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ASS-P
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19 Apr 2019, 5:14 am

...Hi!! !! !! !! !! ! :D Coming from the NYC metroplex (Westchester) and being older, too...I feel connected :) :mrgreen:.


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Renal kidney failure, congestive heart failure, COPD. Can't really get up from a floor position unhelped anymore:-(.
One of the walking wounded ~ SMASHED DOWN by life and age, now prevented from even expressing myself! SOB.
" Oh, no! First you have to PROVE you deserve to go away to college! " ~ My mother, 1978 (the heyday of Andy Gibb and Player). I would still like to go.:-(
My life destroyed by Thorazine and Mellaril - and rape - and the Psychiatric/Industrial Complex. SOB:-(! !! !! !! !! !! !! !! !! !!


Mona Pereth
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19 Apr 2019, 9:44 am

ASS-P wrote:
...Hi!! ! ! ! ! ! ! ! ! ! :D Coming from the NYC metroplex (Westchester) and being older, too...I feel connected :) :mrgreen:.

Hi! When did you leave the NYC area? (Your profile says Santa Cruz, which I assume is where you live now? My boyfriend's Dad lives in Santa Cruz.)


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- My WP Friendship Board - Age 19 Onward post, November 2019.
- My WP Regional Meetup & Networking Thread Index post, August 2019.
- My WP "Getting to know each other" thread: Hello from NYC, begun October 2018.


ASPartOfMe
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19 Apr 2019, 10:29 am

Mona Pereth wrote:
Finished testing / diagnostic interviews / etc. last week. "Feedback" appointment is coming up for me on May 14. (The externs take 4+ weeks to look through everything, apparently.)

Glad to read things are moving along.


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Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person. - Sara Luterman


Mona Pereth
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15 May 2019, 8:38 am

I finally had the feedback appointment yesterday.

I was told that I definitely qualify for a diagnosis of ASD. In general there were no big surprises in what I was finally told.

But throughout the whole long testing/evaluation process, because I have not had psychotherapy in the past, I experienced a lot of what I think of as psychotherapy-world culture shock. Throughout the whole long testing/evaluation process, I encountered a lot of things that seemed utterly weird to me, but then my boyfriend, who has had a lot of past experience as a psychotherapy client, assured me that those things are perfectly normal in the psychotherapy world.

For example, my most recent experience of psychotherapy-world culture shock was how, at the feedback appointment, the therapist refused to tell me the diagnosis at the beginning of the appointment, but instead insisted on diving into the details of various tests before telling me her final conclusions. When I got home, my boyfriend told me that that's normal.

Anyhow, it's a huge relief to have the final confirmation of something that I've suspected for about ten years and that I've been almost certain of for nearly a year after reading a lot of websites and blogs about autism.


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- My WP Friendship Board - Age 19 Onward post, November 2019.
- My WP Regional Meetup & Networking Thread Index post, August 2019.
- My WP "Getting to know each other" thread: Hello from NYC, begun October 2018.


BTDT
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15 May 2019, 8:52 am

Congratulations on getting the ASD diagnosis after all these years!



ASPartOfMe
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15 May 2019, 9:06 am

Mona Pereth wrote:
I finally had the feedback appointment yesterday.

I was told that I definitely qualify for a diagnosis of ASD. In general there were no big surprises in what I was finally told.

But throughout the whole long testing/evaluation process, because I have not had psychotherapy in the past, I experienced a lot of what I think of as psychotherapy-world culture shock. Throughout the whole long testing/evaluation process, I encountered a lot of things that seemed utterly weird to me, but then my boyfriend, who has had a lot of past experience as a psychotherapy client, assured me that those things are perfectly normal in the psychotherapy world.

For example, my most recent experience of psychotherapy-world culture shock was how, at the feedback appointment, the therapist refused to tell me the diagnosis at the beginning of the appointment, but instead insisted on diving into the details of various tests before telling me her final conclusions. When I got home, my boyfriend told me that that's normal.

Anyhow, it's a huge relief to have the final confirmation of something that I've suspected for about ten years and that I've been almost certain of for nearly a year after reading a lot of websites and blogs about autism.

