Misdiagnosis and dual diagnoses of gifted children & adu

Page 2 of 2 [ 30 posts ]  Go to page Previous  1, 2

Sora
Veteran
Veteran

User avatar

Joined: 15 Sep 2006
Gender: Female
Posts: 4,906
Location: Europe

23 Apr 2009, 9:39 am

TPE2 wrote:
- He will not have "therapists" trying to "treat"/brainwash him


That makes it sound as if AS doesn't need therapy though.

Maybe a few people who might or might not be diagnosed don't need it, but a whole lot of people with AS need and improve by it.

Therapies are necessary. Yes, there are people with AS who don't need them. But if someone never needed help or treatment, they shouldn't be diagnosed as having a disorder but should just suck it up and stand up for themselves.

There's some new trend to give people who're different but otherwise fine a dx of a disorder. Which is totally unnecessary and counter-productive in my opinion because it neither helps to raise awareness for the real disorders nor does it encourage people to stop trying to identify with a group or a label but come to think of themselves as different, unique and good.


_________________
Autism + ADHD
______
The trouble with having an open mind, of course, is that people will insist on coming along and trying to put things in it. Terry Pratchett


kittenmeow
Toucan
Toucan

User avatar

Joined: 18 Nov 2008
Age: 44
Gender: Female
Posts: 295

23 Apr 2009, 11:38 am

I'm sorry but the whole lack of empathy factor regarding people with autism needs to be re-examined. There are tons of parents that have mentioned their child displaying empathy. Some parents thought their child wasn't autistic because of this factor and not being aloof.

I have empathy. I also have alot of autistic traits. As I grew up and was put in various situations that weren't very fortunate, I've gained empathy. I've found alot of people who aren't autistic that have a lack of empathy. Why is there a focus on autistics and lack of empathy which is not always correct?

Maybe the lack of empathy described with autism isn't the same lack of empathy displayed with others. There are those that have no empathy towards situations but express it with no truth behind it. They aren't autistic.

Some people with autism also have gifts in areas. What I don't understand however is calling it special interests because I sure do see people who are only good with certain areas like sports but aren't great achademically but manage to get by with passing grades because their coaches told the teachers to pass their favorite. Is that a special interest?

What makes an interest special? Is it more narrow than someone who only likes basketball?

Then we hear about the term "idiot savant" which is now phasing into autistic savant. So being autistic and being brilliant with a narrow field means you get a complete different word for genius.

I'm sure there are reasons for that others may come up with to keep it seperated but if you look at history, there were a mixture of aloof geniuses and sociable ones.

I guess really what I'm trying to say is, not all people with autism are cold like the media describes. I'm fed up with all of these stereotypes that have been around forever tossed out to the public which also leads to parents not picking it up on time or parents noticing their child has autistic traits but can't be because the child on the tv was more aloof and spinning plates.

It is true that some people with autism may appear to have very little empathy but appearance can decieve and if you were to ask the majority of parents or autistics if they felt their child or themselves have a lack of empathy, you would probably get alot of no's.

Theory of mind? Seriously, who is a mind reader? I challenge all of these people that claim they can read minds to drop the you're always right about people and test just how right you are because I've heard alot of people crying over false impressions of people in social situations. When people drop that facade, they may actually look deeper than that big chicklet toothed grin to find the truth.

When it comes to me personally, I don't rely on smiles, I don't rely on body language. I do rely more on actions but there are times when it comes to the more dangerous type of person that instant reaction is valid. However, me being misjudged all throughout my life has prompted me to have empathy in that area so I wait for the person to show consistantly what kind of person they are based on actions and words.

If you think you are just gifted and perhaps were wrongly diagnosed, challenge whoever diagnosed you and others who claim you have AS.

If it's true that gifted peopel are being diagnosed but have very little in common with autism traits then you have a valid concern. Psychiatrists and psychologists aren't always right.



LipstickKiller wrote:
Has anyone else read it? It argues that too many people who receive diagnoses, including AS, are really just gifted people who are out of their element. The descriptions of people with AS as compared to gifted people include:

(for aspies)"learning is primarily in the form of memorizing facts but seldom being able to apply them"

"gifted children /.../will know how others see them; children with Asperger's do not."

"When a child's lack of empathy is seen in some situations but not in others the likelihood of AS is substantially reduced./.../A gifted child often shows remarkable empathy /..../ toward those who are less fortunate or who are hurting."

