looking for info on getting a private diagnosis *please*

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MrsMcThingy
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23 Jul 2006, 5:12 pm

hi everyone, im new here !

I am a ( Scottish ) mum to a loving 11 year old boy, nearly two years ago, I found info on Aspergers, something I had never heard of before.. I suddenly realised ( like so many other parents have ) that my son probably has Aspergers..

the problem is, we have always had trouble getting any help for him, and he's always needed it.. I've been through countless health visitors, edu psch's ( which we cant go back to - because after two years of assesments and even a staggered school entry - they 'removed' all traces of him from the official records !)

he is on the waiting list to be seen by the community autism team.. he has been on it for nearly two years waiting for his first appointment.. and as he starts high school this year, I'd like to speed things up for him, and get him extra support that he so badly needs to get on with his peers..(I've checked out the NAS PARIS info, and all I can find is NHS refferals etc )

I'm looking for info on getting a private diagnosis done in Scotland.. how do you do it?.. what am i looking for?


Any help will be much appreciated !



juliekitty
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23 Jul 2006, 9:43 pm

No idea, MrsMcThingy, but congratulations on the choice of name.



ster
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24 Jul 2006, 6:13 am

love the name!! !! !! !! !! !! !!
i'm from the US, though...not a clue where you should begin :(



Rhisiart_Steffan
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24 Jul 2006, 1:07 pm

I am afaid you have to go though the NHS, there is no other way I'm afaid.


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nomoreality
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24 Jul 2006, 1:51 pm

The way I see it you've had a pretty raw deal this far. You've waited 2 years (we've waited nearly 1 and a half since being referred to the community team who are not that specialised anyway). I think you need to do your homework to make sure that you go to Scotland's biggest expert in this area. If you scream loud enough you should be able to get a referral from your paediatrician (talk to NAS Scotland to check who's the best in Scotland because once you go to someone you're unlikely to be allowed to get a second or more detailed opinion so you'd better get the best first time round). Insist on getting as detailed a diagnosis as possible (especially if you have to pay for it).

Please could the American mob tell us how detailed a diagnosis they get when they first go for diagnosis. I am haunted by reading American posts that say stuff like "they told me that the difference between his £$% and his £$% was 30 points" and I don't really know what they mean but it makes me think that I want this level of detail for my son too. Sometimes it feels like the Americans can just make a call and within hours be sitting in the lavish offices of some expert getting all the answers. I just get so jealous of them sometimes!!

Best of luck!



ster
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24 Jul 2006, 6:38 pm

included in our son's neuropsych were the actual scores of all the tests he took ( something like 12 or 13 tests in all ), and descriptions of his level of functioning as well as improvements needed. at the end was a diagnosis on each of the axis' and an outline of 30 specific points that would help son improve in his abilitiies.



nomoreality
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25 Jul 2006, 4:24 pm

Thank you so much! That's the kind of thing I want for my son. All we had was 35 minutes of me chatting to the doctor, who barely looked at my son and then he typed out a VERY ROUGH report and that, to me, is not a diagnosis.



ster
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25 Jul 2006, 10:13 pm

i'd keep fighting to get a proper dx....it might cost you, but your child's health and well-being are worth it.