What is autism to you: disability or difference?
Both.
Not all differences are disabilities; but all disabilities are differences.
Having a disability does change your life--sometimes only a little; sometimes profoundly. Autism is a disability that affects your brain, and that means it affects your personality and identity to a greater degree than many disabilities do.
To me, autism is foundational to who I am. Without it, there'd be nothing but a neurotypical stranger. So I treasure my autism like any other aspect of myself.
Disability is not automatically a negative thing, however self-evidently bad the world seems to think it is. They seem to assume that a disabled person is just like a non-disabled one, only with some impairment; but that's not so. A blind person is not the same thing as a blindfolded seeing person; similarly, the experience of autism for an autistic person is not the same thing as the experience of autism would be for someone used to being NT. To an NT, being autistic seems scary and foreign; but for me, it is my everyday, normal life. If an NT assumes that it must be scary and foreign to me because that's what it seems like to them, then they come to the incorrect conclusion that my life is way worse than theirs. It's not. It's just my life--different but not inferior.
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Verdandi
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I wanted to write something very similar to this, and I'll add that the statements that AS is not a disability makes it harder for me to relate to a lot of people here. Also, everything Callista said.
I don't really hold it against them, though. I am only really annoyed at the people that insist it's not a disability for anyone.
I don't really buy the argument that it's not really a disability because in an ideal society we'd be fully accommodated. Since we don't live in one of those, it's not really relevant (although it is nice to think about). This doesn't annoy me, I just disagree.
I actually find it irritating when people say we're not disabled. Because we are. And because denying disability tends to be caused by opinions that are ableist at worst and not understanding of what disability is at best. If you want to value your particular condition, whatever it is, it doesn't require distancing yourself from disability. It would only require that if you believed that disability is inherently and totally awful, and it isn't. (Degrees of awfulness vary and are often dependent on factors well beyond the particular body configuration.)
I guess I'm more equipped to see this because I'm disabled in a large number of ways. How I react to each of those ways depends on a lot of different factors. There are things that literally do nothing but cause pain, others are just an inconvenience, others have positive sides to them (but may also be painful and inconvenient), others I see almost entirely as positive.
Autism is a word for the parts of my mind that in some ways I value the most, and yet those exact parts of my mind cause me extreme discomfort and debilitation at the same time. But the discomfort part isn't what makes me disabled, it could be entirely positive and still make me disabled. But I just don't want anyone to think that my valuing being autistic is because I don't experience any serious effects. I actually experience effects that (based on polling at least), very few people here experience. The bad and the good are inseparable, two sides of the same coin. You couldn't separate them because the bad comes from the same thing that makes the good and the good comes from the same thing that makes the bad.
Additionally, I actually don't see the bad the same way a lot of people do either. I don't see myself as uniquely suffering, I don't have the energy to waste on self-pity. I see disability as an integral part of the human experience, and I consider suffering an integral part of the human experience as well. This doesn't make me specially cursed in some way, it's profoundly ordinary. Most human beings will be disabled if they don't die young. This is absolutely part of humanity and not some special separate caste that experiences unspeakable suffering. Any suffering we experience is part of the human experience, I don't... I don't know how to describe it, I just don't see the parts that involve suffering as... the way most people would see those parts. Humanity is richly varied and even the bad parts are part of our variation from each other. I don't consider the suffering involved in being disabled, as separate from the suffering that nondisabled people routinely endure. That's what makes me different from many nondisabled people who do see disability as a unique form of suffering (whether it actually causes suffering or not), and also different from some disabled people who totally buy into that view and feel sorry for themselves. It's hard to feel sorry for oneself when you know you're just one small part of the larger pattern.
On a purely biological level, it is a difference.
When you factor in environment and society, it is a disability when it comes to certain activities/situations (but not all, of course).
Many people say that it is not a disability because if society was structured slightly differently, or if neurodiversity was better understood and appreciated, we would not have as much difficulty. However, it is not, and so the biological difference that we possess can be a hindrance. This is all a "disability" is to me; a condition that limits a person's ability to participate in certain activities.
This is true, I feel it's not a disability because that's too much of a generalisation. Anything can be a disability in a certain context eg nts are disabled at remembering things compared to me however I'm disabled at socialising with other NTs compared to them.
If the question said is AS a disability in the context of being a happy and productive member of modern society and easily finding emotional fulfilment with other people I would say yes it certainly is a disability but in general I would say it is not.
LuxoJr
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Actually the view that in an ideal society we would be accommodated makes me think it is disability, not that it isn't. Disability always involves an interaction between body, environment, and society. The idea that societal inaccessibility or impression makes something NOT disability is alien to me.
