kraftiekortie wrote:
That's excellent news, Isabella.
Have they found a cause for the blindness?
His optic nerves shredded spontaneously. It was a critical emergency at the beginning because he was bleeding into his brain and there was an inflamed mass pressing on the broken nerves. They still don't know why. They thought a rare kind of tumour or neurodegenerative disease but that's definitively excluded now after almost 8 weeks of tests. He no longer needs the Neuro part of the Neuro-Ophthalmology care.
He and I think it must have something to do with scuba diving in Cairns. He felt like water went inside his head (?) when he went deep. He was fine after scuba diving and spent a few more days there with no problems before flying home. Then he woke up blind 2-3 days after being home. It seems like the water pressure combined with the air pressure of flying might have done something but the doctors say it's not related especially with the late onset. It could also be from sleep apnea of all things (??) because if his oxygen was cut off in his brain when sleeping it could explode the optic nerves. He has no history of sleep apnea and his wife would know if he did, but they're pushing him to go for testing anyway. They said it's about a 5% chance but worth investigating. The other 95% has no explanation and they really can't explain it other than saying he's extremely lucky that it's not a tumour.
In the meantime we are looking into visual therapy programs and OT to help him navigate independently.
Sorry for the long answer but I'm still trying to make sense of it all myself.
_________________
And in the end, the love you take is equal to the love you make.