How do I tell them about my autism?
richardbenson
Xfractor Card #351

Joined: 30 Oct 2006
Gender: Male
Posts: 13,553
Location: Leave only a footprint behind
I don't think my school know that I'm autistic (and I don't think I have AS because I learn too slow to have it.)
Have you been Dx'ed with Autism?
Ask your mother what your official Dx'es are.
I don't think you learn "too slow" to have aspergers. From what I see right here, you seem to be able to communicate rather well! I think that if you have a hard time learning things, it may be due to learning disabilities, which are commonly found in people with ASD's, including AS!
I think you need to talk to your parents about this. You need a firm DX from a medical professional, and it would be a good idea to get a full psycho ed done at school. This will test for learning disabilities.
You need to understand the ASD spectrum, and not the myths about what people on the spectrum are like or not like.
Do you have a current copy of the DSM criteria?
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Basically, it is my understanding that you have 4 types of autism,
Low functioning Autism
High functioning Autism
Asperger's.
PDD- NOS. This is what you label, when the person is definately on the "spectrum" or has some form of Autism, but non of the other labels apply.
To complicate it, Intellegance factors in with these types of Autism to arrive at what kind of person someone is, are they high functioning (mildly impaired by their intellegance and / or autism), or low functioning. (Severely impaired by their intellegance and / or autism)
IQ:
The bench mark for low intellegance and normal intellegance is an IQ of 70.
70 and below, you are on the low end.
71 and above, you are in normal ranges.
71-90? Is considered "borderline" you are in the normal ranges, but on the low end.
90-109 Is considered Normal.
110+ Is Above average.
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Low Functioning:
You can have high or normal intellegance, and be severly autistic. So much so that you are considered "Low functioning Autistic". (LFA)
You can also have low intellegance, and be severly autistic. Again, this is going to lead to a LFA diagnosis. (Without the autism, you would be developmentally delayed.)
You can have low intellegance, and be mildly autistic. This may lead to a PDD- NOS diagnois. (means you have autsim, but what type is not specified) (Again, without the Autsim, you would be developmentally delayed).
All the above, are going to result in individuals who are "low functioning". Often the reason for being low functioning is a developmental delay, but not always!
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High Functioning:
You can have normal or high intellegance, and be mildly autistic. This is going to lead to a PDD- NOS diagnosis, or AS.
YOu can have Normal or high intellegance, and be moderately autistic. This is High Functioning Autism. (HFA)
People that are high Functioning, may not do well in school, dispite having IQ's well above average, because of other Learning disabilities!
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So, my guess is, just by the fact that you navigated your way to this site, and posted a reasonably intellegent contribution to the message board on your own, that you are not "low functioning"! You may be AS, you may be PDD- NOS, you may be HFA. But you are definately not "stupid, or dumb, or non intellegant, or Low functioning".
What you need, is to more clearly understand what your learning difficulties are, if you have LD's, and just how sevearly Autistic you are. You could be anything from AS to PDD- NOS. With the right help and support, you can have a great life, and I bet even an independant life!

Ok, because I did not write enough for one day I am going to ask a couple other questions.
What computer software do you have to help support you in school?
You would be AMAZED at what is out there if you currently do not have any software. I would push to get a laptop (the school should provide one) loaded with helpful programs.
The following programs have free 30 day trials. If you are not familiar with them, DO NOT IGNORE THIS, go check them out!
1.) Inspiration- Graphic Organizer www.inspiration.com
This program is AMAZING! If you can use Paint, you can use this program to plan reports, organize your day, set goals for your life! it is SO SO easy to use and produces such professional results all at the click of a button! I bet learning and using this program would pull you up a whole grade level in a real hurry, and make life much easier overall! My husband wants a copy for work! It is available for well under a $100.00. The school should pay for it, but if they don't, it should not be too hard to get it!
2.) WordQ. www.wordq.com
This program is a must if you have difficulty writting sentances and with spelling. It is phenominal and again, so easy to use the average grade 2 student can learn how to opperate it easily!
3.) SpeakQ. www.wordq.com
This is an add on for WordQ. it is speech recognition software, again it will make your life SO much easier and make getting that homework done so much faster!
Both WordQ and SpeakQ intigrate into your current programs, like word, or even this text box on the internet!
All the above have free 30 day trials on their websites. The wordQ / speakQ is expensive after that, however the school should pay for it if you really think it helps.
4.) Dragon Version 9.0.
Again, this is is a speech recognition program. It is more comprehensive then SpeakQ, you can do "more" with it, however it is harder to learn, and not as easy to use. It is very professional though, and while it may take awhile to get fully up and running with how to opperate it, in the end it will be well worth it, as you can take it on to post secondary school, or even the workplace as an adult!
