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Would you say this is mild or moderate autism?
Level 1 Mild 29%  29%  [ 4 ]
Level 2 Moderate 64%  64%  [ 9 ]
Level 3 Severe 7%  7%  [ 1 ]
Total votes : 14

laurenm
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08 Jul 2019, 9:57 pm

Mona Pereth wrote:
laurenm wrote:
I’m a 24 year old adult female. I’ve been diagnosed with autism several times but I’m not sure what level I am. I know it doesn’t matter but I’m wondering what my functioning level would be to someone who doesn’t know me. Based on this information below what level would you say? Also if you can add any advice on how to become higher functioning that would be helpful.

I don't know how the levels are defined in practice. The descriptions in the DSM seem extremely vague and subjective. Hopefully the specialists have managed to develop some reasonable set of standards that they use.

So the following is just my best guess, in terms of what would make sense to me if I were in charge of defining the levels:

laurenm wrote:
-I can write well and I can speak in full sentences. Although I have trouble with people I don’t know and the social aspects of conversations.
-I am fully toilet trained, I can shower and dress myself.
-I had an iep in school and was classified as “multiple/severe disabilities” I went to a special ed school for a little due to my inability to stay in class and outbursts/ panic attacks.
-I have a job. I also am part of job training program for autistic adults. I work 15 hours a week (3 days) and now have a job coach only come once a week.

How long have you had this job? If you can write well, speak in full sentences, AND hold down a job, I would guess that that would exclude you from the "severe" category. However ....

laurenm wrote:
-I get disability for my autism.
-I was approved to have someone from the developmental disability team help me 40 hours a week in my home and community.

If you were deemed eligible for that much support, it must not be mild either.

laurenm wrote:
- I can travel independently if I know where I’m going. (Though I don’t drive).
-I live independently though I have constant help from parents and team.
-I have an average IQ but scored borderline delayed in visual spatial and moderately delayed in adaptive functioning. My biggest weakness was expressive & receptive communication scores that were scored in the <.1 percentile. My strength was quantitative reasoning where I scored high average. My ADOS score “far exceeded the autism cut off score.”
- I have few friends and have never had a boyfriend though I have the desire for both.
-I stim at home but most of the time I can control it if I go out.
-I’ve had a therapist tell me that it was obvious to people that I was autistic, but I had another one say it was an invisible disability.
-the most socially inappropriate thing I do is cry if I’m overwhelmed in public but I don’t have any of the behaviors that some severely autistic people have. (screaming, biting themselves, banging their head).
-I avoid crowds, talking to people, and anxiety provoking situations.
-I experience fatigue, anxiety, and major sensory issues with lights, sounds, smells, and touch.

Would you say this is mild or moderate autism?

Moderate.


I have had my job for 6 months but have had my job coach only one day a week for 2 months now. I started working there 8 hours a week, then went to 12, and now I’m at 15. I mostly fold towels and restock the toilet paper and supplies in the bathrooms but I do it independently even with out my job coach. My boss hired me knowing I was autistic but she told my mom and dad I have taught her so much and she is very glad she hired me. So my boss probably thinks I’m high functioning.



Mona Pereth
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08 Jul 2019, 9:59 pm

The specific things that make you seem NOT mild, apart from the amount of support you've been deemed eligible for:

laurenm wrote:
-[...] moderately delayed in adaptive functioning. My biggest weakness was expressive & receptive communication scores that were scored in the <.1 percentile. [...] My ADOS score “far exceeded the autism cut off score.”
[...]
- major sensory issues with lights, sounds, smells, and touch.


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kraftiekortie
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08 Jul 2019, 9:59 pm

Do you like what you do?



laurenm
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08 Jul 2019, 10:21 pm

IsabellaLinton wrote:
I agree with Mona Pereth. I was unsure about the purpose of your poll, which asks whether we think you are "mild" or "moderate" functioning. You said that your assessment didn't give you that information but, in a different thread, you posted that you were "diagnosed mild to moderate":

viewtopic.php?f=3&t=362637&p=8282240#p8282240

Based on this, and the other clinical data you were provided, it seems that you were already given a level?


the only level I’ve seen on paper work has been mild to moderate. (This was for developmental delays over 20 years ago). I had always used that as my level as I know people who are way more severe then me. I’ve been diagnosed or evaluated many times now but don’t see the type on any of the recent evaluations. But when I was reading I saw my old iep said contradicting information. (It classified me as severe disabilities). I would really like to get a better idea of what my disability is like because I feel like I’m the only person who has been diagnosed with mild, moderate, and severe. I’m trying to be very high functioning but then I keep getting people telling me I can’t do something because of my disability and it’s frustrating.



laurenm
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08 Jul 2019, 10:25 pm

kraftiekortie wrote:
Do you like what you do?

My main hobby is YouTube. I love watching gaming videos. I also like movies.



Last edited by laurenm on 08 Jul 2019, 10:26 pm, edited 1 time in total.