"in working with children who suffer from AS/.../one must break down every social behaviour into its smallest components. For example, it may be necessary to show exactly how close one typically stands when having a conversation..."

"Children without AS /.../ will generally respond eagerly to suggestions and strategies that will improve their acceptability to peers"


under features incompatible with AS (in children) are listed among others:

-lacks motor clumsiness
-is comfortable with abstract ideas
-speech patterns and humor are more like that of adults
-readily understands /.../ idioms like "don't jump the gun"

If this is true than I definitely don't have AS. But quite a lot of it seems to contradict other things I've read. What are your thoughts?



UnusualSuspect
Snowy Owl
Snowy Owl

User avatar

Joined: 17 Mar 2008
Age: 87
Gender: Female
Posts: 128
Location: United States

23 Apr 2009, 1:28 pm

"Then we hear about the term "idiot savant" which is now phasing into autistic savant. So being autistic and being brilliant with a narrow field means you get a complete different word for genius."

We really need to get rid of the idea that autistic savants are geniuses. They aren't. A genius is someone who contributes something new and exceptional to a field. Savants may have unusual specialized talents and be extraordinary learners and/or copiers, but I've never heard of one that created anything that was considered important to the advancement of any field of endeavor.



sunshower
Veteran
Veteran

User avatar

Joined: 17 Aug 2006
Age: 125
Gender: Female
Posts: 3,985

23 Apr 2009, 2:01 pm

LipstickKiller wrote:
Has anyone else read it? It argues that too many people who receive diagnoses, including AS, are really just gifted people who are out of their element. The descriptions of people with AS as compared to gifted people include:

(for aspies)"learning is primarily in the form of memorizing facts but seldom being able to apply them"

"gifted children /.../will know how others see them; children with Asperger's do not."

"When a child's lack of empathy is seen in some situations but not in others the likelihood of AS is substantially reduced./.../A gifted child often shows remarkable empathy /..../ toward those who are less fortunate or who are hurting."

"in working with children who suffer from AS/.../one must break down every social behaviour into its smallest components. For example, it may be necessary to show exactly how close one typically stands when having a conversation..."

"Children without AS /.../ will generally respond eagerly to suggestions and strategies that will improve their acceptability to peers"


under features incompatible with AS (in children) are listed among others:

-lacks motor clumsiness
-is comfortable with abstract ideas
-speech patterns and humor are more like that of adults
-readily understands /.../ idioms like "don't jump the gun"

If this is true than I definitely don't have AS. But quite a lot of it seems to contradict other things I've read. What are your thoughts?


Well, I've bolded the ones that apply to me. I think it sounds like a load of bull though. As for responding positively to suggestions, that entirely depends on whether the suggestions are helpful advice about how to stand, talk, show the correct body language and politeness, or they are forceful suggestions on ways the AS person can attempt to conform and sacrifice their unique AS traits in order to be "one with the crowd" "another sheep in the flock".


_________________
Into the dark...


kittenmeow
Toucan
Toucan

User avatar

Joined: 18 Nov 2008
Age: 44
Gender: Female
Posts: 295

23 Apr 2009, 4:43 pm

UnusualSuspect wrote:
"Then we hear about the term "idiot savant" which is now phasing into autistic savant. So being autistic and being brilliant with a narrow field means you get a complete different word for genius."

We really need to get rid of the idea that autistic savants are geniuses. They aren't. A genius is someone who contributes something new and exceptional to a field. Savants may have unusual specialized talents and be extraordinary learners and/or copiers, but I've never heard of one that created anything that was considered important to the advancement of any field of endeavor.


I thik the labels have done that job already. "Idiot savant"

Also, if someone is a genius but isn't put in the spotlight, doesn't get the chance to contribute their works or have them stolen by someone else who wants the attention and money, is that person not really a genius to you?



JadedMantis
Snowy Owl
Snowy Owl

User avatar

Joined: 1 Apr 2009
Age: 52
Gender: Male
Posts: 146
Location: South Africa

24 Apr 2009, 7:48 am

irishwhistle wrote:
The one that really cheese me off, though, is the suggestion that anyone can know what others think of them.


If I verbally tell you what I think of you, then surely you will know. All this suggestion refers to is the fact that some(most?) people non-verbally "tell" and others "read/hear" this information. So they don't really know what the other is thinking but rather what the other is communicating via nonverbal means.

That is where AS can fall over both ways as we do not "hear" the other person's nonverbal communication and at the same time we do not "speak" the same nonverbal language back to them. Unfortunately we have the same language elements as other people (same body structures) so we SEEM to be "saying" something to them and this leads to misunderstanding.