5.) Kurzweil
This program can scan work (textbooks) and assignments for you, and read them out to you! It can also be interacted with / manipulated so that you can immediately start answering questions on a computer! Again, very expensive, you will have to ask the school board about it.
Anyway, I hope this is helpful, please, if you don't have the above software, look into it! It will cost you nothing, but may give you a whole new life!
roygerdodger
Veteran
Joined: 15 Jul 2006
Gender: Male
Posts: 1,527
Location: High Point, North Carolina
Ok, just a bit more,
Here are the DSM IV criteria for Autism and Asperger's, and I am going to include an "unofficial DX" by Sophist here at WP.
http://www.autism-pdd.net/diagnosing-autism.html
(Diagnostic And Statistical Manual Of Mental Disorders, 4th edition, 1994)
Diagnostic Criteria For 299.80 Asperger's Disorder
A. Qualitative impairment in social interaction, as manifested by at least two of the following:
1. marked impairments in the use of multiple nonverbal behaviors such as eye-to-eye gaze, facial expression, body postures, and gestures to regulate social interaction
2. failure to develop peer relationships appropriate to developmental level
3. a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g. by a lack of showing, bringing, or pointing out objects of interest to other people)
4. lack of social or emotional reciprocity
B. Restricted repetitive and stereotyped patterns of behavior, interests, and activities, as manifested by at least one of the following:
1. encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus
2. apparently inflexible adherence to specific, nonfunctional routines or rituals
3. stereotyped and repetitive motor mannerisms (e.g., hand or finger flapping or twisting, or complex whole-body movements)
4. persistent preoccupation with parts of objects
C. The disturbance causes clinically significant impairments in social, occupational, or other important areas of functioning
D. There is no clinically significant general delay in language (e.g., single words used by age 2 years, communicative phrases used by age 3 years)
E. There is no clinically significant delay in cognitive development or in the development of age-appropriate self-help skills, adaptive behavior (other than social interaction), and curiosity about the environment in childhood
F. Criteria are not met for another specific Pervasive Developmental Disorder or Schizophrenia
[b]Criteria for Autism:
The DSM IV criteria for the autistic disorders
Childhood autism
A total of six (or more) items from (1), (2), and (3), with at least two from (1), and one each from (2) and (3):
Qualitative impairment in social interaction, as manifested by at least two of the following:
marked impairment in the use of multiple nonverbal behaviors such as eye-to-eye gaze, facial expression, body postures, and gestures to regulate social interaction.
failure to develop peer relationships appropriate to developmental level
a lack of spontaneous seeking to share enjoyment, interests, or achievements with other people (e.g., by a lack of showing, bringing, or pointing out objects of interest)
lack of social or emotional reciprocity
Qualitative impairments in communication as manifested by at least one of the following:
delay in, or total lack of, the development of spoken language (not accompanied by an attempt to compensate through alternative modes of communication such as gesture or mime)
in individuals with adequate speech, marked impairment in the ability to initiate or sustain a conversation with others
stereotyped and repetitive use of language or idiosyncratic language
lack of varied spontaneous make-believe play or social imitative play appropriate to developmental level
Restricted, repetitive, and stereotyped patterns of behavior, interests, and activities, as manifested by at least of one of the following:
encompassing preoccupation with one or more stereotyped and restricted patterns of interest that is abnormal either in intensity or focus
apparently inflexible adherence to specific, nonfunctional routines or rituals
stereotyped and repetitive motor mannerisms (e.g. hand or finger flapping or twisting, or complex whole body movements)
persistent preoccupation with parts of objects
Delays or abnormal functioning in at least one of the following areas, with onset prior to age 3 years: (1) social interaction, (2) language as used in social communication, or (3) symbolic or imaginative play.
The disturbance is not better accounted for by Rett's disorder or childhood disintegrative disorder. [/b]
This category should be used when there is a severe and pervasive impairment in the development of reciprocal social interaction or verbal and nonverbal communication skills or when stereotyped behavior, interests, and activities are present but the criteria are not met for a specific pervasive developmental disorder, schizophrenia, schizotypal personality disorder, or avoidant personality disorder. For example, this category includes "atypical autism" � presentations that do not meet the criteria for autistic disorder because of late age at onset, atypical symptomatology, or subthreshold symptomatology, or all of these.
Ok, above was the DSM IV criteria.
Now, to better understand what it means; at least in respect to Aspergers, this is a list that is well accepted at WP by many of us by Sophist. If you have PPD -NOS you may find that it "sort of discribes you". Not all things may apply.
This is not an exhaustive list of ASD characteristics. However, it's definitely more extensive than the DSM or ICD and hopefully more descriptive, too. It includes a listing of symptoms one may see in ASDs. But please note that not every autistic person is going to display every point on this list nor to a similar degree as the next. This is just a general guideline to some of the underlying issues seen in ASDs.
