I decided to tell all my internet people about my ASD...

Page 2 of 2 [ 30 posts ]  Go to page Previous  1, 2

justanothersara
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 24 May 2015
Posts: 58

07 Jun 2015, 3:17 pm

JenniferJones2015 wrote:
So, from a newbie aspie -- any advice for how to deal with the deep pain that happens when I tell someone I think is actually close to me (a friend, a family member) that I have been diagnosed with AS and feel 'sane' for the first time in my life, and the response is doubting or total negating of my statement? I don't want to get into the educator role (it is hard enough to understand for myself, as it is), but I also don't know what to do with the knife-like hurt that cuts through me every time this happens. I have started saying 'Why in the world would I lie about something like this,' but even that does not seem to make clear how hurtful their reaction is. Any suggestions/tactics/theories welcome.


I have tried telling people that it's hurtful to try to invalidate a diagnosis that finally explains why I've always felt this way, unless they're my doctor or have all of the information that my doctor was given, they can't make this call. Nobody, or very few mentally ill people, would want to be classified as having what is considered a mental disability - there's way better things to lie about, so why would you pick having ASD?

Barring their ability to accept that I just stop talking to them, but that's, you know, probably not the best approach.



JenniferJones2015
Blue Jay
Blue Jay

User avatar

Joined: 7 Jun 2015
Posts: 88

07 Jun 2015, 3:19 pm

justanothersara wrote:
JenniferJones2015 wrote:
So, from a newbie aspie -- any advice for how to deal with the deep pain that happens when I tell someone I think is actually close to me (a friend, a family member) that I have been diagnosed with AS and feel 'sane' for the first time in my life, and the response is doubting or total negating of my statement? I don't want to get into the educator role (it is hard enough to understand for myself, as it is), but I also don't know what to do with the knife-like hurt that cuts through me every time this happens. I have started saying 'Why in the world would I lie about something like this,' but even that does not seem to make clear how hurtful their reaction is. Any suggestions/tactics/theories welcome.


I have tried telling people that it's hurtful to try to invalidate a diagnosis that finally explains why I've always felt this way, unless they're my doctor or have all of the information that my doctor was given, they can't make this call. Nobody, or very few mentally ill people, would want to be classified as having what is considered a mental disability - there's way better things to lie about, so why would you pick having ASD?

Barring their ability to accept that I just stop talking to them, but that's, you know, probably not the best approach.


Nah, probably not (the best approach). Rather enticing, though. Bummer.



justanothersara
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 24 May 2015
Posts: 58

07 Jun 2015, 3:23 pm

JenniferJones2015 wrote:
Do you get/feel upset when you hear from these haters? I spend a lot of my life confused about how I am supposed to react emotionally. Somethings cut deep (while the NT people in my life seem to be find with them), while other things that makes them upset seem frivolous to me. I struggle constantly with a 'proper' emotional reaction. Is one supposed to get mad/hurt at haters, or just let it go because they are miserable people themselves? 8O


I get irritated that they (the "haters") are so stupid, and I struggle to try to understand intellectually where they are coming from (which is a mistake because there is no intellect driving their anger/hatred)... then NTs tell me not to "let the haters get to me" or "just do you" or whatever and I'm like, ummmm but I'm not, and I always "do me", wtf WHY CAN I NOT JUST BE CURIOUS ABOUT SOMETHING WITHOUT BEING BUTTHURT?

I've recently come to understand it's because the "don't let the haters get you down" people would be hurt if they were in my situation.

I sort of just feel bad for the "haters", or amused, or both. Their lives have to suck to devote so much of their time/energy to feeling hatred or at least negative feelings towards strangers. They probably just need a hug. Usually I just ignore them, but sometimes I debate them and sometimes I goad them. There's one in particular on this thread on my facebook page that I've been goading (the one that accused me of just wanting drugs) for my own personal amusement.



JenniferJones2015
Blue Jay
Blue Jay

User avatar

Joined: 7 Jun 2015
Posts: 88

07 Jun 2015, 3:43 pm

justanothersara wrote:
JenniferJones2015 wrote:
Do you get/feel upset when you hear from these haters? I spend a lot of my life confused about how I am supposed to react emotionally. Somethings cut deep (while the NT people in my life seem to be find with them), while other things that makes them upset seem frivolous to me. I struggle constantly with a 'proper' emotional reaction. Is one supposed to get mad/hurt at haters, or just let it go because they are miserable people themselves? 8O


. . . I sort of just feel bad for the "haters", or amused, or both. Their lives have to suck to devote so much of their time/energy to feeling hatred or at least negative feelings towards strangers. They probably just need a hug. Usually I just ignore them, but sometimes I debate them and sometimes I goad them.


