Why High Functioning Autism is So Challenging

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Kuraudo777
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11 Jun 2016, 8:00 pm

^Aww! That's lovely! Congratulations! :)


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mjc27
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11 Jun 2016, 11:21 pm

Thanks so much for sharing this article. I shared it initially to my family. They do need to understand what I'm feeling all these years. They can't have a clear grasp of things sometimes. They sometimes tell me these things happen in people at times. What they can't understand is what if you put all of these symptoms altogether and you experience it most of the time to all the time it surely be a hassle.

About the waving, it surely is embarrassing whenever this happens. It also happened to me one time involving someone I know. And I was told you're not the one I've been waving to.



FandomConnection
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13 Jun 2016, 4:58 am

I am not diagnosed with ASD, but have suspected it since I was 11. I hate it when people tell me that I 'just need to try harder'. This includes my parents, who continually tell me to 'stop acting weird'. This is hurtful to me, as I genuinely don't know how to react in social situation, and especially dislike physical contact. Just because I can speak and don't have meltdowns (that they have seen) doesn't mean that I'm completely normal.

My family does not want to know about my suspicions pertaining to ASD. They choose to ignore it. But what normal 11 year old suddenly decides that they fit the criteria of a specific neurodevelopmental disorder for no reason?


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INTPnarwhal
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13 Jun 2016, 1:19 pm

Oh man FandomConnect, I relate to all of what you said so much. Surprisingly though, I've found that my family's resistance was strongest at the beginning, and the more I opened up to them about my struggles despite the painful backlash I got, the more understanding they eventually became. This takes time but definitely pays off. Just keep talking about it, sending links, and tell whichever parent is the more undestanding one about your private meltdowns. Let them see your suffering in order for them to take you seriously. Best of luck sister. :heart:



LyraLuthTinu
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14 Jun 2016, 8:00 pm

drlaugh wrote:
Thanks for the flower IDEA


You're welcome :D

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It's been 3 days and either I'm used to it or they smell less


Excellent! That means it was a successful idea!

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15 years anniversary.


Ooops, somehow I thought because you were giving two bouquets it meant 2nd anniversary--sorry, unnecessary correlation of data!

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I'm high maintenance and grateful.


I'm happy to have helped.

What do you mean, high maintenance? Can you give examples? Do you think it's because of HFA?


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Your neurodiverse (Aspie) score: 141 of 200
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You are very likely neurodiverse (Aspie)
Official diagnosis: Austism Spectrum Disorder Level One, without learning disability, without speech/language delay; Requiring Support


FandomConnection
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16 Jun 2016, 2:22 am

INTPnarwhal wrote:
Oh man FandomConnect, I relate to all of what you said so much. Surprisingly though, I've found that my family's resistance was strongest at the beginning, and the more I opened up to them about my struggles despite the painful backlash I got, the more understanding they eventually became. This takes time but definitely pays off. Just keep talking about it, sending links, and tell whichever parent is the more undestanding one about your private meltdowns. Let them see your suffering in order for them to take you seriously. Best of luck sister. :heart:


Thank you for the advice. I feel happy to know that somebody else knows what I'm writing about. I'm glad that it has 'paid off' for you. Unfortunately, I do not have a close relationship with either of my parents, so I'll probably just wait until I am an adult and can move out of home. I may not even tell them if I independently get a diagnosis, because they will not accept it. But thank you for your thoughts.


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Diagnosed: Autism Spectrum Disorder Level 1 without accompanying language impairment
I find it easiest to connect with people through the medium of fandoms, and enjoy the feeling of solidarity.
Too often, people say things they don't mean, and mean things they don't say.


jrjones9933
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16 Jun 2016, 7:23 am

I've used some of my family members' own foibles as a way to help them relate to my autistic issues. Everyone has something which they absolutely must have a certain way, and times when they just can't get it that way. I point out that I spend a lot of mental energy coping with that while appearing relatively normal.


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ZD
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17 Jun 2016, 4:59 am

Only just seen this and it describes me perfectly. Especially needing a solid routine and predictability. I used to have problems going to shopping in local super market I have learned to cope now.


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17 Jun 2016, 10:48 pm

Additionally, because my ND traits are usually not too pronounced, my parents tell me to 'stop making a fuss' or 'try harder' if they notice that I am behaving slightly abnormally.

On one especially bad occasion, when I was twelve, I came home to find my mother chopping onions. She was crying, and when I asked her why, she said, 'I'm just a bit sad.' She always said that when she chopped onions, so I thought that she was simply joking again. I asked her what was for dinner, and when she didn't answer, I went to my room. Later she took me to her room, and shouted at me for more than 5 minutes, calling me rude words and saying that I was selfish etc. She had actually just had a fight with her father, which was why she was crying. I had not known this, because I was unable to tell the difference between her being sad and just chopping onions.

