagnosed my daughter. No paper with a stamp, though.


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Dear_one
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30 Jan 2021, 11:33 am

magz wrote:
How official the diagnosis needs to be?
I stopped at an informal opinion from a qualified psychologist, supported by agreement from child psychiatrist who diagnosed my daughter. No paper with a stamp, though.


I have the same question. When I read a list of AS symptoms in '05, my life and family suddenly made sense. Medical professionals all concur, so none asked for verification testing.



cat303
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30 Jan 2021, 12:02 pm

Hi, unfortunately for this project there does need to be a 'piece of paper' or 'stamp' of some kind because I need to know when the diagnosis happened. It's not ideal and it's nothing against the self-diagnosed or those waiting, I know what a pain it can be getting the official seal of approval, esp. in adulthood. That's part of the reason the diagnosis info is so important.

Thanks for your interest and sorry you can participate in this survey but I promise my next proposal that was presented on Thursday is all about those autistic people that don't have diagnoses.



Dear_one
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30 Jan 2021, 12:10 pm

^^ It looks as if you'll have data for another study, on the difference between Aspies who can jump all the hoops and those who can't or won't. Personally, I won't even go to my local hospital for a broken bone now.



madbutnotmad
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30 Jan 2021, 1:00 pm

Hello
I have done your survey. :-)
I wish you well with your research!



Mountain Goat
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30 Jan 2021, 1:33 pm

cat303 wrote:
Hi, unfortunately for this project there does need to be a 'piece of paper' or 'stamp' of some kind because I need to know when the diagnosis happened. It's not ideal and it's nothing against the self-diagnosed or those waiting, I know what a pain it can be getting the official seal of approval, esp. in adulthood. That's part of the reason the diagnosis info is so important.

Thanks for your interest and sorry you can participate in this survey but I promise my next proposal that was presented on Thursday is all about those autistic people that don't have diagnoses.


No worries. I would imagine that I do not have too long to wait by now.


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Double Retired
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30 Jan 2021, 2:39 pm

Took the Survey.

I hope you'll post at least a summary of your findings.

Good luck!


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Velorum
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30 Jan 2021, 4:36 pm

Completed

The pictures of eyes section was really difficult


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diagnosedafter50
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30 Jan 2021, 5:41 pm

Did it.
Officially diagnosed fit criteria for Asperger Syndrome



madbutnotmad
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30 Jan 2021, 5:52 pm

Velorum wrote:
Completed

The pictures of eyes section was really difficult


Hey Velorum
yere, i agree. Some of them simply didn't make any sense.
I got some I think, the eyes of sexy woman who look flirtatious.

Although long time since woman have given me that look.
Still know what that look means... lol...

found the rest very challenging and ambiguous... but that is a part of being ASD I guess.



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30 Jan 2021, 7:50 pm

I did the survey. The eye test gave me the creeps.


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cat303
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31 Jan 2021, 7:02 am

Thanks to all who have done the survey so far! I didn't think the eyes task was so freaky so sorry about that. It's one of those tests that really splits autistic people with some able to do it really well and others not. I find the remembering numbers one the hardest, I forget them as soon as I've seen them.

And I will definitely post when I have the results, I promised a summary for admin for letting me post it and I'll be happy to let you all know how much your assistance has helped!



autisticelders
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31 Jan 2021, 7:04 am

the eye images are of people who are pretending or acting the emotions described, and not really people experiencing those emotions. The idea that pretend facial expressions are aptly expressive of a person having the real emotion has been debunked, as has this "seeing emotions in the eyes" or even whether people make eye contact has also been. Much of these things are variable in different societies and are not reliable indicators of understanding of emotions through physical expression unless societal conditioning is also taken into account. Too many variables in this so called "test" which have not been accounted for. https://speakingofautismcom.wordpress.c ... ut-autism/
something to think about when designing tests. You might not be testing what you "think" you are testing



cat303
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31 Jan 2021, 7:14 am

autisticelders wrote:
the eye images are of people who are pretending or acting the emotions described, and not really people experiencing those emotions. The idea that pretend facial expressions are aptly expressive of a person having the real emotion has been debunked, as has this "seeing emotions in the eyes" or even whether people make eye contact has also been. Much of these things are variable in different societies and are not reliable indicators of understanding of emotions through physical expression unless societal conditioning is also taken into account. Too many variables in this so called "test" which have not been accounted for. https://speakingofautismcom.wordpress.c ... ut-autism/
something to think about when designing tests. You might not be testing what you "think" you are testing


Very interesting and to an extent I agree (and I'm into the double empathy stuff, Dr Milton works at my uni so useful for interesting seminars etc...). Without going into too much detail I'm not using the eyes task to test for empathy or emotion (all will be revealed ;) ) but we can't ignore the evidence that autistic people usually perform worse than NTs. Hopefully if I get my funding for my next project I can start to address some of the issues underlying a lot of autism research.