They don't understand my sensitivies/frustrations with sound

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twich
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22 May 2013, 2:55 pm

Fluffpuffgerbil wrote:
this forum. =P I relate to most things said on here, but I'm not self dxing really, or I'm trying not to


I had an issue with this. I didn't get diagnosed until I was 26 or so, and when I got an actual diagnosis, I found my Mum was more understanding about things. I don't have an official diagnosis of Sensory Processing Disorder, but now that I have my AS diagnosis, she realizes now that I wasn't just being over dramatic about things being too loud, smelling, tasting wrong, etc.

One thing that sets me into a rage is snoring. My stepdad's snoring is so loud I can hear it from my room over a box fan on high (box fans are very loud) and our beds couldn't be further apart (Their bed is on the wall farthest from my room, and my bed is on the wall farthest from theirs) and I've begged and begged that she gets something even like a decorative blanket to help absorb some of the sound. She said no and I'll just have to learn to deal with it. It's been like this going on 4 years now. I want to mention ANYONE snoring makes me instantly angry, but the fact that I can't even get any relief from being in my room unless I'm trying to sleep with earbuds in while listening to uncomfortably loud music because he chooses to not lose weight which is making his snoring louder, I think is making it worse. (yes, he's actually making the choice to get bigger- He's already over 400 pounds and tells people to F off and mind their own business when they bring up concerns about his weight and health) One of my friends mentioned a condition called misophonia, and I looked it up. I definitely fit this and when I told my Mum about it, I asked if it were neurological and not me "just being difficult," would she be more willing on helping drown the noise out. She said yes.

My point is, maybe if you got the info needed, and sought a diagnosis while also explaining to your family that these are real conditions and this is why you feel as if you fit the criteria, maybe it will cause them to be more understanding and you can all work on a compromise? We can't always have our way, nobody can, but if you can find times where you can find a compromise that works for everyone or find ways to cope (like an emergency sensory kit) Maybe things might get easier.



Fluffpuffgerbil
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22 May 2013, 9:41 pm

Well, the thing is, I believe my mom understands and she warns me when she's eating in the same room I am like when we're watching TV and stuff, and again, she's understanding as I've explained it to her and I've talked to her about my problems concerning mental health(which she also understands, mental illness runs in everyone on her side of the family and I'm a lot like her). We can't afford a doctor's trip yet, my dad just recently got re-employed after two years and money's still really tight. We also haven't gotten health insurance cleared yet I believe.

It's my older sister that's more of the problem/she doesn't understand or whatever. I don't know what's wrong with her, but she just seems mad at me for some reason, and I don't know if she's just stressed because she can't find a job/is being stubborn about what jobs she wants/doesn't know what to do with her life as my mom puts it(which emily told her). I don't know

I feel like she's treating me like an annoyance which makes me feel bad, so I sent her a facebook message and I'll see if she replies. >,>

And to an earlier post(didn't see username, sorry. XD) I wasn't really trying to achieve anything by complaining about the voice actress in the movie, I just complained about it a couple times and she told me to stop because I was making things unenjoyable. =/ I don't know, maybe we'll get things resolved because we used to be really close, but now I feel like she is annoyed by me.



girly_aspie
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26 May 2013, 11:42 am

People have advised me to wear earplugs but that just makes it easier to hear all the sounds inside myself: my swallowing, my heart, everything.


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metaldanielle
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27 May 2013, 1:44 am

girly_aspie wrote:
People have advised me to wear earplugs but that just makes it easier to hear all the sounds inside myself: my swallowing, my heart, everything.


^this. Those sounds are just as bad, and I can still hear the outside noise, barely muffled at all.

If people don't have sensory issues themselves, they *can't* understand, they don't have a frame of reference. That is why I believe people act like we are making things up. Of course, that assumes that they are open to the concept that not everyone is the same. Some people are just jerks, and don't even bother to listen.


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rapidroy
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27 May 2013, 8:55 am

metaldanielle wrote:
girly_aspie wrote:
People have advised me to wear earplugs but that just makes it easier to hear all the sounds inside myself: my swallowing, my heart, everything.


^this. Those sounds are just as bad, and I can still hear the outside noise, barely muffled at all.

If people don't have sensory issues themselves, they *can't* understand, they don't have a frame of reference. That is why I believe people act like we are making things up. Of course, that assumes that they are open to the concept that not everyone is the same. Some people are just jerks, and don't even bother to listen.


It takes time to get used to how funny your own voice sounds with the ear plugs in and to remember that only you hear it like that, then theres the other issue of people still expecting you to hear and socialize with them in. I think the experance of wearing ear plugs is simular to being under water, not that I could ever stand going under for any length of time at all.