Quote:
LIST OF COMMON SYMPTOMOLOGY FOR AUTISTIC SPECTRUM DISORDERS:
GABA-related Issues:
1.OCD-like tendencies These symptoms are on a spectrum of their own within ASDs. They can include full-blown OCD issues or milder, undiagnosable symptoms such as preference for routine, difficulty with change, repetitive thought processes, and compulsions which may fall short of the full OCD criteria.
2. Anxiety issues The anxiety can vary wildly from sudden panic attacks to more specific phobias. Social Phobia is a common comorbid, or even a sub-diagnosable social uneasiness. Anxiety can also often focus around the OCD-like issues and involve compulsions and/or obsessive and repetitive thoughts.
3. Obsessions Despite that the DSM and many books imply an autistic person is usually only obsessed with one thing at a given time, the focus should be on the level of the obsession (no matter its duration, what is the quality of its intensity?) and/or whether it us an unusual interest; not the number of obsessions. Also, the duration can be longstanding (years) or even as brief as a single afternoon. The focus should instead be on the intensity and/or abnormality of the obsession, itself, and not the number or duration. ADHD symptoms can often make obsessional interests last shorter than “stereotypical”.
4. Self-stimulatory behaviors In some autistic individuals, this symptom is very extreme; in others, it may be subtle or even solely done in private. Stimulatory behaviors are common to all humans; however, autistics tend to stim more frequently and perhaps may or may not inhibit their stimulatory behavior simply due to social convention. Stimulatory behaviors (or rather an increase in these behaviors) is often triggered by a non-homeostatic emotional state (i.e., anxiety or excitement). However, stimming can also be a sensory-exploration and not simply a method of anxious calming.
5. Hyper- and Hypo-sensory issues These can involve any of the senses: sight, sound, touch, taste, smell, vestibular system (balance), proprioception (joint awareness; limb awareness), exteroception (skin awareness), and interoception (awareness of the inner body: organs such as stomach, bladder, bowel movements, etc.). Vestibular abnormalities, proprioception, exteroception, and interoception all seems to be fairly constant in abnormal functioning (when there is a deficit); however, the level of sensitivity of the five main senses can many times be contingent upon anxiety levels. Many autistics experience a consistent abnormality in several of these senses, but level of severity (i.e., an increase in discomfort) can be effected by anxiety levels.
Body Issues:
6. Coordination, balance, and body awareness Each of these areas can be effected. As stated above, issues in these areas are usually constant in nature and not quite as vulnerable to shifts in GABA functioning.
Cognitive Functioning:
7. Executive Dysfunction Autistics can have varying levels and combinations of EDF. Most have issues with multitasking even to the point that looking and listening can be a difficult task. Social multitasking can be an issue. Common ADHD symptoms are most often noted if not full-blown ADHD. Within this, attentional problems, organization, multitasking, and goal-oriented planning and carrying out of these plans can all be effected. Although each autistic will show varying levels of severity.
8. Language For some autistics, language can be impaired as severely as a complete inability to communicate verbally (either due to a larger language issue or just verbal motor apraxia). For others, language can be less noticeably affected. Prosody may be effected. Some autistics may exhibit monotonic speech, others may prefer to do voices, others still may have an unusual way with words. But this does not discount autistics who, through years of learning, have also come to blend fairly well, language-wise, into the world.
9. Social Issues This is the symptom which is often most obvious to onlookers or during interaction and the reason Autistic Spectrum Disorders have mistakenly been called “social disorders”. Issues in this area can range from very severe to very mild. Most autistics have difficulty in this area, although, as just stated, these difficulties can be very subtle in some and difficulty in this area is not a condemnation to lifelong solitude (many autistic people have friends, are married and have children). As a generalization, males tend to be more seriously effected in this area, especially those with Aspergers or High-Functioning Autism-- although that is not a steadfast rule to diagnose by.
10. Sleep Disturbances Many autistics have issues with sleep. Often it is a difficulty with sleep (i.e., getting to sleep) or staying asleep. This possibly has to do with some of the common serotonin dysfunction in ASDs. Sometimes it can be an OCD-like issue regarding repetitive thoughts and the inability to “wind down”.
11. Talent areas Many autistics seem to have splinter skills, talents, even prodigious talent areas. The areas most noted are: music, art, mathematics, languages, memory, visuo-spatial skills, writing, and analysis of information. Though this list is by no means exhaustive.
Medical Issues:
12. Autoimmune dysfunction More recent research supports the notion that a portion of ASDs may involve an autoimmune component. These immune components can include IgA Deficiency, IgG or IgM Deficiencies, Rheumatoid Arthritis, Hypothyroidism, gastrointestinal issues such as Celiac Disease, Irritable Bowel Syndrome, nondescript gluten allergies, casein allergy, lactose allergy, other sinus-related allergies, and asthma. As further research is performed, other related issues may continue to arise.
