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crazybunnylady
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26 Mar 2016, 10:52 am

NTs say that stuff ALL THE TIME. I'm only just starting to talk to people about myself, but having a (diagnosed) aspie partner and having worked with people with autism for 4 years I can't tell you how many times I've had these conversations with people about it.

At the weekend I was talking to a friend of a friend who works in mental health. She was reading 'The Reason I Jump'. We were talking about one of her clients and it sounded very much like she could be on the spectrum. I mentioned that and this woman said 'No, she has empathy and she has a sense of humour, so she can't be autistic'. I managed to give a calm response but I wanted to punch her in the face. It worries me when people who work in mental health know nothing about autism.


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Pieplup
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26 Mar 2016, 6:52 pm

crazybunnylady wrote:
NTs say that stuff ALL THE TIME. I'm only just starting to talk to people about myself, but having a (diagnosed) aspie partner and having worked with people with autism for 4 years I can't tell you how many times I've had these conversations with people about it.

At the weekend I was talking to a friend of a friend who works in mental health. She was reading 'The Reason I Jump'. We were talking about one of her clients and it sounded very much like she could be on the spectrum. I mentioned that and this woman said 'No, she has empathy and she has a sense of humour, so she can't be autistic'. I managed to give a calm response but I wanted to punch her in the face. It worries me when people who work in mental health know nothing about autism.

Yep, My sister thinks, I lack empathy, and punches me when I tell her factual evedience That I don't.


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Joseph981
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22 May 2016, 2:04 am

Callista wrote:
The stereotype of autism being necessarily severe and obvious is still floating around in quite a lot of places, and many people think of autism as something that must be extreme and immediately apparent to the casual observer. Most depictions of autism are also of young children with autism--the same young children that, later in life, will learn enough to become much more independent and less obviously autistic than they are at that young age.

If someone believes that autistic people can't talk, can't be intelligent, can't be talented (unless it's a savant skill), can't seem normal in a casual conversation, can't be extroverted, can't live independently, then yeah--if you have any of those traits (the majority of autistics do), they'll think you can't be that autistic.

But of course in reality, autism goes from quite mild to profound, and some autism can be nearly invisible, apparent only after a long period of interaction with the person. Even though mild autism isn't the stereotypical thing that people think of when they think autism, it's still a disability, it's still real, and by definition it involves impairment for you. It's just that people don't understand that disability in general and autism in particular can be mild or invisible.

Some people will even say, "You don't look autistic," as a compliment, because they believe that being autistic must make you very sad, and so telling you that you aren't THAT autistic must cheer you up. Most of us probably just find it irritating.



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22 May 2016, 12:24 pm

No one has said I do not look autistic. Occasionally, a person would ask if I have a disability.


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JonathanCampbell99
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22 May 2016, 4:56 pm

My aunt worked with an autistic person (He has Asperger's Syndrome), my aunt has said to me that I could be autistic and I believe her as she has talked to a worker who works with people with autism and Asperger's Syndrome who agreed with my aunt with the symptoms that I could have Asperger's.

This is a bit of the email she sent me:

Quote:
It was a guy I worked with that had similar characteristics to you. He had something called Aspergers Syndrome – a type of Autism. We supported Autism NI last year as our charity of choice and when I spoke to the lady about the characteristics they sounded the same.


So anyone have any idea what my aunt means by this, I mean the characteristics part? Thanks.


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Last edited by JonathanCampbell99 on 22 May 2016, 5:12 pm, edited 1 time in total.

PercyPJ
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22 May 2016, 5:11 pm

Dillogic wrote:
If you run into people in the first place, and you get a conversation going and share that you have autism with said people, you:

probably don't have autism


I think it's very dangerous to make such a generalistion :(



ZombieBrideXD
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22 May 2016, 5:52 pm

Once, a psychologist thought I had nonverbal learning disability instead of ASD, she was wrong after a evaluation showed great strength in nonverbal and spatial processing and verbal processing was poor


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Brittniejoy1983
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22 May 2016, 11:31 pm

Ah, Callista, you just described me. My husband tells me I can talk to anyone, anywhere, as long as they start it, or it is a common interest (usually babywearing related). But he also yells at me because I tell people way too much about myself.