The fact is that people tend to communicate how they feel, but not via verbal means. Therefore you are supposed to know how they feel via this nonverbal communication. Of course, just like in verbal communication it is possible for people to lie using the nonverbal aspects and some are better at this than others. In the end it is just another (apparently large) part of communication.

Of course, this is all based on the theory, as I miss most of this in the wild, although I can identify at least some of this in a slowed down laboratory environment.



UnusualSuspect
Snowy Owl
Snowy Owl

User avatar

Joined: 17 Mar 2008
Age: 87
Gender: Female
Posts: 128
Location: United States

24 Apr 2009, 8:30 am

kittenmeow wrote:
UnusualSuspect wrote:
snip

We really need to get rid of the idea that autistic savants are geniuses. They aren't. A genius is someone who contributes something new and exceptional to a field. Savants may have unusual specialized talents and be extraordinary learners and/or copiers, but I've never heard of one that created anything that was considered important to the advancement of any field of endeavor.


I thik the labels have done that job already. "Idiot savant"

Also, if someone is a genius but isn't put in the spotlight, doesn't get the chance to contribute their works or have them stolen by someone else who wants the attention and money, is that person not really a genius to you?


No, that person is not a genius. You're confusing IQ and potential ability, with genius. A person with an IQ of 200 isn't a genius unless he produces work that the experts in his fieid agree changes or advances it significantly.

It's a lovely myth, that brilliant people have had their work stolen by lesser minds. If you aren't capable of producing the work, you're not capable of defending its legitimacy or expanding on it. It is--once in a long while--true that somebody's work doesn't get noticed until much later in their life or even after their death, and the person is then declared a genius. But it also serves as self-justification for people who consider themselves geniuses and whose work is either faulty or totally off the wall.

You missed the point of the original quote. "Autistic savant" is replacing "idiot savant," partly because it serves those who want to believe in autistic genius.



Danielismyname
Veteran
Veteran

User avatar

Joined: 2 Apr 2007
Age: 44
Gender: Male
Posts: 8,565

24 Apr 2009, 8:34 am

Lorna Wing touched on this [in her paper that defined AS as it is today]:

Quote:
All the features that characterise Asperger syndrome can be found in varying degrees in the normal population. People differ in their levels of skill in social interaction and in their ability to read nonverbal social cues. There is an equally wide distribution in motor skills. Many who are capable and independent as adults have special interests that they pursue with marked enthusiasm. Collecting objects such as stamps, old glass bottles, or railway engine numbers are socially accepted hobbies. Asperger (1979) pointed out that the capacity to withdraw into an inner world of one's own special interests is available in a greater or lesser measure to all human beings. He emphasised that this ability has to be present to marked extent in those who are creative artists or scientists. The difference between someone with Asperger syndrome and the normal person who has a complex inner world is that the latter does take part appropriately in two-way social interaction at times, while the former does not. Also, the normal person, however elaborate his inner world, is influenced by his social experiences, whereas the person with Asperger syndrome seems cut off from the effects of outside contacts.

A number of normal adults have outstandingly good rote memories and even retain eidetic imagery into adult life. Pedantic speech and a tendency to take things literally can also be found in normal people.

It is possible that some people could be classified as suffering from Asperger syndrome because they are at the extreme end of the normal continuum on all these features. In others, one particular aspect may be so marked that it affects the whole of their functioning. The man described by Luria (1965), whose visual memories of objects and events were so vivid and so permanent that they interfered with his comprehension of their significance, seemed to have behaved not unlike someone with Asperger syndrome. Unfortunately, Luria did not give enough details to allow a diagnosis to be made.

Even though Asperger syndrome does appear to merge into the normal continuum, there are many cases in whom the problems are so marked that the suggestion of a distinct pathology seems a more plausible explanation than a variant of normality.



OddDuckNash99
Veteran
Veteran

User avatar

Joined: 15 Nov 2006
Gender: Female
Posts: 2,562

24 Apr 2009, 12:35 pm

Yes, I've read it. I bought it in 2005 for two reasons: it seemed interesting and I had recently heard of AS and wondered if I might have it. I now hate the book. It described AS terribly. It said something about how, if you can have friends while being in a club or talking about your interests, you can't have AS. That's totally wrong. So, after reading the book, I decided that I didn't have AS and didn't pursue the idea any further. I got a diagnosis five months later... So, I hold this book in sort of high contempt. I think that, yes, some bright children are diagnosed when they don't really have AS or another disorder, but more likely, many people with high IQ have AS, OCD, etc. At any rate, I don't recommend the book.
-OddDuckNash99-


_________________
Helinger: Now, what do you see, John?
Nash: Recognition...
Helinger: Well, try seeing accomplishment!
Nash: Is there a difference?


