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Were you aware before now that some people gather information from forums like this one so they can pretend to have ASD/Aspergers?
No 67%  67%  [ 44 ]
Yes 33%  33%  [ 22 ]
Total votes : 66

Adamantium
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21 Mar 2014, 6:46 pm

btbnnyr wrote:
Waterfalls wrote:
It scares me to think of too much measuring going on so easily, it's better sometimes to be able to not be known as autistic. I hope you're unusual in being able to do this so easily, Btnnyr!


Don't worry, only researchers with devices and designs do this measuring and analyzing, so there is not this stuff going on around people to out anyone as autistic if they don't want to it to be known.


What do you think of the IAN?

I am thinking of signing up with my fraternal twins (boy, dx AS, girl no DX but on an IEP and with some traits, esp social communication issues). Are you familiar with that program?



Marybird
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21 Mar 2014, 6:48 pm

This is confusing because a lot of autistic people are married and a lot of autistic people have good education and high paying jobs like Temple Grandin and others.



btbnnyr
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21 Mar 2014, 6:55 pm

Adamantium wrote:
btbnnyr wrote:
Waterfalls wrote:
It scares me to think of too much measuring going on so easily, it's better sometimes to be able to not be known as autistic. I hope you're unusual in being able to do this so easily, Btnnyr!


Don't worry, only researchers with devices and designs do this measuring and analyzing, so there is not this stuff going on around people to out anyone as autistic if they don't want to it to be known.


What do you think of the IAN?

I am thinking of signing up with my fraternal twins (boy, dx AS, girl no DX but on an IEP and with some traits, esp social communication issues). Are you familiar with that program?


I looked it up just now. It seems fine. It says on website that it is online questionnaires to collect information about diagnosis/treatments/services. If you are interested in participating even more in autism research, you could also see if nearby universities are conducting studies.


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Waterfalls
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21 Mar 2014, 7:06 pm

btbnnyr wrote:
Waterfalls wrote:
It scares me to think of too much measuring going on so easily, it's better sometimes to be able to not be known as autistic. I hope you're unusual in being able to do this so easily, Btnnyr!


Don't worry, only researchers with devices and designs do this measuring and analyzing, so there is not this stuff going on around people to out anyone as autistic if they don't want to it to be known.

There's a vulnerability I realize I have to other people. I worry about how to minimize my appeal as a target. And it just seems to me that in a public, crowded, situation, I want to appear like anyone else, it just seems safer.

I also think I could lose my job if it's too obvious. I think anyone paying attention notices some things, like flapping my hands and arms if I get upset or the way I talk, but they overlook as a bit weird and don't go further with labels. I'm scared, losing my job would obviously not be good, and people want "normal".



Adamantium
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21 Mar 2014, 7:07 pm

Marybird wrote:
This is confusing because a lot of autistic people are married and a lot of autistic people have good education and high paying jobs like Temple Grandin and others.


I don't think anyone is saying that people with those characteristics dont have autism, but there may be a group of people who have a very particular subtype of autism or are not autistic but have some issues which led to misdiagnoses for them. The research being discussed would help to clarify all this.

My intuition or guess is that this kind of research is likely to uncover many subgroups within autism with particular patterns of symptoms and that distinct etiologies are likely to result in this.



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21 Mar 2014, 7:09 pm

Marybird wrote:
This is confusing because a lot of autistic people are married and a lot of autistic people have good education and high paying jobs like Temple Grandin and others.


I'm with you. There must be something I'm not understanding, because btbnyrr has a job. Not sure how much she makes or if that's even relevant, but more the point she seems to excel at it and love it. This idea that if you have a job or are married, you can't have Autism is just bizarre. LIke you have to be a failure and therefore all Autistic people must give up because you CAN'T be successful if you are Autistic.

I must be misunderstanding. It seems to me to be like figuring out how a hamburger tastes from looking at a picture of it.



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21 Mar 2014, 7:16 pm

^^
She didn't say that at all. In the younger group , who did show a separate pattern of cognition than NTs, there were people who were very high functioning , were grad students, lived independently and worked. There was just one group of middle aged ASD ppl who were married and had high-paying jobs and they scored like the NTs on the measures of cognition. It could be due to adaptation over time since they're older OR could be due to misdiagnosis. She is unsure and has to do more research.



Last edited by daydreamer84 on 21 Mar 2014, 7:18 pm, edited 1 time in total.

btbnnyr
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21 Mar 2014, 7:18 pm

I didn't say that people who are married, have kids, and have jobs can't be autistic. I said that this group of people have not shown significant differences on most obvious measures in eggsperiments that have been done so far, but have shown differences in non-obvious measures and may show differences in future eggsperiments that are more sensitive to autistic brain/cognition/behavior and less affected by adaptation over time.

