I wish so hard that I was NT

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Joe90
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27 Aug 2021, 5:52 pm

I wish I never had Asperger's syndrome. It sometimes makes me panic, like I'm trapped. I feel like I'm born with the wrong brain, and that I'm NT underneath which is why I seem to be the person on WP who gets the most angriest about being on the spectrum.

It's no good saying "you are what you are so just accept it" because try saying the same thing to a person who feels they were born in the wrong body (a male in a female body or vice versa).
But I can't just up and get myself undiagnosed because sadly there's too much evidence that I am on the spectrum even though I lack a lot of the classic symptoms. I mean, what allistic could possibly be as lonely and socially clueless as I was when I was a teenager? In fact I think I was more lonely and socially clueless than the average teen with Asperger's syndrome. Well, I don't know if "clueless" is the right word but I was dreadful at making and keeping friends at high school. Making and keeping friends was a piece of cake when I was little - in fact I think I was LESS socially awkward as a child than the average child with Asperger's syndrome.

OK I'm not even feeling depressed but something I saw on Facebook has triggered this hatred of my brain thing. Venting it here does actually help, so please don't criticise me for doing so. This is the haven.


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27 Aug 2021, 8:12 pm

:heart:


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Joe90
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29 Aug 2021, 6:12 am

skibum wrote:
:heart:


Thank you for caring. :heart:


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29 Aug 2021, 7:07 am

I care, too.

But it is good to have perspective.

Having Asperger’s only is a heck of a lot better than having many conditions.

It’s not a catastrophe to have Asperger’s. It’s not something to be ashamed of.

I’m sorry you’re feeling bad.



Joe90
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30 Aug 2021, 2:19 pm

There's not much information on the internet for adult people who can't accept their diagnosis, only for parents of recently diagnosed children. I'd like to know if there are others who feel the same way I do, who were diagnosed in childhood.

Also...I don't want this thread to die... *sheepish expression*


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30 Aug 2021, 2:47 pm

It's unfortunate that there really aren't too much services for adults with Asperger's-type autism. Many are left to fend for themselves.

I feel there are quite a few people who don't like that diagnosis. And some are probably ashamed. There's nothing "wrong" with being ashamed. But I just don't believe one should be ashamed of that diagnosis (or any diagnosis, really). All people are good at some things, and horrible at others.

Keep the thread alive. If you're irritated by your diagnosis, do post.

I've been "some sort of disorder" since I was very young. I'm probably too used to it.



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31 Aug 2021, 4:48 am

What sort of Facebook post triggered this self-loathing?

You don't have to be descriptive. If it is what I think it is, I can sympathise.

It's partly why I cut myself off that site. Without it, I feel more wholesome in myself, as the overload of information, as well as polarised opinions (often spiteful and toxic in nature on both sides), would wreak havoc on my mental health.

Sorry to read you're feeling like this. It is indeed called The Haven for a reason.


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Joe90
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31 Aug 2021, 5:10 pm

Quitting Facebook would be a big loss for me. It has its good points as well as bad, and I belong to a few Facebook groups that I wouldn't like to leave.

Nobody's nasty to me on Facebook or anything, I just keep comparing myself to my cousin and I feel resentful because I have Asperger's and she doesn't but she should, because her mum might be on the spectrum and most parents on the spectrum pass their autism down to the children (there's enough proof of that here on this site). But although my cousin is socially awkward in some ways (like not being good at initiating conversation, often not joining in a group discussion, not being up with current trends, and being quite naive), she still seems to have more friends than I do so she must be NT if she has those socially awkward traits but can still make friends. I don't have those socially awkward traits, in fact I've come a long way and I've learnt to be almost as socially skilled as an NT I think, but I still can't seem to make friends with my NT peers and I get frustrated.
I just feel that autism is a very isolating thing to have, because no matter how well you can relate to people, how sociable you are, how much empathy you have, how many other essential skills you have like eye contact, how well you can pass off as NT, etc, etc, there's still a tiny piece missing that nobody can put their finger on but it's there, hindering your chances of making friends. It's a bit like having all the correct cables plugged into the correct slots in a fully functioning computer but one of the tiny little wires in one of the cables has snapped. Do you see what I mean?


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31 Aug 2021, 6:02 pm

^ Do read your post again.
But pretend that someone else posted this -- also pretend or at least read it through a lens as someone who do not relate or sympathize.

This is why I thought you're so attached to the ASD label.


It is one thing to be attached to the idea of wanting to be NT or at least being allistic.

But in the process you highlighted AS just as much, if not more.



I would never tell you to stop ranting or be upset about it.
That would just make the whole thing worse.


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Joe90
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31 Aug 2021, 6:15 pm

Edna3362 wrote:
^ Do read your post again.
But pretend that someone else posted this -- also pretend or at least read it through a lens as someone who do not relate or sympathize.

This is why I thought you're so attached to the ASD label.


It is one thing to be attached to the idea of wanting to be NT or at least being allistic.

But in the process you highlighted AS just as much, if not more.



I would never tell you to stop ranting or be upset about it.
That would just make the whole thing worse.


