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LittleBlackCat
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13 Jun 2015, 3:45 pm

I am not comfortable self-diagnosing so have the "not sure whether I have it or not" option selected on my profile. Although I relate very strongly to the autism spectrum as I understand it, I think that a substantial amount of training, experience and an 'outsider' viewpoint are necessary for diagnosis.

I have different levels of comfort with different self-diagnoses. Where someone has significant difficulties with communication, interaction and obsessions, for example, and finds autism gives them a narrative for the first time to coherently explain what they are struggling with, I can understand why they might choose to self-diagnose. However, there do seem to be people in the world who choose self-diagnosis over professional diagnosis "because their autism isn't causing them any great problems" (or words to this effect) and I can't help questioning whether those people really have autism if it is having so little impact on their functioning.

That said, professionals can also make mistakes. I would struggle to accept a diagnosis of autism (or confirmation of its absence) from someone unless they had significant experience of diagnosing adults and could provide a clear rationale for their decision.



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13 Jun 2015, 3:51 pm

LittleBlackCat wrote:
I am not comfortable self-diagnosing so have the "not sure whether I have it or not" option selected on my profile. Although I relate very strongly to the autism spectrum as I understand it, I think that a substantial amount of training, experience and an 'outsider' viewpoint are necessary for diagnosis.

I have different levels of comfort with different self-diagnoses. Where someone has significant difficulties with communication, interaction and obsessions, for example, and finds autism gives them a narrative for the first time to coherently explain what they are struggling with, I can understand why they might choose to self-diagnose. However, there do seem to be people in the world who choose self-diagnosis over professional diagnosis "because their autism isn't causing them any great problems" (or words to this effect) and I can't help questioning whether those people really have autism if it is having so little impact on their functioning.

That said, professionals can also make mistakes. I would struggle to accept a diagnosis of autism (or confirmation of its absence) from someone unless they had significant experience of diagnosing adults and could provide a clear rationale for their decision.


This is a very wise and relatable post.



LittleBlackCat
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13 Jun 2015, 4:00 pm

Thank you.



Facebook213
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13 Jun 2015, 4:07 pm

Just another american selfer.
I don't have money to go to the doctor for anything. Since this site is full of people who have communication issues, I don't take offense if someone seems to be insulting selfers. And really, even if they are deliberately being spiteful, why would I worry about it?
But I don't suspect spite.
I also think that NT people sometimes selfdiagnosis in a casual way, like how people say they're OCD. Again, they are being casual. They say they have asd, but what they mean is they are a little scatterbrained. Don't take their words at face value, especially not in a hurt way. That's just reinforcing the stereotype. Peace, just another anecdote. :o



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13 Jun 2015, 4:27 pm

LittleBlackCat wrote:
Where someone has significant difficulties with communication, interaction and obsessions, for example, and finds autism gives them a narrative for the first time to coherently explain what they are struggling with, I can understand why they might choose to self-diagnose. However, there do seem to be people in the world who choose self-diagnosis over professional diagnosis "because their autism isn't causing them any great problems" (or words to this effect) and I can't help questioning whether those people really have autism if it is having so little impact on their functioning.


The same "severity" of Autism can vary in how "inhibiting" it is depending upon circumstances/environment. I was bullied /outsider/grades below what they should be during my school years. From learning skills to the proper people and work environment in my 20's and early 30's I was so close to "normal" I would not be diagnosed even with the loosest autism definition today. I would have been a prime example of those who say you can "recover" or be "cured" of autism. I had a good job, got along with co-workers, went out to bars and clubs, talked sports with guys etc. Then as the work world became less accepting of "introverts" and "difference", the economy tanked, decades of "pretending to be normal" took its toll and aging caused autistic burnout so by my 50's my clinician with 30 years ASD experience in varying demographics told me she had not trouble diagnosing me and said I had "moderate severe" Aspergers and always did.

I view myself as very lucky to find this clinician. That is really the main difference between me and those who had a much harder route to finding an explanation of autism. I admire their fortitude under difficult circumstances


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13 Jun 2015, 5:29 pm

I knew a burned out Engineer who worked in Silicon Valley around 1979. He was a ham operator and was quite proud of getting one of the very first digital multimeter kits. He was working as a hotel clerk out in the middle of nowhere--total population within a 100 mile radius of perhaps 20,000 people--not a single traffic light!

He somehow knew I'd be an engineer and gave me fair warning--some advice about folks would get laid off.



LittleBlackCat
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18 Jun 2015, 6:32 pm

I feel the need to clarify something from my previous post. I did not mean to imply that autistic people are not capable of success in any endeavour. I do not believe that. However, I do think the construct of what autism is, its "symptoms" for want of a better word, require there to be some difficulties in certain areas; so if there really aren't any difficulties at all it seems more likely to me that someone has some traits in common rather than being on the spectrum. It sounds similar to an asymptomatic, undiagnosed person claiming to have cancer - not impossible but highly unlikely.

I am certainly not going to deny anyone's personal experience. If you say you had a period where you experienced no problems at all I have to take that at face value as being an exception to the rule. However one has to wonder why people more generally would seek a medical explanation for something that is not causing some degree of difficulty in their lives.

My own personal experience and that of the neuro diverse people I know in real life is that our differences have caused us substantial difficulties (although we have also achieved some successes) and it is these that have motivated us to seek explanations and treatment.



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18 Jun 2015, 7:52 pm

I think a lot of people need the autism label for emotional or identity purposes.
Otherwise, saying that one has autistic traits would be a recognition of one's traits in an autism context too.
For some people, the label seems to require a lot of upkeep in terms of fitting themselves to autistic traits and continuing to do so to reinforce what they believe about themselves to themselves and others.