Oops.

I am also baffled by the waiting room thing. It doesn't make sense. You are all stuck there. Some require your phones to be off. What else would you do?


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NathanC
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23 May 2016, 1:28 am

I get this all the time! It's either "You seem normal to me", or "I'd have never guessed you had Autism/Aspergers - you're not anything like the others!".

I understand it's meant as a compliment, or at very least a timid response to an uncomfortable subject...so when conversing with people I try to understand that their intent is not to offend, but gee whiz can it feel condescending to be compared in such a way!


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Kuraudo777
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23 May 2016, 3:32 pm

A paramedic I met didn't seem to know what Asperger's was, even though when he was notified of this fact he simply said 'Okay', as if he was trying to convince everyone that he knew what it was. Then, when I showed him my 'Autism Card', he said 'You have Autism too?' *Picard face palm*


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24 May 2016, 10:39 am

NathanC wrote:
I get this all the time! It's either "You seem normal to me", or "I'd have never guessed you had Autism/Aspergers - you're not anything like the others!".

I understand it's meant as a compliment, or at very least a timid response to an uncomfortable subject...so when conversing with people I try to understand that their intent is not to offend, but gee whiz can it feel condescending to be compared in such a way!

I generally get that from people I disclose to as well. I was diagnosed last year, so I haven't told very many people yet. I also remind myself that my friends are not autism experts, and probably have a distorted idea of what Autism/Asperger's is like because of TV and movie depictions.

I think the only time I really got pissed off was when I got the "you're not autistic" from a psychiatrist. I'd already gotten the official diagnosis from a psychologist, and I was looking for a new psychiatrist because I changed insurance plans. After talking to me for 10 minutes, he declared that I wasn't autistic and that all my mood and sensory problems were due to junk food and alcohol. (I drink about 6 bottles of cider a month). I noted that he had the complete set of Freud's works, concluded that he was an idiot, and fired him. I cut out the Fritos and cider for a week, and GUESS WHAT. Still autistic.


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mikeman7918
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24 May 2016, 12:12 pm

I don't remember any time that someone has said that to me, but that's probably because I actually do act quite autistic most of the time and it's quite apparent that something is wrong with me to the casual observer. I am also careful to tell only people who know me fairly well and at that point they are well aware of how weird I am and have probably wondered at some point what's wrong with me, so when I tell them about my autism they are probably thinking something like "that explains a lot" even if they don't know much about it.

I often do the stereotypical autistic behavior of humming while rocking back and forth and I also often stim by waving my hands around like I just walked into a spider web. This is probably why I have never gotten the "but there's nothing wrong with you" or "but you seem so normal" lines.


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Joseph981
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24 May 2016, 4:44 pm

GodzillaWoman wrote:
NathanC wrote:
I get this all the time! It's either "You seem normal to me", or "I'd have never guessed you had Autism/Aspergers - you're not anything like the others!".

I understand it's meant as a compliment, or at very least a timid response to an uncomfortable subject...so when conversing with people I try to understand that their intent is not to offend, but gee whiz can it feel condescending to be compared in such a way!

I generally get that from people I disclose to as well. I was diagnosed last year, so I haven't told very many people yet. I also remind myself that my friends are not autism experts, and probably have a distorted idea of what Autism/Asperger's is like because of TV and movie depictions.

I think the only time I really got pissed off was when I got the "you're not autistic" from a psychiatrist. I'd already gotten the official diagnosis from a psychologist, and I was looking for a new psychiatrist because I changed insurance plans. After talking to me for 10 minutes, he declared that I wasn't autistic and that all my mood and sensory problems were due to junk food and alcohol. (I drink about 6 bottles of cider a month). I noted that he had the complete set of Freud's works, concluded that he was an idiot, and fired him. I cut out the Fritos and cider for a week, and GUESS WHAT. Still autistic.