I still don't understand what you mean when you say I'm so attached to AS. :scratch:


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31 Aug 2021, 6:35 pm

Joe90 wrote:
Edna3362 wrote:
^ Do read your post again.
But pretend that someone else posted this -- also pretend or at least read it through a lens as someone who do not relate or sympathize.

This is why I thought you're so attached to the ASD label.


It is one thing to be attached to the idea of wanting to be NT or at least being allistic.

But in the process you highlighted AS just as much, if not more.



I would never tell you to stop ranting or be upset about it.
That would just make the whole thing worse.


I still don't understand what you mean when you say I'm so attached to AS. :scratch:

Hmm...

You're very worried about it.
Even after minimizing it. Even after making it seem as it is as less relevant in your life possible.

But the narrative says otherwise.
Your despair is revolved around it. It is the source of whatever it is riling you. It's one of your triggers, no less.


That is the point of attachment -- it is not merely about endearing, yearning or a desiring it.
But the whole act of emphasizing something whether or not it is relevant at large, it's about being too revolved around the idea of it.


If you're not attached to the label...
Why are you so upset about it despite claiming to pass as NT?
Or even let it define you too much, official diagnosis or not?


If you're not attached to the label...
The label won't stick. It won't be the biggest thing in your life, it won't be your worst of fears or worry even if it's perpetually there at all.
And anyone declaring the label (or simply describing it) won't turn your head and feel as if it's pointing at you.
Simple as that.


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Joe90
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01 Sep 2021, 4:46 am

Quote:
If you're not attached to the label...
The label won't stick. It won't be the biggest thing in your life, it won't be your worst of fears or worry even if it's perpetually there at all.
And anyone declaring the label (or simply describing it) won't turn your head and feel as if it's pointing at you.
Simple as that.


You have a good point there. Maybe I should focus on my NT tendencies/traits, and see myself as an individual instead of a diagnosis.

It'd be better though if I was like 90% of other females on the spectrum; not getting diagnosed in childhood, because me being diagnosed in childhood meant that it was beyond my control who knows about it and who doesn't. As soon as I was diagnosed, word got around the whole family and family friends, and I feel that it's what they see me as: the diagnosis. Not so much my close family, because they do see me for who I am and not the diagnosis. But other relatives and family friends still remember that I have AS and I just know that if someone brings AS up in any conversation they'll say ''oh Joe90 has that'', and then that means another person/people knows beyond my control (if the person/people know me as an adult and not as a child so didn't know about my diagnosis before). The fewer people that know I have it, the better I can enjoy being me.


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Edna3362
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01 Sep 2021, 5:24 am

Joe90 wrote:
Quote:
If you're not attached to the label...
The label won't stick. It won't be the biggest thing in your life, it won't be your worst of fears or worry even if it's perpetually there at all.
And anyone declaring the label (or simply describing it) won't turn your head and feel as if it's pointing at you.
Simple as that.


You have a good point there. Maybe I should focus on my NT tendencies/traits, and see myself as an individual instead of a diagnosis.

It'd be better though if I was like 90% of other females on the spectrum; not getting diagnosed in childhood, because me being diagnosed in childhood meant that it was beyond my control who knows about it and who doesn't. As soon as I was diagnosed, word got around the whole family and family friends, and I feel that it's what they see me as: the diagnosis. Not so much my close family, because they do see me for who I am and not the diagnosis. But other relatives and family friends still remember that I have AS and I just know that if someone brings AS up in any conversation they'll say ''oh Joe90 has that'', and then that means another person/people knows beyond my control (if the person/people know me as an adult and not as a child so didn't know about my diagnosis before). The fewer people that know I have it, the better I can enjoy being me.

I'm not one of those females either. Also been in the same chatter of networks that spread words rather quickly.
And my end goal's the same -- no one needing to know it.

But for very different reasons and for very different circumstances.
I just didn't chose the self image via masking or becoming more allistic -- I want so much more than that.

Even as a child, I'm always wary about spreading and controlling information around me. I ended up with a different set of social awareness instead.
So I did what I could to anyone who knew. It's not just about AS, but the idea of refusing helplessness and lack of consent.


As a child I fought hard for it -- violently even.
As a teenager I already knew what to do with it -- if the label is relevant or not.
Now that I'm an adult...

... As an adult, surely you can voice others -- namely people who knew -- to respect your preference of non-disclosure.

Hopefully the people who mattered to you and the people who cared to know about you will realize this, yes?
Also knowing you more than the diagnosis -- if people truly care to know and is truly willing understand you.

Come on... AS can't tell if I like chocolate or not. :twisted:
And it's not like liking them equals to hoarding it or reciting random facts about chocolate -- that's not how I express it. AS can't tell that's how I express it.


And also as an adult; after 20+ years, some people will forget -- it's usually the people who don't matter in your life, because at the grand scheme of things they don't care about that unless they can't get over themselves.

Those who likely wouldn't remember your name, your face, or what you did as a 7-14 year old, let alone the diagnosis.


