I don't feel anything in common with non verbal low function

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Pieplup
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10 Aug 2016, 6:38 am

jcfay wrote:
I don't see a problem with the current ASD diagnostic spectrum. There are very reasonable arguments why the current system exists, put together by the APA and very smart clinicians. That being said (and I'm a scientist), one of the things that I'm acutely aware of is that we know SO little and understand SO little about anyone with autism and how our brains work. I won't be surprised if/when Asperger's is broken out into a stand alone diagnosis again, or high functioning autism, and moreover if/when we actually start to understand more about those with "lower functioning" autism. I, myself, like to imagine and think it's far more sensible to assume that there is high function within those individuals, but we don't yet have the ability to understand or recognize it. I feel the same way about animal intelligence (not that I'm lumping in anyone with ASD with animals!).

So don't worry about it. It doesn't matter. What does is if you can get any help that you might need, and if you can be happy or work towards happiness. And finally, perhaps assume that you're are less different from those that you see as "other" until we understand more. I think it makes the most sense now to assume we're all on a spectrum, but if that's problematic for you then I can understand that. There are also some interesting books on the spectrum as well and the history of science/medicine and history of spectrum diagnoses ("Neurotribes" was pretty good, I thought).

My 6 cents :)

Why don't they ask low functioning autistics who couldn't speak but can due to either learning to speak or AAC. Though I'm pretty sure I can imagine what it is like to be low functioning like I already am but on a great scale. Though not all people who are 'low' functioning can't speak. Personally I don't like those labels, they're very insulting. What am I not disabled enough for you!


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jcfay
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10 Aug 2016, 3:49 pm

Pieplup wrote:
jcfay wrote:
I don't see a problem with the current ASD diagnostic spectrum. There are very reasonable arguments why the current system exists, put together by the APA and very smart clinicians. That being said (and I'm a scientist), one of the things that I'm acutely aware of is that we know SO little and understand SO little about anyone with autism and how our brains work. I won't be surprised if/when Asperger's is broken out into a stand alone diagnosis again, or high functioning autism, and moreover if/when we actually start to understand more about those with "lower functioning" autism. I, myself, like to imagine and think it's far more sensible to assume that there is high function within those individuals, but we don't yet have the ability to understand or recognize it. I feel the same way about animal intelligence (not that I'm lumping in anyone with ASD with animals!).

So don't worry about it. It doesn't matter. What does is if you can get any help that you might need, and if you can be happy or work towards happiness. And finally, perhaps assume that you're are less different from those that you see as "other" until we understand more. I think it makes the most sense now to assume we're all on a spectrum, but if that's problematic for you then I can understand that. There are also some interesting books on the spectrum as well and the history of science/medicine and history of spectrum diagnoses ("Neurotribes" was pretty good, I thought).

My 6 cents :)

Why don't they ask low functioning autistics who couldn't speak but can due to either learning to speak or AAC. Though I'm pretty sure I can imagine what it is like to be low functioning like I already am but on a great scale. Though not all people who are 'low' functioning can't speak. Personally I don't like those labels, they're very insulting. What am I not disabled enough for you!


Just so we're clear, you realize I was NOT agreeing with the "low functioning" autism label, and that's why I put it in quotes? I think you and I agree on this if I get your point. Just wanted to make sure I didn't offend :)


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PhosphorusDecree
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10 Aug 2016, 4:22 pm

Here's one analogy: I know someone with a brain injury from being hit by a car. Which surprised me when I found that fact out. My image of "brain damage" was of the worse forms- people who can't survive outside an institution because they can't talk, or can't move, or have an IQ of about 30. Or the cases I heard about from a flatmate who worked a secure unit where the patients had "disinhibiting" injuries, who were a danger to themselves and others because they couldn't control their actions.

This is despite the fact that when I was young we often visited an elderly relative who, due to brain damage in the womb, had to live in assisted housing all her life but could talk fairly coherently.

My friend is holding down the office job he had before the injury, just with reduced hours. Speaks perfectly normally, and is apparently actually more talkative than before. He has problems with pain and exhaustion, is worryingly gullible and doesn't always get jokes, but is otherwise fairly alert. He seems very, very different from some poor sod strapped in a wheelchair making loud moaning noises, and his life is obviously very different too. But it's basically the same condition.

We got lucky, is what I'm saying. (It's possible I got slightly less lucky than you- I CAN see faint similarities between myself and severely autistic kids.) There are also plenty of people in the middle of the spectrum, like Rabid Fox above. It's just that they're outnumbered here on Wrong Planet, 'cos forum=magnet for hyper-articulate Aspies.


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10 Aug 2016, 4:33 pm

PhosphorusDecree wrote:
This is despite the fact that when I was young we often visited an elderly relative who, due to brain damage in the womb, had to live in assisted housing all her life but could talk fairly coherently.

i swear it took me half a minute to understand that sentence. "what are you talking about? how can someone have brain damage in the womb? the brain is in the head, the womb in the belly. that doesn't make any sense ....... oh! :lol:". sometimes the brain is in the belly, for some nine months or so... :!:


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