so there's an aspie meeting organised by my university...

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JoeRose
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16 Oct 2012, 7:44 pm

and I'm really tentative about going. I've never actually met any "real" aspies before and I'm nervous about it. The main reason I'm nervous is because I'm pretty much self diagnosed and suspecting myself of aspergers. However I was nearly diagnosed early this year but I backed out in the final part of the process because I got scared about what the label could do to my life.
Do you think if I explained this to the group at the meeting they'd understand and accept me as a part of the group? Or do you think they'd shun me because I'm not a "real" aspie.

I really want to go though. It'd be amazing if I met some people who have been through exactly the same struggles as me and seeing how they fair with their life. Especially as they will be university students as well as me.



FishStickNick
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16 Oct 2012, 8:03 pm

JoeRose wrote:
and I'm really tentative about going. I've never actually met any "real" aspies before and I'm nervous about it. The main reason I'm nervous is because I'm pretty much self diagnosed and suspecting myself of aspergers. However I was nearly diagnosed early this year but I backed out in the final part of the process because I got scared about what the label could do to my life.
Do you think if I explained this to the group at the meeting they'd understand and accept me as a part of the group? Or do you think they'd shun me because I'm not a "real" aspie.

I really want to go though. It'd be amazing if I met some people who have been through exactly the same struggles as me and seeing how they fair with their life. Especially as they will be university students as well as me.

If it were me, I'd go and tell em about my personal experience.



btbnnyr
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16 Oct 2012, 8:05 pm

You should go.

Some people in my GRASP support group are self-diagnosed, and they are accepted by eberryone.



Sanctus
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16 Oct 2012, 9:18 pm

I know that I would definately go there. I'm sure they won't close you out just because you don't have a diagnosis.



AardvarkGoodSwimmer
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16 Oct 2012, 9:37 pm

I'm self-diagnosed, and I'm comfortable being self-diagnosed. I think it's each individual's personal decision whether to pursue something more formal and on what time frame.

More likely, your experience might be similar to my experiences with peace groups in 1990, where people were standoff-ish. Or, someone might buttonhole you snd just talk your ear off. And be kind. Maybe the person really needs to talk. And try not to be that person, unless you really need to.

And it's not going to be insta-friendship. In a way, it can't be. But you all can be decent colleagues with each other, and from that friendship may dance.



Callista
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16 Oct 2012, 10:38 pm

Go for it. Worst that can happen is you get bored or you find out it's not useful for you.

I've met lots of AS/autistic people in real life, and they're usually fine. Some are annoying or spoiled or immature; but I've met plenty of annoying NTs too, so I don't think AS has anything to do with that! You may find friends. I have.

You'll probably meet people you wouldn't guess are autistic because they seem so socially proficient, as well as people who surprise you by just being able to be out on their own without somebody there to help them. Sometimes it's a little awkward trying to communicate with people who are just as bad at it as you, or worse; but usually they're used to that and nobody really minds. You might have to work on your own hesitance to interact with people who are obviously disabled; but that's a good thing, and you really can't accidentally insult them nearly as easily as you might think. Once it stops being awkward, you kind of forget about whose disability is invisible and whose isn't, because you'll probably have a lot in common whether it is or not. I attend a disabilities group for disability-in-general, and that's my experience--having a lot in common even with the people whose disabilities are obvious and physical, as opposed to my own more subtle cognitive/neurological/mental-illness issues.

Groups can be really fun, or really boring, or even insulting, if an NT group leader insists on trying to turn you all into good little NT imitations or something. You won't know unless you try. If it doesn't work, you don't go back; simple as that.

Regarding your not having an official diagnosis, you might introduce yourself something like, "I have a lot of autistic traits, but I haven't been able to find a specialist yet." If you have some other diagnosis, like ADHD, mention that. If the average age in the group is twenty or older, you'll probably have at least some who were diagnosed as adults, or who were misdiagnosed with something else that was later corrected. Occasionally, if the group is run by a counseling department they will want to pre-screen you to make sure the subject matter in the group is something that you'd find useful. They might want you to have a diagnosis, in that case; but that gives you the perfect opportunity to ask for an evaluation, at least one that can tell whether you have enough autistic traits to find a group useful.

So try it, see if you like it; if you don't, you've lost an hour or two of time--not a huge risk, really.


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thewhitrbbit
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16 Oct 2012, 10:43 pm

They won't ask you to see your diagnosis.



Heidi80
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17 Oct 2012, 1:57 pm

When I went to my first group, I was super nervous, but the minute I walked into the room I somehow immediately knew I had come home. Weird but true.



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17 Oct 2012, 2:11 pm

I've been attending a Aspie group for a few years and it's been helpful. There's just some Aspie social stuff that only other Aspies seem to understand. It's nice to be able to talk about that sort of thing without being given worthless/thoughtless cliche advice or odd looks.

I also found that the different types of Aspies I've met in my group helped me understand the "spectrum" part of "autistic spectrum" better. Most of us are very different from one another in strengths, weaknesses, and personality.