gluten free diet

Post Reply New Topic

I know what you mean... my son LOVES all things noodle-y He also loves yogurt, cheese, bread, etc. It would be really hard to cut out these foods unless we knew that they were causing a health issue. Apparently there are tests you can have done to determine if the foods are a problem.
[quote=]
My son is a very picky eater too what tests can be done ? I think food in his case might be an issue (too many coincidences) He has "high functioning autism" too.

If you suspect gluten to be a problem it is best to be tested. If you are a celiac than it is easier to stay on a nongluten diet because you know it is poison to you. I am diagnosed as an aspie and a celiac. Some sources suggest these two conditions are related to each other. For me, gluten causes major problems so I have to avoid it at all costs!

I have two kids with allergy to the four grains, not celiaki, and one of them is allergic to maize, and starches of maize also to complicate it further. They both handle gluten though, as long as its pure enough. Never seen a difference in their behaviour with or without gluten...

But with soya proteine they also are allergic to, it's just haul out the adrenaline injector and call for a ambulance, so also with cow milk proteine. Goat milk is no problem though, even with the proteines so similar they for some reason don't react on that..

A biopsy for gluten showed no sign of damage.

Gluten isn't poision but it has the effect of morphine on some our bodies

How do you test for gluten is it a blood test?

How do you test for gluten is it a blood test?

My son is diagnosed AS and he wasn't an early talker or a late talker. He was just a talker that could not be understood. Once he started speech therapy at the age of 4, his speech became very clear. I have never tried to change my son's diet because there has never been anything that seemed to affect him. He loves his milk, yogurt, cheese products and I could not imagine taking them away. If they were affecting him in some way that was very apparent then it would be different.

Leslie

No, what I've done at least here in sweden it's a (excuse the english I've been out fishing and using a computer lexicon to translate) intestinal biopsy with a sample taken from your intestines. The intestiny wall sample can tell if you have celiaki or not.

I've done this three times on my three kids, when determining celiaki or allergy, only one showed traces of celiakic disruptions in the stomach. And that was after a deliberately disruption diet whilst we tried if it was the four seeds or gluten. It was not gluten, He's simply allergic to all four grains. And maize.

It was though a bit scary to do this biopsy since my kids got half sedated and then put on a x-ray bed and a long tube put down their throat with a metal grip on the end designed to cut your intestiny wall... This may sound harsh but it's the only way to for sure determine gluten problems and celiaki, blood samples doesn't have the same accuracy (no accuracy).

The sample from the thin intestiny is then checked in a lab to check the amount / presence of villi intestinales, that detoriates in celiaki due to the gluten.

oh that is a bit scary I will check with his pedatrician I guess to see if there is another way thanks for the feedback

Since I've done this procedure 9 times and it can be a bit weird, but you have to sample the vilii.

We had to do this as we suspected celiaki first, but it turned out to be a plain allergy to the four seeds on one and with addition of maize on one. The gluten provocation was made at home with very rigorous control over a 6 month span. Intestinal biopsies made every second month.

But it turned out to be just a "good old" allergy (nothing surprises us nor the kids)

There is a simple blood test now, which is why so many new people are being newly diagnosed.

Also, I am not saying gluten is a poison for everyone, just for people diagnosed with celiacs. A completely nongluten diet is difficult and expensive so the motivation to keep on such a diet would be impeded until that person knew that they had no other real choice in order to maintain proper health. However, I can see how my post was confusing on that point. Sorry about that.

Anyway, here is a bit about my story.

I was only recently diagnosed at 36 (I am 37 now). My whole life was one health problem after another, many many doctor's visits, until near the end I was so fatigued and wrecked that I could hardly function in daily life. It was only after discovering websites that mentioned associations between AS and celiac's disease that I suspected this as being the culprit. Going nongluten has been like receiving a new body. I feel like I am a completely different person now. I lost 30 pounds in two and a half months. My energy increased 10x (literally). I wake up more refreshed now. My mental focus has totally changed for the better! The people in my life tell me I am a totally changed person, gentler, brighter, more enjoyable to be around. I can only wish that I found out about this condition earlier! Until last year, I was just dragging my tired self through life until I was diagnosed with celiacs and went gluten free. Now my life is so full all I can do is be grateful for each moment I have! I can't stress more that if you are AS and are under weight and can't gain weight or over weight and can't loose weight, get irritable really fast over small matters, get unexplained rashes, feel completely malnourished even when you eat healthful food, feel your stomach is your enemy, and/or are so fatigued you can't properly function, then please get tested!

what did you ask them to test the blood for? my son gets blood tests every 6 months for another condition maybe they can test at the same time...getting his blood is such a task

Click this url:Celiac.com's Celiac test accuracy and type

I KNEW i somewhere in my back had a reason for why we had biopsies instead of blood tests... Now I know why. (emailed my kids doctor and got the reply within 10 minutes, he loves the fact we can communicate by email instead of phone) The accuracy of the blood test is still not good enough to differ out allergy and celiaki. You have to take a biopsy sample to rule out celiaki... That's why we for 6 months added pure gluten to their food and made three intestinal biopsies, simply to rule out celiaki. And only could measure a "hint" on one of our kids.

Our doctor has a special interest in our kids, because they have the most weird allergy interactions so they are "lab rats" partly. My midst son is extremely allergic to cow milk proteine and soya proteine, but it was only this year a spot test showed sky high, he's 8 and has adrenaline since age 1 to shoot intravenously. Previously he have never showed a reaction for cow milk proteine except for anafylaxia almost instantly, like some people can't be near a peanut, now it showed, and it showed as hell with a almost 10cm wide swelling around the small scratch with the proteine sample drop. My son calmly asked for a dose of cortisone to prevent further swelling ;-(



But never rule out the possibility of celiaki. It's very common, and can as people wrote earlier be a real "poison" for your whole methabolism and make the most weird things to your body.

Also, be VERY cautious about people saying "Dinkel" is gluten free, please anybody translate, the swedish celiaki group has warned for years about people saying it's gluten free. it is NOT!

I'm not unexperienced with celiaki, the mother of my three kids is gluten intolerant.

Apparently there are blood and urine tests that can be done to determine if leaky gut exists, as a result of intolerance to gluten & casein... they don't digest properly, causing nutrients to leak out of the intestinal walls (or something like that). Here's an article that explains it much better than I am able to: Dietary Interventions for Autism

thanks for the link