TPE2
Veteran
Veteran

User avatar

Joined: 20 Oct 2008
Gender: Male
Posts: 1,461

24 Apr 2009, 1:47 pm

deleted post



Last edited by TPE2 on 24 Apr 2009, 1:48 pm, edited 1 time in total.

LipstickKiller
Velociraptor
Velociraptor

User avatar

Joined: 1 Apr 2009
Age: 43
Gender: Female
Posts: 457

24 Apr 2009, 1:47 pm

I agree that the book is bad. I just wanted to check others' opinions, but my impression was that the authors are trying to promote "gifted" people as some kind of super-breed of people who are ingenius and simply misunderstood and thus labelled with various conditions although they're really above and beyond any such terms.

But maybe I'm just paranoid.

However, I did discuss the book with my father, who's a psychiatrist, and he said they're basically abusing terminology and criteria in a very unscientific way, and that alone should tell me not to listen.

Thank you everyone for your input. Even though I'm not diagnosed myself I was offended on behalf of my son by this description of AS.



kittenmeow
Toucan
Toucan

User avatar

Joined: 18 Nov 2008
Age: 44
Gender: Female
Posts: 295

24 Apr 2009, 3:43 pm

That is just your opinion. If you think most of what you wrote as fact then you're just going to argue to try to pass it off as facts.

A person can be a genius in several ways. Some people only admire one form and dismiss all others. Some people are just jealous and hate anyone who can do something well and will dismiss them and bring what they can't do to mask their own insecurities.

UnusualSuspect wrote:
kittenmeow wrote:
UnusualSuspect wrote:
snip

We really need to get rid of the idea that autistic savants are geniuses. They aren't. A genius is someone who contributes something new and exceptional to a field. Savants may have unusual specialized talents and be extraordinary learners and/or copiers, but I've never heard of one that created anything that was considered important to the advancement of any field of endeavor.


I thik the labels have done that job already. "Idiot savant"

Also, if someone is a genius but isn't put in the spotlight, doesn't get the chance to contribute their works or have them stolen by someone else who wants the attention and money, is that person not really a genius to you?


No, that person is not a genius. You're confusing IQ and potential ability, with genius. A person with an IQ of 200 isn't a genius unless he produces work that the experts in his fieid agree changes or advances it significantly.

It's a lovely myth, that brilliant people have had their work stolen by lesser minds. If you aren't capable of producing the work, you're not capable of defending its legitimacy or expanding on it. It is--once in a long while--true that somebody's work doesn't get noticed until much later in their life or even after their death, and the person is then declared a genius. But it also serves as self-justification for people who consider themselves geniuses and whose work is either faulty or totally off the wall.

You missed the point of the original quote. "Autistic savant" is replacing "idiot savant," partly because it serves those who want to believe in autistic genius.



cubolazaruka
Butterfly
Butterfly

User avatar

Joined: 13 Aug 2013
Gender: Female
Posts: 15

20 Mar 2014, 9:16 am

I understand metaphorical language and am sufficiently comfortable with abstract ideas to get into philosophical debates and self-study research level abstract mathematics (currently a second year undergraduate, but I like to read ahead). I do not consider myself to have narrow interests; I am also into all areas of science and like computing, music and foreign languages too.

However I have motor clumsiness, social anxiety, difficulty with eye contact and extreme hypersensitivities.

So I'm not sure whether or not I was misdiagnosed but, either way, the "support" that I recieved was a complete waste of money . I had a lot of difficulties in school but standard autism interventions did not help me at all and I suspect that my diagnosis was one of the factors that led to my school refusing a proposal from a teacher to let me grade skip (the only intervention which would have actually helped me).



Cash__
Veteran
Veteran

User avatar

Joined: 6 Nov 2010
Age: 56
Gender: Male
Posts: 1,390
Location: Missouri

20 Mar 2014, 3:53 pm

My brother was labeled gifted and not ASD. The difference between us? He may struggle socially in a regular setting due to his giftedness, but if you put him in a group of other gifted kids, he is very socially capable and understands the dynamics. Whereas wherever you put me; group of regular kids, group of gifted kids, group of other ASD people, I just don't get it.