Mona Pereth
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08 Jul 2019, 10:25 pm

laurenm wrote:
Yes they say that my support needs are too great for college.

Perhaps not too great for an online college like Empire State College (a part of the State University of New York)? My boyfriend got a degree from Empire, and they are very good.

You probably would be required to take more than one course per semester, but hopefully you would have sufficient flexibility with scheduling that you would not need to shift your attention from one course to another more often than once every few days.

I know I've heard of people with severe autism who have managed to get college degrees. So I wouldn't rule out this idea.


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Last edited by Mona Pereth on 08 Jul 2019, 10:31 pm, edited 1 time in total.

IsabellaLinton
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08 Jul 2019, 10:28 pm

Thank you for clarifying. Based on what you've described, I agree with Mona's summary.


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laurenm
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08 Jul 2019, 10:31 pm

Mona Pereth wrote:
laurenm wrote:
Yes they say that my support needs are too great for college.

Perhaps not too great for an online college like Empire State College (a part of the State University of New York)? My boyfriend got a degree from Empire, and they are very good. (I don't know if you would be allowed to take one course at a time, though.)

I know I've heard of people with severe autism who have managed to get college degrees. So I wouldn't rule out this idea.


I believe I could do it if I did one class at a time. It’s more of I cannot get help paying for it because they will only help you pay for it if it will lead to substantial employment. I think through the developmental disability services I can audit classes for free like senior citizens can at state schools but you don’t take the tests or get credit from them.



laurenm
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08 Jul 2019, 10:33 pm

Mona Pereth wrote:
laurenm wrote:
Yes they say that my support needs are too great for college.

Perhaps not too great for an online college like Empire State College (a part of the State University of New York)? My boyfriend got a degree from Empire, and they are very good.

You probably would be required to take more than one course per semester, but hopefully you would have sufficient flexibility with scheduling that you would not need to shift your attention from one course to another more often than once every few days.

I know I've heard of people with severe autism who have managed to get college degrees. So I wouldn't rule out this idea.


I hope it’s not rude to ask but I see you live in queens. I live close by. Can I send you a message on here or would you not want that?



Mona Pereth
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08 Jul 2019, 10:35 pm

laurenm wrote:
I hope it’s not rude to ask but I see you live in queens. I live close by. Can I send you a message on here or would you not want that?

Yes feel free to send me a private message.


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Mona Pereth
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08 Jul 2019, 10:39 pm

laurenm wrote:
I believe I could do it if I did one class at a time. It’s more of I cannot get help paying for it because they will only help you pay for it if it will lead to substantial employment. I think through the developmental disability services I can audit classes for free like senior citizens can at state schools but you don’t take the tests or get credit from them.

Sounds like a good reason to apply for OPWDD then. Audit some classes and see how you feel about them. Then if it feels like you can handle the kinds of courses that could lead to substantial employment, apply for funding to take them for real.


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Mona Pereth
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08 Jul 2019, 10:44 pm

laurenm wrote:
My main hobby is YouTube. I love watching gaming videos. I also like movies.

Do you enjoy playing online games? (My boyfriend plays Forge of Empires these days.)


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laurenm
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08 Jul 2019, 10:48 pm

Mona Pereth wrote:
laurenm wrote:
I believe I could do it if I did one class at a time. It’s more of I cannot get help paying for it because they will only help you pay for it if it will lead to substantial employment. I think through the developmental disability services I can audit classes for free like senior citizens can at state schools but you don’t take the tests or get credit from them.

Sounds like a good reason to apply for OPWDD then. Audit some classes and see how you feel about them. Then if it feels like you can handle the kinds of courses that could lead to substantial employment, apply for funding to take them for real.


I already have opwdd.



laurenm
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08 Jul 2019, 10:49 pm

Mona Pereth wrote:
laurenm wrote:
My main hobby is YouTube. I love watching gaming videos. I also like movies.

Do you enjoy playing online games? (My boyfriend plays Forge of Empires these days.)


I play mostly console games. But I would like to get into more games.



Mona Pereth
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08 Jul 2019, 10:59 pm

laurenm wrote:
Yes they say that my support needs are too great for college. I can type and do things in Microsoft. I actually now have a job but I don’t use Microsoft for it.

Which Microsoft programs can you use?

Can you use Excel? Access? (Those could perhaps be marketable skills, were you to develop your knowledge of them beyond the basics, via some college courses.)


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laurenm
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08 Jul 2019, 11:22 pm

Mona Pereth wrote:
laurenm wrote:
Yes they say that my support needs are too great for college. I can type and do things in Microsoft. I actually now have a job but I don’t use Microsoft for it.

Which Microsoft programs can you use?

Can you use Excel? Access? (Those could perhaps be marketable skills, were you to develop your knowledge of them beyond the basics, via some college courses.)


I can use word, PowerPoint and excel (basic stuff). I just would need to be working on something I’m interested in. Then I could do it.