Hmmm... thanks!



justanothersara
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 24 May 2015
Posts: 58

07 Jun 2015, 7:02 pm

Yeah it's a little juvenile but after enough people say totally stupid stuff (not just about this) to me I just get flippant. Like, "Yeah, I totally used to be a man, you're absolutely right, however did you guess?" Or, "Of course I look like I need a cheeseburger, why don't you buy me one?" :P

I guess I should have my feelings hurt or whatever but instead I'd rather know WHY people say the things they do... For example, I have people tell me all the time that I'm so full of myself because all I do is post about myself and my hobbies or whatever, ON MY SOCIAL MEDIA (instagram, Facebook "fan" page). I've tried asking them what they expect me to post exactly, but I've been very disappointed with the lack of answer, or how they just insult me when I ask, without giving an answer. The only thing I can figure is that it's an emotional response they're having, they're upset for some reason I cannot fathom, certainly not for any logical reason. :scratch: When I ask them about it, I always have other people tell me "don't let the haterzzzz get you down!" which is frustrating because I literally just want to understand why a person would do this thing that seems so far from the scope of reason for me, not because I am emotional about it. Alas.



Sweetleaf
Veteran
Veteran

User avatar

Joined: 6 Jan 2011
Age: 35
Gender: Female
Posts: 35,129
Location: Somewhere in Colorado

07 Jun 2015, 7:22 pm

Does it ever occur to people that expressing ones self online might be a little easier than in person social interaction some of the time...especially if you have autism which makes it hard to perceive/react to everything in real time, especially people you aren't used to. I mean its not hard to post a few words and a picture or share something cool on facebook.....it can be much easier than talking to people. And also some people clearly don't know how a diagnoses works you don't get multiple separate diagnoses of the same thing...you get a diagnoses, other's with liscence to diagnose than might agree with or disagree with said diagnoses, but you don't get multiple diagnoses for the same condition. You can see different professionals and get the diagnoses confirmed and reconfirmed ect.


_________________
Eat the rich, feed the poor. No not literally idiot, cannibalism is gross.


JenniferJones2015
Blue Jay
Blue Jay

User avatar

Joined: 7 Jun 2015
Posts: 88

07 Jun 2015, 9:02 pm

justanothersara wrote:
. . . I guess I should have my feelings hurt or whatever but instead I'd rather know WHY people say the things they do... For example, I have people tell me all the time that I'm so full of myself because all I do is post about myself and my hobbies or whatever, ON MY SOCIAL MEDIA (instagram, Facebook "fan" page).


LOL. That is funny. :D



Ban-Dodger
Veteran
Veteran

User avatar

Joined: 2 Jun 2011
Age: 1027
Gender: Male
Posts: 1,820
Location: Возможно в будущее к Россию идти... можеть быть...

07 Jun 2015, 9:32 pm

Ever get the Feeling™ that most people are just mind-controlled or under some kind of mass-hypnosis to a greater or lesser extent ? Particularly NT™s ? Considering that NT™s do tend to have more Superficial-minds after all. Has it ever made any of us become suspicious of things like psychotronics ? 8O Mind-control, psycho-tronics, the intentional/deliberate dumbing down of the world's population into becoming NT™s, etc. :!:


_________________
Pay me for my signature. 私の署名ですか❓お前の買うなければなりません。Mon autographe nécessite un paiement. Которые хочет мою автографу, у тебя нужно есть деньги сюда. Bezahlst du mich, wenn du meine Unterschrift wollen.


JenniferJones2015
Blue Jay
Blue Jay

User avatar

Joined: 7 Jun 2015
Posts: 88

07 Jun 2015, 9:38 pm

Ban-Dodger wrote:
Ever get the Feeling™ that most people are just mind-controlled or under some kind of mass-hypnosis to a greater or lesser extent ? Particularly NT™s ? Considering that NT™s do tend to have more Superficial-minds after all. Has it ever made any of us become suspicious of things like psychotronics ? 8O Mind-control, psycho-tronics, the intentional/deliberate dumbing down of the world's population into becoming NT™s, etc. :!:


I often think that the premise of The Matrix is absolutely true -- that humans are, indeed, living in a complete illusion created by machines that use us for their nefarious purposes while we play golf, destroy the earth, and think living is a meaningful activity as we watch (or not notice, as the case may be) 25,000 people die of starvation every day but do not feel there is something brutally wrong with our existence. Mind-controlled and mass-hypnotized? Sure. How else does one explain this madness?



