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CarlM
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27 Mar 2022, 8:18 am

Submit your public comments to the Interagency Autism Coordinating Committee by April 1st



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What would it look like if federal autism research funding was spent researching subjects autistic people care about? Autism researchers could direct more funding towards how to make work or school more accessible for autistic people, learning why so many of us struggle with sleep, or any number of other subjects that impact our everyday lives. Aligning research funding with our community’s needs could make a major difference in autistic people’s lives. Submit a comment to the Interagency Autism Coordinating Committee (IACC) by April 1st telling them what you want studied!


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carlos55
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27 Mar 2022, 3:19 pm

Ideally Autism research funding should be concentrating on identifying biological treatments to make our lives better.

Anything away from biology / genetics & drug research is a waste of time, a billion words has been recorded on experiences of autistic people including from many on this site.

Too much box ticking & psychobabble surveys by psychiatrists & psychologists like Simon Baron Cohen has been a waste of time and done nothing for autistic people.


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Nades
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27 Mar 2022, 4:14 pm

carlos55 wrote:
Ideally Autism research funding should be concentrating on identifying biological treatments to make our lives better.

Anything away from biology / genetics & drug research is a waste of time, a billion words has been recorded on experiences of autistic people including from many on this site.

Too much box ticking & psychobabble surveys by psychiatrists & psychologists like Simon Baron Cohen has been a waste of time and done nothing for autistic people.


Agreed. The deficiencies autism spawns in someone's brain is far beyond what any psychiatric therapies can handle and every psychiatrist knows this. Anything non biology related is a complete waste of time. Nobody can "talk" autism out of people or make societal and environmental adjustments that somehow makes serious developmental disorders disappear.

It's like giving someone who's chronically depressed after his entire family died in a house fire a week ago blue clothes because recent research suggests blue clothes reduce incidences of depression by 5.8%.

A pointless token gesture.

I think there is no longer a need for any research into the psychology of autism. It's been done to death and any more is desperately scraping an already long clean barrel still trying to find that golden nugget that clearly doesn't exist.



carlos55
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28 Mar 2022, 2:56 pm

Nades wrote:
carlos55 wrote:
Ideally Autism research funding should be concentrating on identifying biological treatments to make our lives better.

Anything away from biology / genetics & drug research is a waste of time, a billion words has been recorded on experiences of autistic people including from many on this site.

Too much box ticking & psychobabble surveys by psychiatrists & psychologists like Simon Baron Cohen has been a waste of time and done nothing for autistic people.


Agreed. The deficiencies autism spawns in someone's brain is far beyond what any psychiatric therapies can handle and every psychiatrist knows this. Anything non biology related is a complete waste of time. Nobody can "talk" autism out of people or make societal and environmental adjustments that somehow makes serious developmental disorders disappear.

It's like giving someone who's chronically depressed after his entire family died in a house fire a week ago blue clothes because recent research suggests blue clothes reduce incidences of depression by 5.8%.

A pointless token gesture.

I think there is no longer a need for any research into the psychology of autism. It's been done to death and any more is desperately scraping an already long clean barrel still trying to find that golden nugget that clearly doesn't exist.


Totally Agree especially with this:

Quote:
I think there is no longer a need for any research into the psychology of autism. It's been done to death and any more is desperately scraping an already long clean barrel still trying to find that golden nugget that clearly doesn't exist.


Any researcher interested in the psychology of autism need only spend a couple of weeks on this site


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Nades
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31 Mar 2022, 3:07 am

I personally think autism is a simple disorder to understand. It's not a disorder where capable NT's leave a normal life but have an additional mental health problem. Autism is a disorder that goes to the foundations of someone's development and starts very young. It's actually a disorder with a lack of well...everything.



carlos55
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31 Mar 2022, 8:51 am

Nades wrote:
I personally think autism is a simple disorder to understand. It's not a disorder where capable NT's leave a normal life but have an additional mental health problem. Autism is a disorder that goes to the foundations of someone's development and starts very young. It's actually a disorder with a lack of well...everything.


Autism is just an umbrella term or label from the 1940’s for brain disorders seen in kids science didn’t and still doesn’t understand.

In the days of H Aspergers what was known about the brain could be put on a postage stamp so they didn’t have a clue what it was but they needed a label to identify it and distinguish it from other disorders so they came up with the name “autism” I believe related to aut or self.


In reality there’s multiple autisms each with their own separate life paths some autisms allow people to live as close to a normal life to be almost invisible, others will destroy the persons life completely and cut their lifespan in half.

The biggest crime is others talking about autism as one condition when it’s clearly not, it’s just that these conditions have not yet been properly separated and uniquely identified with their different underlying causes.


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"The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore all progress depends upon the unreasonable man."

- George Bernie Shaw