WAIT!! WAIT!! maybe this Dr. is on to something!?! Maybe we need to cut out the right Fritos and cider, or we need to start drink and eating the right wrong stuff so we can quit and not be autistic! oh, i misspoke I mean 'maybe this Dr. is *on* something" ;) just laugh and move on, poor sucker is probably afraid that he is supposed to be a professional and has no idea how to treat or understand autism so...... if you don't have it he's not incompetent!

good story man, if you see that guy again tell him we all love him lol


"and GUESS WHAT. Still autistic." this is good stuff man, this made me laugh good :)



Last edited by Joseph981 on 24 May 2016, 4:46 pm, edited 1 time in total.

spinelli
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24 May 2016, 4:46 pm

I've had people treat me as feeble minded once I made any disclosures. No more of that. It's no ones beez wax!



Tiankay
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24 May 2016, 6:22 pm

Yes, my mom does it. While i never have spoken out my suspicion of beeing autistic to her directly, everything is "my own fault". She says "You want to be this way", "You chose this yourself" wich in my understanding means "You dont have anything, you're just a lazy malingerer". Like i want to be a complete social and general failure, like a WANT to be depressed. I often think about that i might be wrong. "Am i making this all up?", "No you can do this and that, you cant be autistic", "What the f**k is wrong with me?" But im not making this all up. I had alot of problems dating back to at least kindergarten days and last week when i had some kind of skill evaluation a psychologist told me he thinks i might be autistic without me even telling him anything of my suspicion. And even then i still ask myself if i have just gone crazy and "talked" myself into it.

I am so confused and so angry. Wich kid gets tantrums his entire childhood? Wich 4-5 year olds parents get daily kindergarten reports if he was "behaving bad today"? Wich 6 year old gets expelled from school on first day for biting his teachers hand in an unclear situation? Wich 8 year old kid spends most of his time disassembling all the household electronics to understand how they work? Wich normal 10 year old sits on the backseat of moms car with this really ugly blue-red dotted seat-decor, asking why he is so different than anybody else? Wich 11 year old is really good at school, in some parts even "too good" for his grade, but still gets expelled for beeing "socially inappropriate"? Wich 13 year old spends almost his entire time building computers out of scrap hardware and reading an entire 10 years archive on computer magazines but is unable to form just a "simple" friendship? And wich pretty intelligent 22 year young man gets absolutly NOTHING done in his life because he doesnt know how to approach the world?

If i really just made this autism thing up, then there is an actual metric shit-ton wrong with me! Sorry if i have gone offtopic a little bit but i just cannot understand. She has been with me my entire life and had to deal with my problems too. How can she even say something like that? Whatever it is, it is quite obvious that "something" is and allways was different with me, and i NEVER wanted it to be this way...

Peace
TK



GodzillaWoman
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24 May 2016, 7:08 pm

Tiankay wrote:
Yes, my mom does it. While i never have spoken out my suspicion of beeing autistic to her directly, everything is "my own fault". She says "You want to be this way", "You chose this yourself" wich in my understanding means "You dont have anything, you're just a lazy malingerer". Like i want to be a complete social and general failure, like a WANT to be depressed. I often think about that i might be wrong. "Am i making this all up?", "No you can do this and that, you cant be autistic", "What the f**k is wrong with me?" But im not making this all up. I had alot of problems dating back to at least kindergarten days and last week when i had some kind of skill evaluation a psychologist told me he thinks i might be autistic without me even telling him anything of my suspicion. And even then i still ask myself if i have just gone crazy and "talked" myself into it.


Ugh, that really sucks. My mom does this in a more subtle way ("oh, we all feel socially awkward sometimes! You're just shy! Just TRY to be happy!") She used to say much worse things ("What did you say to make those kids want to hurt you? We all have our problems! You're like Camille [an opera character]! You're sick! You're a psychopath! I'm ashamed of you!"). I finally had to threaten not to see her anymore unless she stopped saying things like that, and it got a lot better. Having some physical distance has helped.

One realization helped keep it in perspective: My mom and brother are the only people who say things like that to me. It made me realize that it is their perspective that is warped, not mine. I have people who like me as I am, weirdness and all, and co-workers that respect me.

Even if you don't turn out to be autistic, it sounds like you need support and compassion. Calling you names is destructive and toxic. I recommend Toxic Parents: Overcoming Their Hurtful Legacy and Reclaiming Your Life


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