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18 Jun 2015, 8:04 pm

I think you can be highly autistic and have minimal issues if you are lucky enough to find a job that matches your special interests and talents--and do you job well enough that your employer will overlook any social issues that you may have. Getting paid a lot can make it relatively easy to avoid situations that would cause meltdowns for the less fortunate. I wouldn't have known, except for a spouse who wanted to know why is was different--and she had a background that allowed her to easily rule out the common psychological disorders that were her specialty.



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20 Jun 2015, 5:37 am

B19 wrote:
Anyone familiar with the meaning of "patronising"?

It basically means to take a superior, condescending attitude of superiority in a deliberate attempt to belittle others.

And this thread has plenty of examples, as these threads always do.

Wrong Planet was set up by Alex to be an inclusive, rather than an alienating site; it is not just for the formally diagnosed. It is not just for those young enough to have grown up with diagnostic facilities; it is none of these things - and if that is what it is becoming, a patroniser's paradise - it is not for me. The dominant theme in this thread (and all the others like it) saddens me in its patronising insensitivity. So the jihad is back on, is it? We just don't need it here.



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20 Jun 2015, 6:27 am

btbnnyr wrote:
I don't believe in the validity of the process of self-diagnosis, and I consider saying that one is autistic without official diagnosis to be misrepresentation.


Your mistake is that you are substituting diagnosis for cause.
People are Autistic from childhood, possibly even the day they are born, not the day they are formally diagnosed.

A diagnosed case of Aspergers syndrome, means that the person has been through a formal(though not infallible) process of discovery.
An self diagnosed case of Aspergers syndrome, means that the person has been through an informal(and certainly not infallible) process of discovery.

Now for things like Welfare benefits yes government should insist on the higher standard. That's civics and good responsible governance.
But diagnosis is not reality.

A person without Aspergers doesn't magically obtain Aspergers syndrome if he is formally diagnosed.
A person with Aspergers syndrome is not magically cured by a failure to diagnose.

Therefore if a person with Aspergers Syndrome claims (through an informal process) to have Aspergers Syndrome, by your definition, this man is misrepresenting himself by claiming to suffer from what he actually suffers from.

Can you not see how absurd that is?



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20 Jun 2015, 6:32 am

SpiceWolf wrote:
Therefore if a person with Aspergers Syndrome claims (through an informal process) to have Aspergers Syndrome, by your definition, this man is misrepresenting himself by claiming to suffer from what he actually suffers from.

Can you not see how absurd that is?


You forgot the flip-side, where a person without AS claims to have AS, whether intentionally (unlikely) or not, that is misrepresentation.

Personally I no longer care for spreading misrepresentation in a localized community such as this, so long as that doesn't expand into posters' real lives (i.e. incorrectly interpreting behaviour as autistic and explaining this to others IRL).


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20 Jun 2015, 6:41 am

SpiceWolf wrote:
btbnnyr wrote:
I don't believe in the validity of the process of self-diagnosis, and I consider saying that one is autistic without official diagnosis to be misrepresentation.


Your mistake is that you are substituting diagnosis for cause.
People are Autistic from childhood, possibly even the day they are born, not the day they are formally diagnosed.

A diagnosed case of Aspergers syndrome, means that the person has been through a formal(though not infallible) process of discovery.
An self diagnosed case of Aspergers syndrome, means that the person has been through an informal(and certainly not infallible) process of discovery.

Now for things like Welfare benefits yes government should insist on the higher standard. That's civics and good responsible governance.
But diagnosis is not reality.

A person without Aspergers doesn't magically obtain Aspergers syndrome if he is formally diagnosed.
A person with Aspergers syndrome is not magically cured by a failure to diagnose.

Therefore if a person with Aspergers Syndrome claims (through an informal process) to have Aspergers Syndrome, by your definition, this man is misrepresenting himself by claiming to suffer from what he actually suffers from.

Can you not see how absurd that is?


A person without a medical license doesn't magically obtain one just because he reads about AS and feels he has it.

You get that?


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20 Jun 2015, 6:50 am

Norny wrote:
You forgot the flip-side, where a person without AS claims to have AS, whether intentionally (unlikely) or not, that is misrepresentation.


Ofcourse it is, but it misses the whole point, diagnosis is a recognition of reality, not a creator of reality.

I don't think anyone has argued that someone who doesn't have it, claiming to have it, is a correct diagnosis, since by definition it would not be a correct diagnosis, what was so strange about the quoted persons definition, was that someone who *does* have the condition, claiming to have to have the condition, was (by their reasoning) a misrepresentation.



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20 Jun 2015, 6:56 am

One of the main reasons for many Americans self-diagnosing appears to be the considerable cost of getting a formal diagnosis in the USA. Not everyone can afford this, so I think we should be careful not to condemn them for not taking the clinical route. And as other people here have said, they are on a journey of self-discovery, as we all are. For some, part of this journey involves talking publicly about what they believe is their autism.

In the UK we have the luxury of being able to get a free diagnosis through the NHS. It's not always as accurate as it should be, but you can get a second opinion, also at no personal cost. So I have never 'self-diagnosed', I have simply wondered to myself. My GP felt that I had enough 'autistic traits' (whatever they are) to warrant a formal diagnosis, which will probably turn out to be BAP.

Not everyone is fortunate enough to have free access to a clinical psychologist.



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20 Jun 2015, 7:00 am

OliveOilMom wrote:
[
A person without a medical license doesn't magically obtain one just because he reads about AS and feels he has it.
You get that?


Naturally, healthcare licenses are granted by a government board.
However once again, a license is a reflection of reality, not a creator of reality.
What makes a person safe to practice, is the knowledge and experience they have.
Granting someone without that knowledge a license to practice would not give them competence.
And diagnosing someone does not give them Aspergers. They already had it.