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Verdandi
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Yes, this. It is the basis of the social model of disability, which makes it very strange to me when people try to use it to say the opposite.
Last edited by Verdandi on 21 Apr 2011, 1:08 pm, edited 1 time in total.
Both because til a few years ago I didn't have a diagnosis or a name for what I was, what I am. I knew I was different but not why which made things difficult.
I voted both because while it is a difference as I knew all along it is also a disability.
Being different is not the same as being disabled.
Growing up thought of myself as different but otherwise 'normal'. I did not think that I was disabled. I thought I was 'normal', difference than the other kids but still within 'normal' range was how I saw myself.
As I got older things got harder and my goal in life for some years was to answer the question 'what's wrong with me!' And the idea that I could be disabled in some way rather than just different started coming up.
As a kid people were always looking out for me, as I got older I was expected to look after myself which at 26 years I'm still working on being able to dress, feed and keep myself clean without having to be told(as well as doing homework and looking for a job).
Example:
Playing by the back fence by myself all alone and happy as a kid could be because I'm very imaginative and don't need other people to be entertained. That's a way I'm different than the kids that played in groups and had to be with at least one other person at recess.(I was really like this as a kid though I did play with my one friend and sometimes one other kid often role playing with toys - often animal toys).
Example:
Breaking down crying in frustration over which shirt to wear after going over every pro and con I can think of falls under disability I say.(This exact thing hasn't happened that I recall but I'm bad at remembering exact situations when asked for examples of my problems. I have gotten better at not breaking down completely over little things to this degree I'm still terrible at making, what should be, simple decisions many times. This doesn't apply nearly as much to decisions I'm sure about and less so things that are routine - then I just put it off til 'later' which comes way too soon most days).
In short, I believe (as I always have) that I am different (than any other person on the planet[ie. there is no normal]) and I am disabled.
But that's me others will have their own opinions.
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I am female and was diagnosed on 12/30/11 with PDD-NOS, which overturned my previous not-quite-a-diagnosis of Asperger's Disorder from 2010
It's both, but I think that only the individual traits of AS can be considered disordered rather than the whole thing. It all depends on the context of how each affects the person and their well-being.
For example: one person may want friends but struggle with the social context of situations, where another person with the same diagnosis will have no trouble with social context but have immense trouble with adjusting to routines and is unable to hold down a job. And another person is good at both social context and routines...but hides it all to show people she is capable, and ends up with anxiety and depression tryin to cope. Although all of these things are attributed to AS, the disabling aspect affects people in completely different contexts. I feel that the mistake people make is that they attribute all of their AS as faulty, when they will only have significant difficulties with a few things.
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Given a “tentative” diagnosis as a child as I needed services at school for what was later correctly discovered to be a major anxiety disorder.
This misdiagnosis caused me significant stress, which lessened upon finding out the truth about myself from my current and past long-term therapists - that I am an anxious and highly sensitive person but do not have an autism spectrum disorder.
My diagnoses - social anxiety disorder and obsessive-compulsive disorder.
I’m no longer involved with the ASD world.
daydreamer84
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90% Disability
10% Difference
100% living nightmare! That's not trying to be offensive but I think if I were a typical white male with AS I probably would be having an easier time than being the mixed Asian female that I am. I get more noticed because of my race and looks and thus my autistic behaviors are going to be seen and judged more than others. I've reached the point in my life where I'm terrified of going out and my worst dreams at night (some I do wake up in sweats from) are having random run-ins with typically good people. I wish I wasn't kidding.
This.
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Authentic cadence: V-I
Plagal cadence: IV-I
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-I-I-I-I-I-I-I-I! I! I! I I I
I see it as both. It might not feel disabling for everybody, I don't know. I think it is a disability for us if we personally feel disabled by it and I do.
In my case, and I don't know if this is true for anybody else, I think the most disabling part has been the additional mental health problems that are secondary to my autism. I don't really wonder what I would be like without AS and I wouldn't want to be without it now. But I do wonder what I might be like just with AS but without depression, selective mutism, anxiety particularly social anxiety and very severe social inhibition. At times these additional problems might have protected me from making awful social mistakes, which I hopefully would have learned from. I do feel that these secondary problems have held me back and made it just too difficult for me to be able to learn and practise social skills. They have prevented me from being able to go out there and gain important social experience and life experience and so have disabled me more than just autism on its own might have done.
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Sometimes it's the very people who no one imagines anything of, who do the things no one can imagine.
From The Imitation Game
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