I sent a letter to the newspaper in response to a grandmother of an autistic boy, after her comments on autism being an "insidious condition" offended me.
She wrote:
People with autism, not autistic people
Thank you for your article on Asperger syndrome ("Looking for answers," Oct. 7, Page A-1). In view of the alarming increase in the worldwide number of those who live with Asperger syndrome or classic autism, the more that is known about this insidious condition the better equipped we will be to deal with it.
There is one error in your reporter's otherwise excellent story. The article frequently referred to "autistic boys," "autistic high schoolers," "the autistic spectrum," etc. The accepted phrase is "with autism." It is used by parents, professionals and others who work with those who have any form of the syndrome. My grandson, Zev, is a young man with autism. Though the difference in terminology might not appear to be of much significance, it is important to those who are involved and I believe their wishes should be respected, particularly in the media.
****** ********
Modesto
I wrote:
Some of us like being autistic
I am 17 years old and I have Asperger's Syndrome. I am writing in response to "People with autism, not autistic people," (Oct. 12, Letters). Since I am autistic, I feel that I must speak out against her appalling treatment of something that most autistics don't feel is "insidious" or a "condition."
The writer said the correct identification of autistics is "with autism." This phrase is not the accepted term, and is actually hotly debated between the autistic treatment stance and the autistic community. "With autism" is mostly used by professionals and parents who do not truly understand autism. To those in the autistic community, denoting us as "with autism" makes it seem like we have some disease that should be treated — not something that is a part of who we are and enjoy being.
I may not speak for all those within the autistic community, but I feel that I have more voice than someone like the writer of the letter who dismissed autism as something "insidious."
STEVEN APPLEBAUM
Modesto
I'm very proud that that my letter was printed with almost no serious alterations from the original.