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Rascal77s
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17 Jun 2012, 6:47 am

Verdandi wrote:
Rascall77s,

You probably recall this, but still:

https://sfari.org/news-and-opinion/news ... -as-adults


I haven't read this particular article before but I've read a lot of studies that the article summarizes nicely. But I don't understand why they're shocked at this. To use an analogy, why would they expect someone 4 standard deviations from the norm to be significantly less screwed up than the guy 9 deviations from the norm. They're both outliers. Not trying to say anything with the numbers, just an example. I mean don't they know what kind of problems these people face when they DX them? :lol:

One thing this article did was remind me was how sh***y the services in the US are.



Verdandi
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17 Jun 2012, 7:23 am

I think part of the problem is how the diagnostic criteria doesn't really focus on adaptive skills deficits and difficulties with activities of daily living and self care skills. It also doesn't focus much on executive function. A lot of the research goes down rabbit holes like "What kind of activity occurs in idle autistic brains" or "do autistic atheists conceive of atheism in the same way as neurotypical atheists?" Now, some of this research is interesting in terms of understanding cognition, but there could be more "why are so many adult autistics unable to find gainful employment at their skill level?" given that the way we go through the interview process itself probably violates the ADA (but no one will ever challenge it).



btbnnyr
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17 Jun 2012, 1:00 pm

I have not gotten "You write too well to have autism", but I have gotten "You write like you have autism", which was not related to writing well or not, but how I wrote.

The most common and true comment on my writing is that it has no transitions.



MakaylaTheAspie
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17 Jun 2012, 1:06 pm

Sounds like my dad.

"She doesn't have autism, she just has a bad attitude."

:roll: What BS.


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Ganondox
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17 Jun 2012, 1:08 pm

Verdandi wrote:
I think part of the problem is how the diagnostic criteria doesn't really focus on adaptive skills deficits and difficulties with activities of daily living and self care skills. It also doesn't focus much on executive function. A lot of the research goes down rabbit holes like "What kind of activity occurs in idle autistic brains" or "do autistic atheists conceive of atheism in the same way as neurotypical atheists?" Now, some of this research is interesting in terms of understanding cognition, but there could be more "why are so many adult autistics unable to find gainful employment at their skill level?" given that the way we go through the interview process itself probably violates the ADA (but no one will ever challenge it).


Because the researchers are NTs, autistic cognetion fascinates them because they are NT and they don't care if the autistic people can find a job because they are NT. From what I've seen for their assiumptions about autistic cognition I can say a lot of it is nonsense, or at least doesn't apply to me. If the researchers weren't taking such an idiotic standpoint on the issue than maybe something would actually get down.


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Kinme
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17 Jun 2012, 1:26 pm

I thought you meant literally writing as in penmanship.
I've never been told this before, since I'm not always open about being an aspie. I don't go around just telling every single person I meet. I'm sure if I did, someone would end up saying SOMETHING similar to that. My friend's mom said "You can't be autistic; you're too smart for that." *Sigh*



Atomsk
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17 Jun 2012, 7:24 pm

Kinme wrote:
I thought you meant literally writing as in penmanship.
I've never been told this before, since I'm not always open about being an aspie. I don't go around just telling every single person I meet. I'm sure if I did, someone would end up saying SOMETHING similar to that. My friend's mom said "You can't be autistic; you're too smart for that." *Sigh*


I almost never tell people about my autism - I prefer to keep it on a need to know basis and just say things like "I have sensory issues" or other symptoms, without saying it's autism.



CuriousKitten
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17 Jun 2012, 7:33 pm

MakaylaTheAspie wrote:
Sounds like my dad.

"She doesn't have autism, she just has a bad attitude."

:roll: What BS.


When I was your age, my dad had me diagnosed as "simple" lacking in maturity. Although I now realize I did experience a developmental delay, there was a far deeper root cause -- I had to cognitively learn the social skills related to maturity and becoming independent.


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lostgirl1986
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17 Jun 2012, 7:41 pm

I haven't heard that before but I'm scared because I have to fill out my daily living part of my disability forms about how my symptoms affect my everyday life. I'm afraid that whoever reads it is going to think that I don't have a disability just because of the quality of how I write.



Verdandi
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17 Jun 2012, 10:32 pm

Ganondox wrote:
Because the researchers are NTs, autistic cognetion fascinates them because they are NT and they don't care if the autistic people can find a job because they are NT. From what I've seen for their assiumptions about autistic cognition I can say a lot of it is nonsense, or at least doesn't apply to me. If the researchers weren't taking such an idiotic standpoint on the issue than maybe something would actually get down.


It's not how well the autistic person can think but that the autistic person thinks at all.

(ref: "It's not how well the bear can dance, but that the bear dances at all.")

More seriously, I find that some of the research matches how I think (for example, discussion of teleological thinking in NTs vs. autistic people - I find the way people assign intentions to occurrences that cannot possibly be driven by intentions to be fairly strange and confusing), but I wonder how much of this leads to tangible benefits for autistic people.



Kinme
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17 Jun 2012, 11:34 pm

Atomsk wrote:
Kinme wrote:
I thought you meant literally writing as in penmanship.
I've never been told this before, since I'm not always open about being an aspie. I don't go around just telling every single person I meet. I'm sure if I did, someone would end up saying SOMETHING similar to that. My friend's mom said "You can't be autistic; you're too smart for that." *Sigh*


I almost never tell people about my autism - I prefer to keep it on a need to know basis and just say things like "I have sensory issues" or other symptoms, without saying it's autism.


Why? Is there a particular reason you don't want to say?



Verdandi
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17 Jun 2012, 11:44 pm

btbnnyr wrote:
I have not gotten "You write too well to have autism", but I have gotten "You write like you have autism", which was not related to writing well or not, but how I wrote.

The most common and true comment on my writing is that it has no transitions.


I don't really know how to categorize the way you write words out (like "eggsactly" for "eggsample") but it does make your posts more interesting to read.



Rascal77s
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17 Jun 2012, 11:55 pm

Seggs?



Dan_Undiagnosed
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18 Jun 2012, 12:00 am

I thought it was said that people on the spectrum are more eloquent in writing than when talking??? I know I write a lot better than talking.



Verdandi
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18 Jun 2012, 12:06 am

Dan_Undiagnosed wrote:
I thought it was said that people on the spectrum are more eloquent in writing than when talking??? I know I write a lot better than talking.


It varies. Some fine writing easier, some find writing very difficult.



Callista
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18 Jun 2012, 12:15 am

And some find talking possible only because they can write. Such as me. :) I learned to read and talk simultaneously. This doesn't mean a speech delay, though, because I was like most of my family a very early reader.

My primary language is written. I've done a lot of work, and my speech sounds less formal than it used to, but I'm still pretty pedantic. If I can't get words out, the easiest way to trick myself into talking is to mentally write something and then "read" it aloud.


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