Is this the reality of life for many Aspies?

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Rainstorm5
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28 May 2008, 8:36 am

Interesting blog, but i doubt if any of it is real. It was dripping with sarcasm, so I have my doubts that the author is really HFA. Seems more like Dissociative Disorder [formerly known as Multiple Personality Disorder] to me, and yes, people with that particular disorder can 'go postal.' Funny site, though. Whoever's behind it is a brilliant writer. Blogs normally bore me, but I actually want to read more of this one.


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Zarathustra
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28 May 2008, 9:54 am

Just had some new posts come thru on the feeds. It's getting funnier [and more tradgic]. Why don't you ask the questions on the blog- u mite get an answer. I didn't tho.


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Anemone
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28 May 2008, 12:41 pm

Zarathustra wrote:
Nothing spectacular? A homeless, autistic genius, getting shot at? Left living in squalor, in one of the richest countries of the world? Not more than 10 miles from where the demi-god Prof Simon Baron-Cohen holds court at the Autism Research Centre? What counts as spectacular in your book? I take it you've got a roof over your head, and have never been on the wrong end of a gun..


Sounds just like home, except no shootings (at least not of autistic people - only gang-related), and no demi-gods down the road. Lots of squalour, though, lots of poverty, lots of indifference, in an even wealthier country.

Is he really homeless, though? He has a houseboat, does he not? With a door he can lock when he goes to sleep? Much safer than the actual street, even if it's a total dive. And he may not have any roaches, either. (Although I admit that my housing as bad as it is is much better than that. But still, a houseboat . . . it sounds like freedom to me.)

The bit about adverse reactions to drugs always makes me mad. I got pressured into taking Paxil back in the mid-90s and when I started to feel suicidal I stopped taking it, about 3 weeks in. My doctor was not impressed with me. I was not impressed with her back again, especially since she was a good doctor in so many ways.



Zarathustra
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28 May 2008, 2:58 pm

Freedom\'s nothing but nothing left to lose - Tom Paxton. Different Hells for Different People. My hell would be spending 3 days at a sales convention. But seriously, the situation in the UK where 88% of autistics are unemployed, is just not on


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krex
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28 May 2008, 3:24 pm

One of the reason I like it (besides a life long interest in these particular philosophers and humor) is that it bring to the surface the problem of adults on the spectrum who have been misdiagnosed(because therre was no DX) and wrongly medicated or institutionilized. It calls attention to something that many of the media and "experts" want to forget about...autism was not invented in 1993 or with the creation of vaccinations. We have been around trying to cope...some better then others..for a long time. Finding the missing piece of the puzzle will NEVER happen until this reality is acknowledged and becomes part of the discussion about autism. I think part of the "hushing up" of this reality is because social services might have to actually do something to help the adults who are still struggeling and apologize for the abuses they have so far suffered and acknowledge that some of them have actually done well without ABA therapy and their other magic bullets.....follow the money trail.


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Zarathustra
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28 May 2008, 4:41 pm

Thanks for that considered post. Denial of responsibility seems to be the usual response from Social Services. At a push the Community Mental Health Team will get involved, pushing drugs for anxiety and depression. And if you get stroppy they bring out the major tranquilizers. This is what they need to do - www.casacambs.webs.com . It\'s not difficult.


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krex
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28 May 2008, 5:10 pm

Zarathustra wrote:
Thanks for that considered post. Denial of responsibility seems to be the usual response from Social Services. At a push the Community Mental Health Team will get involved, pushing drugs for anxiety and depression. And if you get stroppy they bring out the major tranquilizers. This is what they need to do - www.casacambs.webs.com . It\'s not difficult.


I am afraid we are way behind you in the US. Even the guy that DXed me had no resource suggestion related to emploment..."We don't do that sort of thing"...he then gave me a referal to some one who wrote script for Ritalin 8O (He didn't say I was ADD/ADHD ? and said I could come in and "work on my relationship " with my BF...which I told him was fine..I just need a fricken job that doesn't mae me feel like my head is exploding....still looking and sinking fast.

Even the vocational rehab says that it is "most in need first"...I think ASers are going to have even more problems getting any help when the soldiers come home ....TBI/PTSD'missing a few limbs certainly puts me at the back of the line (not saying they shouldn't get services, just stating the reality of "limited resources" due to a broke economy.) Maybe Halaburton and some of the other benefactors of the war could share some of their profits with these guys ?


