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ci
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06 Feb 2011, 2:03 pm

Yensid wrote:
I originally disliked the new system, but the more I think about it, the more I like it.

First, the name Asperger's Syndrome probably won't go away. It has entered into popular usage. Unfortunately, the popular usage conflicts with the medical usage. I see a lot of people who are self-labeled with AS who really don't meet the diagnostic requirements. That's not necessarily a bad thing, because there really is no good term for describing people who are NTs with strong autistic traits, and I think they can and do get a lot from interacting with people who really have AS. Furthermore, the dividing line between very high functioning Aspies and NTs with strong autistic traits is hazy at best.

Second, merging the various categories of autism is probably a good thing. One of the defining characteristics of AS is that you must not have been delayed in learning speech. This requirement seems to exist only to separate classical autism from AS, and doesn't seem to serve a useful purpose. I think that it is left over from the time when AS and classic autism were considered completely different things.


The differences between N.T and Aspie can only be made with brain imaging and not by means of behavioral traits simply because we all grow up in the so called N.T world. What some self-advocates do is to demand an aspie perspective or your more like the N.T. It can be sublime, peer pressure based and center on self-esteem of acceptance vs. non-acceptance. The world is a collective of diversity neither N.T or Aspie but a melting pot in mix of what you perceive as N.T and Aspie.


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ci
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06 Feb 2011, 2:22 pm

twitching77 wrote:
lol that song you linked, made reading your post this epic experience.
:lol:


Laugh Snort


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Ginro
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06 Feb 2011, 2:31 pm

@ azurecrayon

It sounds quite difficult for you now you explain all that. It also makes me glad that we have the NHS over here. I have to admit that one of the causes of me writing that piece was the fact that I had just read a number of online comments on websites poking fun at people with AS. and it all got me very down. Comments such as:


Quote:
Anonymous said... 1
http://i871.photobucket.com/albums/ab28 ... an0002.jpg

This picture just about sums up the entire article, and what people with "Asperger's Syndrome" are looking for... A label for their symptoms and an excuse upon which to blame their weaknesses. Not to mention you're "self-diagnosed", which does nothing to provide professional validation.

I'm not denying that these symptoms exist, but what I'm saying is that you're no different from everyone else who has varying neurological weaknesses.

And let's be honest right away, every person out there has a mild case of something within the DSM... I'm not talking about genuine neurological disorders, like clinical depression or schizophrenia, etc...

For me personally I've struggled with a bit of worry (and some anxiety) and over the years have practiced and become much better learning to let my stresses go. For someone else, maybe it's addiction, or phobias, or mild OCD, or narcissism, or histrionics, or a whole host of other relatively benign personality "disorders" that have been scoped out within the DSM.

Asperger's falls right into that category, and just like mild anxiety, it is a personality weakness that can be minimized through tons of practice and maybe some behavioral therapy. That's the beauty of the brain... things can be learned and unlearned, it's just that some processes are more embedded and take much more practice than others.


And there are plenty of others along those lines. And then there are semi-humorous articles which made me wonder if they might have a point:

Daily Cognition

Quote:
This rarely diagnosed but often claimed disorder is a mild form of Autism that comes with what seems to be a biological inability to show empathy for other human beings, as well as (and maybe stemming from) an inability to recognize nonverbal cues. They continually do weird, upsetting things because they don't know it's upsetting you. That part of their brain is broken.

People cringe when they hear this term because they know that a large number of the teenagers claiming Asperger's are, in fact, merely dicks.


This quote from:
Cracked dot com

I guess I should learn to keep away from stuff like that, as it doesn't really help, does it? (And looking at the second quote again I'd just like to add that I am not a teenager, lol.)



ci
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06 Feb 2011, 2:38 pm

I am not sure if the website was for humor reasons or insults. I think people with autism who have autism for real need the supports needed. Technically behaviors of autism can in part go away and then it's called a history of autism traits. This is resisted due to self-identity within the group for some sort of preservation. My belief is autism as a topic in context is seldom not absurd in the processes of deriving an absolute but counter productive toward the choices of individuals that really do have it for sure. The image of autism has little to do with a persons subjective personality but rather difficulty someone experiences for the most part


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Verdandi
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06 Feb 2011, 2:42 pm

That cracked dot com entry for Asperger's Syndrome should be antisocial personality disorder.