justanothersara
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 24 May 2015
Posts: 58

08 Jun 2015, 12:12 am

Sweetleaf wrote:
Does it ever occur to people that expressing ones self online might be a little easier than in person social interaction some of the time...especially if you have autism which makes it hard to perceive/react to everything in real time, especially people you aren't used to. I mean its not hard to post a few words and a picture or share something cool on facebook.....it can be much easier than talking to people. And also some people clearly don't know how a diagnoses works you don't get multiple separate diagnoses of the same thing...you get a diagnoses, other's with liscence to diagnose than might agree with or disagree with said diagnoses, but you don't get multiple diagnoses for the same condition. You can see different professionals and get the diagnoses confirmed and reconfirmed ect.


For me it's easier because I can think and choose carefully how I come across... much moreso than if someone comes up to me in person and says something which I then take entirely too long to respond to without making eye contact or I just don't respond because I don't know how & they think I'm a jerk. I don't think people consider that OR the fact that as we get older, we can learn to sort of mimic "normal" social interaction.

A lot of people view ASD/autism as the new "over-diagnosed" thing, like fibromyalgia and gluten sensitivity (both of which I also have so, go me), they think that we just go see just a general practitioner who says "f*** it I don't know, it's probably Aspergers!" rather than having a lifetime of nearly unmistakeable symptoms before seeing specialists and getting tests like the ADOS done.

I also think some people are jealous... they want to be "different" and think they would get attention for it, so they want to make sure that we don't get any attention they feel is undue (especially if they secretly want this attention for themselves, nevermind all the other often crappy things that come along with being on the spectrum)



MarkOrbit
Tufted Titmouse
Tufted Titmouse

Joined: 20 Feb 2015
Gender: Male
Posts: 31

08 Jun 2015, 1:11 am

EVERYONE WANTS TO BE SPECIAL THESE DAYS --- STOP WITH THE LABELING -- YOU ARE SO NORMAL

People that say and think these things are definitely not in the spectrum. That is a blatant NT. And they can go f**k themselves. You probably appear normal to them because you have been "acting" normal. But they have NO idea what is going on in your brain by just watching or following you. That's impossible.

It was brave to do what you have done. I also have internet "celebrity status" as well (yes I'm not kidding) but I could never "come out" like you have. It takes some guts. But at the end of the day, knowone really cares anyway, they just like you for you.



justanothersara
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 24 May 2015
Posts: 58

08 Jun 2015, 7:34 pm

MarkOrbit wrote:
EVERYONE WANTS TO BE SPECIAL THESE DAYS --- STOP WITH THE LABELING -- YOU ARE SO NORMAL


You totally nailed it... so much of this. "Stop with the labeling" or "a label doesn't change anything" is at least usually well meaning- except you know, it's a reason for the way I've always been, and that there are other people like me, and I can do therapy to help my weird brain & make me a bit more able to cope.



MarkOrbit
Tufted Titmouse
Tufted Titmouse

Joined: 20 Feb 2015
Gender: Male
Posts: 31

08 Jun 2015, 9:43 pm

justanothersara wrote:
MarkOrbit wrote:
EVERYONE WANTS TO BE SPECIAL THESE DAYS --- STOP WITH THE LABELING -- YOU ARE SO NORMAL


You totally nailed it... so much of this. "Stop with the labeling" or "a label doesn't change anything" is at least usually well meaning- except you know, it's a reason for the way I've always been, and that there are other people like me, and I can do therapy to help my weird brain & make me a bit more able to cope.


I just started with Therapy myself. I found a women with 25 years of experience. She could tell I have symptoms before even taking the exam. I am still waiting to hear back on my diagnosis, but I already know how it will turn out.

It's funny when people say "Hey do you think I could have Aspergers?" Dude if you have the s**t you KNOW. LOL. Unless it's a mild case where you have been pretty "cope-able" for all these years.

My deal is quite different. I need to drill in deeper to find out what is going on with me. WAY too smart and big time socially ret*d forever. Heck, my posts on here don't even get replies like yours lol? What does that tell you.

No but really, it is what it is. You did the right thing.



darkphantomx1
Veteran
Veteran

Joined: 1 Feb 2015
Age: 30
Posts: 1,293

08 Jun 2015, 10:22 pm

I stand on the roof of my house and shout to the whole neighborhood HEY EVERYONE I'M AUTISTIC AND PROUD! I mostly get a couple of people saying shut up.