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Joe90
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02 Sep 2021, 10:14 am

Some people do still remember though. An old neighbour that used to live next door to us when I was a child were told of course, and they moved to the other side of town when I was about 12 and we didn't hear from them or see them, until I was 23 when I got a job at the same place where she worked. Then the TV sensation, Susan Boyle, was diagnosed with Asperger's and people were discussing her at work (you know, just casual celebrity gossip). And the woman that used to be my neighbour came up to me and started comparing me to Susan Boyle and said the word "Asperger's", like she remembered all this time that I
had Asperger's. I don't work there any more but now my cousin works there and her boyfriend, and this woman is quite a chatterbox so no doubt she's probably mentioned me having Asperger's to them. I didn't want my cousin's boyfriend knowing I have it, because I admire him and I want him to think I'm 'normal'. I don't want to be defined by my stupid label that I didn't even ask to get. I hate reading all these threads about girls not getting diagnosed or people younger than me just newly diagnosed or being evaluated for a diagnosis in adulthood. LIKE HOW THE f**k DID THEY GO ALL THROUGH CHILDHOOD IN THE 2000S WITHOUT THEIR AUTISM BEING RECOGNISED AND DIAGNOSED???
Really, they don't know how lucky they are.


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02 Sep 2021, 12:35 pm

Hmm, I don't know.

Anyone comparing me to anyone would be kinda make me feel awkward. Related to media and AS more especially. :o
At worst, I'd just scoff it off -- identifying 'myself' in any media representation is something I do not relate well.

While I understand the worry about any possible misperception of you because of the label, or the possibility of rumors affecting people's interactions and prospects...
Do you know how to dispell it?

Or tell that it is deem irrelevant -- especially if the comparison is from your teenage years old self, as opposed to the present.
Not to mention nick picking stereotypical traits from, say, awkwardness, apparent nerdiness and anxiety disorders.


As for the timing of diagnosis... I'm not sure...
Why do you think that getting a later diagnosis seems better?
Other than it meant being 'not actually severe enough to fall through cracks'.


I got noticed in 2000s out of sheer luck. By my Sped teacher. She was the only professional who was independently observing schools in the city back then.
Let alone got diagnosed right after. It could've been sooner if it weren't for financial issues.

If I had a wish related to being diagnosed earlier or later...
Is that I wished my parents were more understanding much sooner -- than a time when they wouldn't considered the fact that I might be ND.
I don't care if I got no services available or even a label then -- I wanted a wiser parent.

But to me now, it is merely just a wish -- with past tense. I cannot undo time.
So I just try to undo whatever unintentional damage they or anyone did because of that ignorance.

Had I got noticed that I'm not an NT much later... I don't know. :| I won't be one of those females who are relieved because of late diagnosis. I imagine myself likely worse than better. Either deeply troubled or dead before that realization.

Kinda why I also don't relate to wishing to be deemed as 'less severe'.
Because, well.. 'Autism severity' isn't something relevant to me.

Any 'mildly autistic' could be 'severely -- which ever severe trait or comorbidity; dyspraxic, alexithymic, or even ADHD or someone with more life disrupting anxiety...' would likely be noticed first than a 'more autistic' person without any of those.
I already come to terms that I'm very much the latter -- and maybe even proud of that fact.


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02 Sep 2021, 12:52 pm

Joe90 wrote:
Some people do still remember though. An old neighbour that used to live next door to us when I was a child were told of course, and they moved to the other side of town when I was about 12 and we didn't hear from them or see them, until I was 23 when I got a job at the same place where she worked. Then the TV sensation, Susan Boyle, was diagnosed with Asperger's and people were discussing her at work (you know, just casual celebrity gossip). And the woman that used to be my neighbour came up to me and started comparing me to Susan Boyle and said the word "Asperger's", like she remembered all this time that I
had Asperger's. I don't work there any more but now my cousin works there and her boyfriend, and this woman is quite a chatterbox so no doubt she's probably mentioned me having Asperger's to them. I didn't want my cousin's boyfriend knowing I have it, because I admire him and I want him to think I'm 'normal'. I don't want to be defined by my stupid label that I didn't even ask to get. I hate reading all these threads about girls not getting diagnosed or people younger than me just newly diagnosed or being evaluated for a diagnosis in adulthood. LIKE HOW THE f**k DID THEY GO ALL THROUGH CHILDHOOD IN THE 2000S WITHOUT THEIR AUTISM BEING RECOGNISED AND DIAGNOSED???
Really, they don't know how lucky they are.


Because the system lets kids fall through the cracks.

That said, even without the label that person's life is going to be impacted by their differences whether or not a label is assigned to them. They'll also be impacted by the lack of support since the struggles will also exist whether or not a label is assigned to them.

One might escape the correct label, but they'll still be labelled a social reject, ret*d and all other sorts of slurs that people direct towards weirdos who can't assimilate.

You seem to fixate a lot on how being labelled impacted you and this sometimes seems to lead to missing how the symptoms would have impacted you regardless of whether or not the label was applied. Personally I wish I had the label applied earlier because at least maybe people might have gave a s**t and helped me during my developmental years instead of just trying to make me less broken as an adult.


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