I also wish people would bother to understand what empathy is before making sweeping claims about it.



ci
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06 Feb 2011, 3:01 pm

It comes down to why is the label so important to people that just want to fit in to autism. The label is about helping people adapt. If after fitting in to the label there is no progress for adapting I see it as wasteful. I don't understand why ultimately people spend so much time absorbed in the identity of the label for social chit chat. Other times focusing on differences and by doing so other-times expelling the mainstream with what seems like generalized and at times rigid anti-societal philosophies. This preserves a group framework that was artificially constructed as a result of labeling.


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Ginro
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06 Feb 2011, 3:10 pm

Thanks Ci and Verdandi, although Ci I didn't undertsand what you meant when you said this:

Quote:
The image of autism has little to do with a persons subjective personality but rather difficulty someone experiences for the most part


Also though, to a certain extent labelling is helpful as things do need categorisation and definition. Otherwise it just becomes a case of:

"Oh he's got that thing"
"What thing?"
"You know, that thing where he does stuff"
"Yes but which one are you talking about?



ci
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06 Feb 2011, 3:14 pm

The image of autism is stereotypical vs. an individual with autism is an absolute construct of fact. This statement has to do with self-advocacy socio-philosophy in politics. Autism as a personality type I don't think is wise.

http://en.wikipedia.org/wiki/Empathy

Oversensitivity

A common source of confusion in analyzing the interactions between empathy and autism spectrum disorders (ASD) is that the apparent lack of empathy may mask emotional oversensitivity to the feelings of others. People with ASDs may suppress their emotional facility in order to avoid painful feedback. This is cited by Phoebe Caldwell, an author on ASD, who writes:
What is clear is that, while people on the spectrum may not respond easily to external gestures/sounds, they do respond most readily if the initiative they witness is already part of their repertoire. This points to the selective use of incoming information rather than absence of recognition. It would appear that people with autism are actually rather good at recognition and imitation if the action they perceive is one that has meaning and significance for their brains.

As regards the failure of empathetic response, it would appear that at least some people with autism are oversensitive to the feelings of others rather than immune to them, but cannot handle the painful feed-back that this initiates in the body, and have therefore learnt to suppress this facility.
An apparent lack of empathy may also mask an inability to express empathy to others, as opposed to difficulty feeling it, internally.[48]


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Ginro
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06 Feb 2011, 3:35 pm

I think I get it now. You are saying that the general public has a view of autism as one particular thing. Whereas in reality it shows itself in a variety of ways depending upon the person with it.

The empathy bit, I admit I am frightened by displays of emotion (I have never liked being emotional myself) but am not sure why and it's also difficult for me to know when people need sympathy. When my grandmother died my brothers and sisters were with my mother comforting her. It had to be explained to me that my Mum needed me too, although I couldn't understand why as she had my brothers and sisters around her. But I loved my Mum very much, she needed me, so I went and held her. Funny thing is, I have never had a problem displaying affection for my daughter. In fact I tended to go the other way and was always accused of being over-protective with her.

Thanks for explaining that for me.



ci
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06 Feb 2011, 3:43 pm

I can relate yes. Although my brain (mind) is avoiding autism self-explanations. I think the label was good for me to get what I needed. However I think awareness needs subjectivity and personalization. I don't think autism for inclusion awareness should entail explanation but present the subjective individual in understanding circumstances that detail truths of the subjective individual. The more stereotyping of maybe's results in alienation of human diversity in micro-causal interpersonal potentials in public relations.

Emotions (psychology) can be about an abstract math of probabilities, possibilities and unlikely results.


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06 Feb 2011, 3:56 pm

Ginro wrote:
Yensid said: I see a lot of people who are self-labeled with AS who really don't meet the diagnostic requirements.

Referring to the mockery that people with AS can receive, I have noticed that a lot of it is pointed at it because of the large numbers that self-diagnose. I live over here in the UK, where AS is listed as a mental disability, but I refused to classify myself as anything without a professional diagnosis. That diagnosis subsequently happened because, I actually do have it and quite severely, which has led to a number of mental health problems including a stay in hospital. If people think they have it, then get a diagnosis. Settle it one way or the other. But I get very frustrated with those that won't, as they are just lining the rest of us up as targets for having some kind of 'pretend illness' as some people claim.


ASD isnt Cancer, they don't detect it in a binary way. They take a history, which you may well lie about. Attwood in his book discusses people who try to hide their history to avoid a diagnosis. That works both ways.