I tried to explain my confusion at the time, but she said that I was lying, that I did know that she was actually sad. In my entire life, nobody (to my knowledge) has ever called me such rude and bad words as my mother did that time.


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Diagnosed: Autism Spectrum Disorder Level 1 without accompanying language impairment
I find it easiest to connect with people through the medium of fandoms, and enjoy the feeling of solidarity.
Too often, people say things they don't mean, and mean things they don't say.


HighLlama
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17 Jun 2016, 10:54 pm

FandomConnection wrote:
Additionally, because my ND traits are usually not too pronounced, my parents tell me to 'stop making a fuss' or 'try harder' if they notice that I am behaving slightly abnormally.

On one especially bad occasion, when I was twelve, I came home to find my mother chopping onions. She was crying, and when I asked her why, she said, 'I'm just a bit sad.' She always said that when she chopped onions, so I thought that she was simply joking again. I asked her what was for dinner, and when she didn't answer, I went to my room. Later she took me to her room, and shouted at me for more than 5 minutes, calling me rude words and saying that I was selfish etc. She had actually just had a fight with her father, which was why she was crying. I had not known this, because I was unable to tell the difference between her being sad and just chopping onions.

I tried to explain my confusion at the time, but she said that I was lying, that I did know that she was actually sad. In my entire life, nobody (to my knowledge) has ever called me such rude and bad words as my mother did that time.


Sorry you went through that. She sounds very difficult. I once had a similar scolding from my mom for sending an email with sentences which were too short, which she thought must have meant I was mad at her (God forbid).



drlaugh
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18 Jun 2016, 12:55 am

I think it means I have many sub patterns and rules that are sometimes and sometimes not consistent.
Some days I can over rule smell thing - like the anniversary flowers other times like when my bride bought smelling sticks with oils in vases I couldn't have in the house.
She lovingly might say when I get stuck in a topic mode (like death) please get off the dying thing.

Or deciding it was time to mow the lawns yesterday when it was 100+ heat index.
My solution anti perspiration -Deodarant roll on my forehead to keep the salty sweat out of my eyes. And readying the water for me. The solution did keep the sweat limited off my eyes.

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me a name I call myself


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Lumi
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18 Jun 2016, 5:00 pm

Services aren't equipped to help people like me well.


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18 Jun 2016, 5:35 pm

r00tb33r wrote:
Raleigh wrote:
I wish I could forward that article to everyone I know.
It describes my difficulties exactly.

I appear capable but I fail at the most basic everyday functioning.

Take returning a wave, for example.
Most people wave automatically when they see someone they know.
My brain needs to process it step by step.
It's like, there's someone => oh, that's Julia => she's waving => when someone waves you need to wave back => oh, too late. She's passed :(

She now thinks I'm angry with her or being snobbish.
It's the little things like this that cause me aguish.


I overcompensate... If I see anyone waving I wave back like an idiot. (usually it's someone else in a crowd in my general direction)


I've done the idiot wave a lot. Now I'm just too slow. The other day I was in the kindergarten, and some woman waved to me. My process typically goes something like: woman waving - don't know her - never mind, where's my kid?

Two days later I remember that this woman works in the kindergarten, and not only that, but she is the mother of a boy who is a friend of my kid. Two categories, see: mommy and kindergarten staff. Too much for my brain to process.

I've failed the Mummy Brigade yet again.


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drlaugh
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18 Jun 2016, 5:57 pm

Continuing seeing the counselor that did the initial diagnosis had helped.
He made it clear we would only work on things I chose.


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MirrorWars
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18 Jun 2016, 7:00 pm

Kuraudo777 wrote:
I'm so quiet that a lot of people don't hear me when I say hi. I try not to let social situations bother me and stay away from them as much as possible.


I'm the opposite.

I'm so loud that the people that I'm talking to almost look as if they're sky diving, such is the volume of my voice.



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18 Jun 2016, 10:16 pm

I've had people get mad at me because I didn't wave or say hello or whatever fast enough to suit them, or didn't notice them or hear them speaking to me. I wish people could just get over themselves a little bit, I understand no one likes to feel ignored but couldn't they try to understand me just a little too? I mean if they would just realize that I'm NOT ignoring them on purpose, wouldn't that resolve the issue of them feeling bad about it? They could just accept that I'm a space cadet? But no instead I think people just like to find things to get butt hurt about.