Congratulations.

My results day went like this
1. Some more questions about why I did and did not do certain things in my life.
2. Test results
3. She asked me for some reasons why I don’t think I am Autistic and then talked about coping mechanisms.
4. Said “I have no problem diagnosing you with Aspergers”. That a clinician with over 30 years experience said it in that way was and has been a great help in avoiding the feeling that the diagnoses was wrong and that I was a lazy bum who faked myself and the clinition out, a feeling that many members have expressed over the years.


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Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person. - Sara Luterman


CalicoMischief
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24 May 2019, 4:40 am

Mona Pereth wrote:
Hi all,

New here. I'm very glad that this forum exists. I'm glad to see an independent web forum -- much better than, say, a Facebook group. (Too many autism-related groups seem to rely too much on Facebook groups, alas.)

I have a longterm boyfriend who was diagnosed with what was then called Asperger's Syndrome back in 2001. Both of us feel that I'm at least as autistic as he is in some ways. I'm finally getting around to seeking a diagnosis.

We do programming work from home. Alas, this doesn't earn us anywhere near as much money as can be made by a programmer who works in a corporate office. But, for various reasons, we both feel that we are not capable of working in the latter setting.

I have a strong interest in the history and development of various subcultures such as the LGBT community. Based on my knowledge of this history, I have high hopes for the neurodiversity movement.


Congrats on your new diagnosis! I know how important the late diagnosis is for older adult aspies.



auntblabby
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31 May 2019, 3:04 am

as is often the case, i am late to the party if even i know it exists at any time at all. :oops: welcome to our club, Mona :flower: wish i was fast enough mentally and physically to live in an exciting place like NYC also.



Mona Pereth
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14 Jun 2019, 11:15 pm

Given my experiences in the LGBT community and various other subcultures, I have a lot of ideas on how to build the autistic community and make it much more useful, in many more ways, than it is now. See the separate thread Building the autistic community?, especially page 2 of that thread. (See also the threads Autistic-friendly workplaces and Autistic-friendly social skills vs. blending in with NT's.)


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- My WP Friendship Board - Age 19 Onward post, November 2019.
- My WP Regional Meetup & Networking Thread Index post, August 2019.
- My WP "Getting to know each other" thread: Hello from NYC, begun October 2018.


Mona Pereth
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19 Oct 2019, 5:38 pm

Next year I hope to create a website which will make it easier for people in the autistic community to organize local peer support groups, e.g. the website will provide chatrooms and announcement email lists.

I'm not ready to do this yet, but, in the meantime, I've decided to create a simple Wordpress.com blog, starting with a post about My life as one of the many belatedly-diagnosed autistic older people. Soon I'll be adding pages with lists of already-existing NYC-area resources, and then I'll add pages about my hopes for what the autistic community can eventually become.


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- My WP Friendship Board - Age 19 Onward post, November 2019.
- My WP Regional Meetup & Networking Thread Index post, August 2019.
- My WP "Getting to know each other" thread: Hello from NYC, begun October 2018.


Mona Pereth
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06 Nov 2019, 2:44 am

I've decided to change my signature. I've also decided to preserve my old signature here:

Mone Pereth wrote:
- Finally diagnosed with ASD in May 2019, after having suspected it for over ten years, and after having deeply explored the autism community for over one year while waiting for and obtaining diagnosis.
- In longterm relationship with boyfriend who was diagnosed with Asperger's Syndrome in 2001.
- Long history of participation in various oddball subcultures.
- My "Getting to know each other" thread: Hello from NYC.


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- My WP Friendship Board - Age 19 Onward post, November 2019.
- My WP Regional Meetup & Networking Thread Index post, August 2019.
- My WP "Getting to know each other" thread: Hello from NYC, begun October 2018.


SharonB
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06 Nov 2019, 6:58 am

A belated Welcome! And here you came across to me as a long-time member (relative to myself, yes). :)

I relate to you preserving your signature. A rite of passage if you will.

I look forward to reading more of your posts.