Annoyed that people think I'm high-functioning

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Claradoon
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07 Apr 2015, 6:10 pm

btbnnyr wrote:
High-functioning only means lack of intellectual disability.


Why do express that in the negative?

Also, in my case, I have extremely high Verbals, some average abilities, and some low abilities.

Could we say high-functioning means variable abilities, with one or more brilliants? Not to be confused with idiot savant. This is very tricky territory.

Maybe we should decide what we're trying to do - light repartee to the Normal? a slap in the face for the Normal? self-defense? creation of a universally applicable definition?



btbnnyr
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07 Apr 2015, 6:15 pm

High-functioning just means autism without intellectual disability.
High-functioning is an adjective added to this group of people with autism, autistic people who don't have intellectual disability.
That is all that high-functioning means.
There are no connotations or additional stipulations about what specific abilities a high-functioning person has.


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07 Apr 2015, 6:54 pm

btbnnyr wrote:
High-functioning just means autism without intellectual disability.
High-functioning is an adjective added to this group of people with autism, autistic people who don't have intellectual disability.
That is all that high-functioning means.
There are no connotations or additional stipulations about what specific abilities a high-functioning person has.


That's the right definiton.
But I do not understand why autistic people with intellectual disability are called "low functioning autistics" and non-auistic people with intellectual disability are not called "low functioing" but just having an intellectual disability.
This low functioning is in my opinion very degrading and the source of low functioning is only graded to the autism, but the intellectual disability should also be considered.
But in the name it is not.
And it is not the truth, it is not solely that the autism is causing being low functioning, it is both conditions together, why would people not call it intellectual disability with autism or autism with intellectual disability?
It is very degrading to call a human being "low functioning" just by measures of "normal" conception.


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07 Apr 2015, 8:02 pm

I totally get what you are saying. I FEEL THE SAME WAY. It would be nice to feel like people understand what you go thru



GoofyGreatDane
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07 Apr 2015, 9:12 pm

While high functioning was conventionally defined as autism without mental retardation - this was never an official classification. DSM 5 provides a better definition that actually takes into account how well a person functions. If they need substantial support, they aren't high functioning- even if their IQ is 200.



ChristinaTheHobbit
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08 Apr 2015, 11:11 am

will@rd wrote:
naturalplastic wrote:

Am sure that you're aware that your complaint makes no sense.


ChristinaTheHobbit's complaint makes perfect sense, and the remark she's complaining about is by no means a compliment, even if an NT pretends that it is. I have said for years it's insensitive and condescending to even use the term "MILD autism" because there's no such thing, there's just autism and various degrees of acquired coping mechanisms. "High Functioning" only means you have enough intellectual ability to fake normalcy to a limited extent, but the downside of that is, the better you fake it, the less anyone believes you're having a real problem to begin with.

When some NT tells you you're "High Functioning" they don't mean "you're handling your handicaps well," what they mean is "Oh, right, another whiner faking a made-up disability."


Yeah, this is exactly what I'm complaining about.


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opossum
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08 Apr 2015, 1:51 pm

ChristinaTheHobbit wrote:
This is mainly a rant in hopes that there are other people out there who can sympathize.

I get really annoyed when I tell someone I have autism and they're like "oh, you must be very high-functioning!" I think it's supposed to be a compliment, but it honestly just belittles the struggles I go through everyday to appear as a normal adult.

I'm not high-functioning at all, my facade has come from years of social training, manner and etiquette classes, and therapy as well as speech therapy. My sensory issues are managed carefully and meticulously. I have to accustom myself to the noise of everyday life before I step out of my door and even then I have to make sure that I have enough scheduled breaks to calm down.

There's a little book of velvet swatches in my purse at all times to finger when I need help blocking out the different sensory inputs from around me (like the woman who always wears strong perfume to work or those damned overhead lights). Whenever I need to stim, I excuse myself to a bathroom so people won't have to see me lose it. I isolate myself if I feel like a meltdown is imminent and I have coping techniques to put off a shutdown until I'm alone (even though that makes the shutdown even worse).