I don't know you. Having a diagnosis may just mean you lie well and have some urge to gain sympathy. You may have a long history of getting diagnosed with various ailments. There is no absolute security either way.



ci
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06 Feb 2011, 4:01 pm

Thats why I feel better speaking about people such as myself who have a developmental history such as speech delay, integration (transitional) problems, learning difficulties and so on. A person who functions in the world and works with no supports to me is not disabled. Autism means disability. What I am trying to do where I live is get the populations support in creating adaptive transitional circumstances in training as a therapy and skills development protocol as a civil rights inclusion platform. By this means behavioral and or skills adaptation can take place. Although I don't use the word therapy government medical related dollars are used.


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Ginro
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06 Feb 2011, 4:04 pm

simon_says wrote:
Ginro wrote:
Yensid said: I see a lot of people who are self-labeled with AS who really don't meet the diagnostic requirements.

Referring to the mockery that people with AS can receive, I have noticed that a lot of it is pointed at it because of the large numbers that self-diagnose. I live over here in the UK, where AS is listed as a mental disability, but I refused to classify myself as anything without a professional diagnosis. That diagnosis subsequently happened because, I actually do have it and quite severely, which has led to a number of mental health problems including a stay in hospital. If people think they have it, then get a diagnosis. Settle it one way or the other. But I get very frustrated with those that won't, as they are just lining the rest of us up as targets for having some kind of 'pretend illness' as some people claim.


ASD isnt Cancer, they don't detect it in a binary way. They take a history, which you may well lie about. Attwood in his book discusses people who try to hide their history to avoid a diagnosis. That works both ways.

I don't know you. Having a diagnosis may just mean you lie well and have some urge to gain sympathy. You may have a long history of getting diagnosed with various ailments. There is no absolute security either way.


So they take a history, which you say I might lie about, my Doctor lies about, my entire family lies about, the hospitals and their doctors lie about...

I don't know you either but I don't accuse people of being liars without some evidence to that effect. So be quiet.



ci
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06 Feb 2011, 4:09 pm

This is the social problem with ASD. Recruiting to get people to self-diagnose has been used as mechanism to grow a said culture (social clique modality) and at times for political reasons. This also gets into allot of the mainstream political issues such as government social security claims and so on. This is not my thing. I like to think my job is to help people become self-sufficient but first quality of life is priority as this is ethical. The agenda can also serve the tax-payers bottom line.

I really hate the idea of well it's ok he is developmentally disabled that's why we pay taxes then exclude by not seeking to include. It's a vicious cycle of excuses to not include or attempt to force to include with guilts like they cost us all the money and are lazy. The social psychology of this sort of thing I had figured out some time ago. However the public is not educated enough about it. Also the issue can be used incorrectly and for biased reasons. Ethics are a top priority but ethics do not always have absolute determinations.


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06 Feb 2011, 5:14 pm

I am an IT engineer with strong AS traits and some background in psychology. Around half of my colleagues score above 30 in the Barron-Cohen AQ test, and looking back over 30 years in science studies & IT, I can recognise AS traits in at least half of the people I have worked with.

I have been actively working towards greater awareness of neurodiversity in the workplace, and have published a manual for managers of technical teams. Most of the problems we have faced have been due to lack of awareness and work environments that are hostile to AS functioning.

One of the problems we have is that because we are all talented and capable, managers assume that we can just deal with any conditions. Most of us have not saught diagnosis, because we tend to define ourselves by our abilities at work, rather than our limitations.

I think we still need AS as an official definition, mainly because it is far easier to introduce people in the workplace to the idea that they may have AS traits, than the possibility that they might be autistic. Whether we like it or not, the wider population still has negative preconceptions about autism and will go straight into denial, while most are willing to conceed that they may have AS traits.

A major issue is the black and white thinking in society that sees AS as something you either have or have not got. The fact is that we are all on a scale from NT to seriously AS affected. Most of us are in between the extremes. A diagnosis is merely the opinion of the psychologist that your AS traits are strong enough to be a significant problem for you.

For most of us high AQ and AS technical folk, we are happy to take advantage of our AS traits in our work, but need managers to realise that they need to make some adjustments in order to get the best out of us. This has to start with the acceptance of a label in order to go beyond labels.

Steve


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ci
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06 Feb 2011, 5:18 pm

People diversity is important I think. Everyone seems to have good parts and what others might perceive as bad parts. Good businesses utilize the good parts while accommodating the bad parts for every person to optimize the psychological effectiveness of an individual and group makeup. It comes down to is a business a good or bad business in internal strategy utilizing personnel optimally. Businesses that can innately function within this optimal premise are more efficient, adaptive and succeed over that of others that do not.

This statement is irregardless of labels.


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