I don't know what me having a job or how much it pays and how much I like it has much to do with what I am talking about.


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Verdandi
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21 Mar 2014, 7:28 pm

I find the identification of autistic subgroups extremely fascinating.



wozeree
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21 Mar 2014, 7:29 pm

Well it's not just you, but the idea is pervasive on this forum.

However, you are using those benchmarks (is that the right word), for your testing criteria. You are sorting them by that criteria, not by whether they have special interests or sensory difficulties. Or is it just that you are taking a large sample and finding that among those that are married or have jobs some have non obvious difficulties?

What are some of the non obvious problems that they are having?

I'm very confused about why you are asking me why the fact that you have a job matters when you are talking about results of people who have jobs. I was just relating you to that group.



btbnnyr
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21 Mar 2014, 7:38 pm

The research is not about being married, having kids, or having jobs. I am not using these things as criteria for anything, or pre-sorting into groups based on these things. The only criteria for participation in these research projects is official diagnosis of an ASD and adulthood age. (Anyone from WP who wants to participate and lives in LA area, please PM me) The research eggsperiment is a computerized activity on which a group of autistic people show clear differences from NT group and another group of autistic people don't, and this group happens to be older and have good outcome. This is not unique finding, as other studies have found that autistic people with optimal outcome don't show differences from NTs on certain measures.

My having a job has nothing to do with what I am talking about. I was the first research subject in my study, before I became the researcher, and I was in the difference group, like some of the other people in that group who are closer to my age and have college degrees and jobs.


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wozeree
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21 Mar 2014, 7:44 pm

btbnnyr wrote:
The research is not about being married, having kids, or having jobs. I am not using these things as criteria for anything, or pre-sorting into groups based on these things. The only criteria for participation in these research projects is official diagnosis of an ASD and adulthood age. (Anyone from WP who wants to participate and lives in LA area, please PM me) The research eggsperiment is a computerized activity on which a group of autistic people show clear differences from NT group and another group of autistic people don't, and this group happens to be older and have good outcome. This is not unique finding, as other studies have found that autistic people with optimal outcome don't show differences from NTs on certain measures.

My having a job has nothing to do with what I am talking about. I was the first research subject in my study, before I became the researcher, and I was in the difference group, like some of the other people in that group who are closer to my age and have college degrees and jobs.


I see. You seem kind of annoyed with me. I was just connecting the fact that you have a job to what you are talking about which is Autistic people who have jobs. I'm not sure why you are annoyed. But I also know from experience that you just have a forthright non emotional way of speaking and I may just be interpreting that as annoyance. I hope that's the case. (I'm not asking you to hold my hand or anything, I know you don't like that. I'm just trying to understand our conversation.)



Adamantium
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21 Mar 2014, 7:50 pm

That makes sense.

It is curious that discussion of it is in a thread about people going to elaborate lengths to deceive diagnosticians and deliberately obtain a misdiagnosis.

I still tend to think that that has to be an extremely rare, fringe behavior like Munchausen's.

But it does make sense to me that people who can hold down a job are processing things differently than people who can't.

My boss was diagnosed with Aspergers and ADHD and she kept dropping hints and I was too oblivious to get them. She explained to me that when I am deeply mentally involved in my work I rock in my chair or raise my hands while rapidly rubbing my first and second fingers. There was a lot of other stuff. I suspect that whatever subtype I fit in is also one that she fits in.

I am certain it is a type of autism, but I won't be surprised if it gets testable as a specific subtype and gets a new name. Maybe "Aspergers syndrome?"

Just a little joke, there.



btbnnyr
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21 Mar 2014, 8:11 pm

There is an electric shock machine in lab.


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Waterfalls
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21 Mar 2014, 8:14 pm

Yes. The human brain is amazing.

People are often able to identify differences quickly in some of us married and employed people with ASD, but finding tests that pick up what the human mind can sort is apparently, if I understand correctly, quite difficult.



btbnnyr
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21 Mar 2014, 8:58 pm

Do you know why I am talking about my research in this thread? Because I have to talk about my research somewhere, because I have to activate the language functions of my brain to be able to write the technical and lay abstracts for another research project, and so far, I wrote the technical abstract, but now I have to write the lay abstract still, then the data-sharing plan, whatever that is, all this writing requires activating the language functions which are not easily activated, and also posting in this thread allows me to procrastinate some writing, so that is good, why is procrastination so enjoyable?


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