When people congratulate me for being high-functioning I feel like they've slapped me in the face. I know logically that they think that because they don't see the monumental effort I go through everyday to appear normal. Still, it's hurtful and is really annoying. Does anyone else out there ever feel like this?


Well written, I agree entirely :)



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08 Apr 2015, 1:55 pm

I agree that I don't feel good when people cheerfully compliment me on being "so high functioning" when it's all I can do to act that way. However, the alternative is even worse: "Yeah I can tell you're autistic. You're clearly struggling with everyday activities." So I bite my tongue and try to take it as a compliment on my acting skills.



DataLore
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08 Apr 2015, 3:22 pm

It's like the worst kind of back handed compliment, and I really feel for you because the struggle is real even if they can't see it. The closest thing I can relate it to is horse riding actually, where people who don't know any better will say it looks easy because the horse is doing all the work, when the reality couldn't be more different. Figure skating probably has a similar level of intricacy and I'd like to see anyone tell them they aren't skilled! Plus the horse is the muscle and the rider is the brains.. and sometimes the muscle doesn't listen to the brains and everyone gets hurt. ^^'

It also kind of implies that they think all people with autism must be unable to do the things 'normal' people do as well, and they're surprised to find someone who manages to (albeit with a monumental conscious effort). Lack of education is to blame there I think, and we'll all be better off when people actually learn about these things in class. Next time someone calls you high functioning as though it's amazing that you've carved out a 'normal' looking life for yourself, just imagine spitting in their eye pff. :lol:



TryNotToBreathe
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13 Jul 2017, 3:32 pm

"When people congratulate me for being high-functioning I feel like they've slapped me in the face. I know logically that they think that because they don't see the monumental effort I go through everyday to appear normal. Still, it's hurtful and is really annoying. Does anyone else out there ever feel like this?"

I relate to the monumental effort to be functional but I don't get annoyed with other people who don't understand. They just have no way of seeing what you have to go through, mentally, to deal with life. They are neurotypical and so do not have this cross to bear. And I hate to say it, but maybe you ARE high-functioning. You are passing as normal in this world which suggests that you are functioning pretty well. It just may take a tremendous effort, but you appear to be accomplishing it.



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13 Jul 2017, 5:29 pm

This is a great topic and I definitely relate to having negative reactions when people minimize my difficulties. I very seldom mention to anyone that I’m autistic out of fear of their reactions and possible gossip, but I’ve recently realized with help from a really great counselor that I need to let certain people know why I repeatedly seem cagey or reluctant in social situations. Otherwise I can come across as disinterested in others, seem unwilling to participate, or I can get really quiet and then I fail to make connections with people when I truly want to. I’ve even had some hurt feelings about a support group I’ve attended for those with Aspergers by a local autism society: I don’t have Aspergers, I have full autism, since I had a speech delay and couldn’t speak until I was 4 years old. My sensory, verbal, and social issues aren’t mild in any way – in a social group my instinct is to bolt for a door or bare my teeth at people. And yet I was a manager at a large company for years, which took tons of extra effort for me. I think some of my feelings come from working so incredibly hard to maintain composure and a normal conversational tone of voice and keep “normal” facial expressions and not fidget to where people can see and even throw in some humor and nuanced expressions just to fit into the non-autistic world. Getting bullied and shunned by peers in school and even by some teachers pounded in the lesson that I didn’t fit in and would be mistreated and misunderstood if I behaved authentically. I just turned 60, a lifetime of “faking normal”, and I’ve grown totally out of touch with myself and how I feel because essentially my whole life I’ve had to pretend to be neurologically normal. Having to fake normality to succeed at work or to fit in socially is a big additional handicap on top of my sensory, social, and other issues. I guess it’s an issue of social norms and how people react if you’re unconventional. I’m a nice, considerate person who’s genuinely interested in others, but that easily gets lost. If non-autistic folks were more tolerant of differences and didn’t try to tell you that you’re really normal or that your fears/phobias/difficulties weren’t that serious, it would go a long way toward real acceptance of autistics. That sounds like a bunch of complaining, and maybe it is, but it’s reality. Normal folks aren’t intentionally being hurtful and I’d still like to find a better way to interact.