Common Comorbids:
13. Common comorbid conditions: ADHD/ADD, OCD, Depression, Central Auditory Processing Disorder, Learning Disabilities including Nonverbal Learning Disorder, Dyslexia and other disorders of written or verbal expression, Tourette's and other Tic Disorders, Bipolar Disorder, Psychosis (most often noted in the teenage or early adult years), Schizophrenia, Epilepsies, various apraxias, Prosopagnosia and other perceptual disorders (e.g., depth perception), various synaesthesias, and a host of others. For some, addictions can also be an issue.
Family Genetics:
14. Family genetics In most ASDs, it seems many genes are involved; therefore, it is likely these characteristics did not arise out of the blue. Like any other phenotypic expression, most often if a child exhibits some characteristic, members within his or her family will express similar characteristics. A “Broader Autistic Phenotype” can often be seen within these families (i.e., Shadow Syndromes). Although in females these expressions may be subtler due to a possible genetic suppression that female-sex-specific genetics may wield, so in looking back on the family the possibility of this sex-specific suppression needs to be kept in mind.
In addition, the only thing I think that has not been adressed are the emotional difficulties many with Aspergers or PDD -NOS seem to suffer from:
I wrote this awhile ago, it needs some help, but gets the idea across:
Quote:
The individual with ASD often exhibits inappropriate or abnormal emotional responses to various events encountered day to day. It is important to understand, that the spectrum of response may vary from a total unresponsiveness, to an over reaction or outburst with little provocation.
To clarify the “unresponsive reaction” the observer may notice that during events that typically should result in a response, the event seemingly “washes over” the ASD individual or that the ASD individual internalizes their emotions, appearing equally unresponsive, subdued, or in extreme cases; slips into a catatonic like state or falls asleep. It is important to distinguish, that this unresponsiveness will appear as either the event had no effect on the individual (they lack awareness) or it evokes a “shutdown”.
Conversely, with seemingly little provocation, the ASD individual may over react, or seem unable to control the intensity of their emotions. It may come across as an overly strong reaction, rage, a tantrum or a nervous breakdown. It is important to note, that this will also occur for other emotions other then anger, such as sadness.
Sometimes the ASD individual has a tendency of gravitating to one side of the spectrum more then the other. For those that tend to over react, they may appear to suffer from “Emotional Dysregulation”. For those who usually show no emotion, they may be labelled with:
Aexithymia (inability to verbally express emotion)
Apathy, (a lack of emotional reactivity)
or Emotional repression (subconscious but motivated denial of emotion).
Notwithstanding, the ASD individual may not always lean towards one pole or the other concerning emotional reactivity. Some may swing wildly between the two ends of the spectrum, unable to “regulate” their feelings. This may come across as “bipolar” to the untrained observer.
One important difference between this form of ASD Emotional Dysfunction, and Bipolar is that the response is emotionally driven as an inappropriate reaction to events, not an overall predominating mood or chemical imbalance. The individual is unlikely to exhibit periods of psychoses or extreme mania, although many may appear to be suffering with rapidly cycling “hypo-mania”. Great care needs to be taken in determining if the ASD individual actually suffers from Bipolar or not. Self diagnosis is not recommended, as co morbidity of BP and ASD has been reported. Make sure that the ASD individual with symptoms of BP is seen by a professional who is knowledgeable with both disorders.
roygerdodger
Veteran
Joined: 15 Jul 2006
Gender: Male
Posts: 1,527
Location: High Point, North Carolina
The students at my school are just usually dumb, immature gangster kids (even the special ed kids) and they often don't always notice me because they always too busy focusing on themselves.
I don't ever think my school doesn't know how to treat someone with autism because the staff are sometimes the same as the students.
I am in both special ed and mainstream classes, but it's total hell instead!
Both the students and teachers don't always notice me when I usually feeling sad about those things I said above and when I have trouble with stuff.
Me and my mom is trying to find a different high school for me to go to next year.
Here's a more updated version of that:
I told one teacher about my autism and we both agreed that my school doesn't really know how to treat students with autism and other kids with disabilties because both the students and teachers can be ignorant most of the time. My math class (which is a special ed class) is the worst because sometimes the teachers can make fun of us because of how we act and treat us like crap (maybe that's why the kids act so gangster in my class). Also, the teachers in that class can't always help it because we're slow most of the time.
PS: If this sounds like an inner-city school, well, it kinda is (even in a suburban neighborhood) and the reason I go to that school is because we have some redistricting thingy in our school district but I think the school board approve some sorta plan that allows people the option either to stay at their assigned school or go to another school nearby.
Well, the idea is to give them as much information as possible, paying attention to things that are likely to be a problem in class. It also shows that you've done your research, and aren't just trying to use it as an excuse for disruptive behaviour or laziness.
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