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Zarathustra
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28 May 2008, 5:27 pm

I\'m beginning to think the only way its going to happen is for us to do it ourselves. The mechanizm for this, still escapes me, but I think building esprit d\'corps [sp?] and focusing on real world action will help. Hell, just a thousand autistics outside the Whitehouse, weirding everybody out should get something done, if only to get rid off us.


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krex
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28 May 2008, 5:43 pm

Zarathustra wrote:
I\'m beginning to think the only way its going to happen is for us to do it ourselves. The mechanizm for this, still escapes me, but I think building esprit d\'corps [sp?] and focusing on real world action will help. Hell, just a thousand autistics outside the Whitehouse, weirding everybody out should get something done, if only to get rid off us.


QFT and LOL...Flapping for freedom...has a nice ring to it.

many of us are just finding out what AS is and how it applies to us. I suspect there are many others who still are not aware and a good PR could change that. Thank godness for the internet, that is the door that we never had before. Small steps, but I do think we can make some positive changes over time. "We are aspie hear us roar "


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sinsboldly
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29 May 2008, 2:04 am

Zarathustra wrote:
Freedom\'s nothing but nothing left to lose - Tom Paxton. Different Hells for Different People. My hell would be spending 3 days at a sales convention. But seriously, the situation in the UK where 88% of autistics are unemployed, is just not on


I have searched and searched for a quote or lyric from the venerable Tom Paxton, but I keep coming up with Chris Christopherson's "Freedom's just another word for nothing left to lose. (nothin' ain't worth nuthin' but it's free) made famous by his song "Me and Bobbie McGee" that Janis Joplin sang.

can you give me the lyric or quote from Uncle Tom Paxton??
thanks. . I am going nuts persevering on it.

Merle


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Zarathustra
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29 May 2008, 4:39 am

Opps, mis-quoted and sent you on a wild goose chase. It was me remembering Janis Joplin, singing M&BMac., from a very long time ago when I had no grey hair...


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sinsboldly
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29 May 2008, 11:23 am

Zarathustra wrote:
Opps, mis-quoted and sent you on a wild goose chase. It was me remembering Janis Joplin, singing M&BMac., from a very long time ago when I had no grey hair...


yeppers. . Chris Christopherson wrote that.
(sorry, :wink: it's a perseveration of mine :roll: .)



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29 May 2008, 11:47 am

krex, if you have office-type skills, I'd recommend signing up with a temp agency or two. As a temp, you're free from all the "office politics" crap, and you're not expected to make friends with everyone around you - odds are you'll be working somewhere else in a month or two anyway. It's worked for me, at any rate! :)

As for gathering a thousand autistics outside the White House, I'm not sure we can. Right now, I'm wearing my current favorite T-shirt - "ASPIES UNITE! Oh right, like we're going to hold hands."


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29 May 2008, 11:53 am

Zarathustra wrote:
Thanks for that considered post. Denial of responsibility seems to be the usual response from Social Services. At a push the Community Mental Health Team will get involved, pushing drugs for anxiety and depression. And if you get stroppy they bring out the major tranquilizers. This is what they need to do - www.casacambs.webs.com . It\'s not difficult.


I think over here they don't even have a clue how many there are of us, although it would be pretty easy to get a count of how many of us are on the dole, at least.

Quote:
cAsA believes that, particularly in respect for High Functioning / Asperger’s Syndrome, it is all ‘gap’ and no ‘services’.


That sounds about right. And you try to explain to people what you need and they don't get it. Glad someone's trying to do something.



Zarathustra
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29 May 2008, 1:24 pm

sinsboldly, perseveration, obsession, pendantry, it\'s all still rock \'n\' roll to me. It should be #1 on the list of autistic positives. Anem, cAsA\'s going to a public meeting next week with the local MP and other local worthies to discuss adult services. Someone should drag Socrates along to rant at them, and display his \"hitting people\" issues. He\'s Neurodiversity\'s answer to John Best.


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Zarathustra
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29 May 2008, 1:24 pm

sinsboldly, perseveration, obsession, pendantry, it\'s all still rock \'n\' roll to me. It should be #1 on the list of autistic positives. Anem, cAsA\'s going to a public meeting next week with the local MP and other local worthies to discuss adult services. Someone should drag Socrates along to rant at them, and display his \"hitting people\" issues. He\'s Neurodiversity\'s answer to John Best.


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