Why High Functioning Autism is So Challenging

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drlaugh
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19 Jun 2016, 5:53 am

Double minded.

As in the middle of listening to a friend share.
Thinking
A. This is what regular people do
B. Should I talk now
C. Should I ask for clarification cause I'm getting lost
D. Listening to all the other conversations in this restaurant is distracting
E. I shouldn't be shoulding on myself
F. Think this is much easier at work


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FandomConnection
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19 Jun 2016, 5:06 pm

In my opinion, being high-functioning (I am undiagnosed but suspect high-functioning Aspie) stops people from thinking of one as having a 'condition' or 'neurological developmental disorder', and causes them to perceive one as rude, weird, but essentially normal. I find it comparable to being an Atheist (which I am). In majority-Christian countries (like Australia), people are taught to respect other faiths, even if they don't agree; however, they don't feel the need to respect Atheists and their views, simply because we don't believe in a religion. Instead of viewing us as people who do not believe in a God, many see us (to my perception) as Christians who have stopped worshipping and believing in God/Jesus. They don't respect our religious position as being essentially different to theirs.

As people with HF Autism aren't always obviously handicapped (as opposed to somebody with severe Autism or a physical disability etc.), people don't feel the need to respect the challenges we face.


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germanium
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21 Jun 2016, 2:39 pm

Many of the issues that I have are very mild to the point of not bothering me such as hyper sensitivities are very mild as is the hyposensitivities but the executive functioning, short term memory & uneven intelligence are major major factors for me as is depression and anxiety.

The depression is really bad as in it never truly goes away at all. I just leaned to live with it.

Short term memory is so bad that if you ask me to get three things from the store I will almost always forget one.

In IQ testing I was told that if they only took my strong areas I would have scored 140 but the overall score was 89 so you can guess how bad some scores were.



zeldazonk
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21 Jun 2016, 11:43 pm

Great article, thanks.

Reminds me of something I read that said something like: in some ways, at times, it can be just as difficult being a person classed as 'high functioning' as a 'lower functioning' Autistic person.

I experienced an example of this recently when I was talking to a parent of a friend ('lower functioning' than my daughter) of my daughter's.
I was asking him how they were going with the lead up to high school expecting a long, stressed out conversation about how daunting it all is, which is how I feel... "Fine," he said, "she's really looking forward to high school."

Just a whole lot less angst.
I know this is just a comparison between two people.

Does anyone else feel like being 'high functioning' just means you can put on a reasonably good show of pretending to be normal? :?

I know some people hate the high / low functioning categories, I can certainly understand that they are not a very reliable/ accurate way to describe differences among people on the spectrum, mainly because they're so linear.

Zel.


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22 Jun 2016, 12:51 am

Lumi wrote:
For whatever reason, my brain doesn't remember anyone's face.

Yep, me too. I will often not recognize someone if they make even a minor change in appearance, like cutting their hair or wearing glasses, or even just being in a place I don't usually see them, like running into a coworker at the theater. I also fail to recognize people I haven't seen in a few weeks.

As a result, people wave at me and I just wave back (Hiiiiiii), assuming they know me but not having a clue as to who they are. Sometimes they'll come up to me and start chatting, and I'll be frantically trying to figure out from the clues in their conversation where I know them from. It makes me feel DuuhhhERRRRRRR. :?:

I am extremely grateful that we are required to wear name badges at work (as I try to surreptitiously peak at their badge). I have this fear that some actual stranger will come up to me and pretend to know me, and I'll just play along because I can't tell that I don't really know them.


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22 Jun 2016, 12:58 am

FandomConnection wrote:
Additionally, because my ND traits are usually not too pronounced, my parents tell me to 'stop making a fuss' or 'try harder' if they notice that I am behaving slightly abnormally.

On one especially bad occasion, when I was twelve, I came home to find my mother chopping onions. She was crying, and when I asked her why, she said, 'I'm just a bit sad.' She always said that when she chopped onions, so I thought that she was simply joking again. I asked her what was for dinner, and when she didn't answer, I went to my room. Later she took me to her room, and shouted at me for more than 5 minutes, calling me rude words and saying that I was selfish etc. She had actually just had a fight with her father, which was why she was crying. I had not known this, because I was unable to tell the difference between her being sad and just chopping onions.

I tried to explain my confusion at the time, but she said that I was lying, that I did know that she was actually sad. In my entire life, nobody (to my knowledge) has ever called me such rude and bad words as my mother did that time.


I got this a lot from my mom growing up too. Really, if they aren't honest with us, they shouldn't get angry at us for not reading their minds. When Mom gets angry, she starts making a huffing sound and cleans house VERY LOUDLY. This means *huff* slams cupboards, *huff* shoves things around, *huff* vacuums. I would ask her what was wrong, and she would reply, "NOTHING". I wouldn't know how to take this--was there nothing wrong? Was there something wrong and I was supposed to pretend there wasn't? If there was something wrong, why was she lying? She would slam around and huff some more, I would ask what was wrong, and eventually she would screech at me for whatever thing I'd done to make her mad (usually something small like leaving a teaspoon on the counter) and yell at me for not figuring it out without being told. 8O I still get really anxious when I hear the vacuum cleaner.


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underwater
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22 Jun 2016, 1:18 am

Oh, God, yes, the slamming of cupboards. I would hide in a corner with a book and try not to think about what I might have done wrong.

I used to be so frustrated that guys had this attitude like girls should be able to read their minds. How would I know what they wanted in life if they didn't say? Turns out a lot of girls have this ability.


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22 Jun 2016, 2:45 am

GodzillaWoman wrote:
Lumi wrote:
For whatever reason, my brain doesn't remember anyone's face.

Yep, me too. I will often not recognize someone if they make even a minor change in appearance, like cutting their hair or wearing glasses, or even just being in a place I don't usually see them, like running into a coworker at the theater. I also fail to recognize people I haven't seen in a few weeks.

As a result, people wave at me and I just wave back (Hiiiiiii), assuming they know me but not having a clue as to who they are. Sometimes they'll come up to me and start chatting, and I'll be frantically trying to figure out from the clues in their conversation where I know them from. It makes me feel DuuhhhERRRRRRR. :?:

I am extremely grateful that we are required to wear name badges at work (as I try to surreptitiously peak at their badge). I have this fear that some actual stranger will come up to me and pretend to know me, and I'll just play along because I can't tell that I don't really know them.


There are labels for that
Face Blindness (Prosopagnosia, Facial Agnosia)
Quote:
Some degree of prosopagnosia is often present in children with autism and Asperger's syndrome, and may be the cause of their impaired social development


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goatfish57
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22 Jun 2016, 4:46 am

drlaugh wrote:
Double minded.

As in the middle of listening to a friend share.
Thinking
A. This is what regular people do
B. Should I talk now
C. Should I ask for clarification cause I'm getting lost
D. Listening to all the other conversations in this restaurant is distracting
E. I shouldn't be shoulding on myself
F. Think this is much easier at work


Wow, you can multitask during a conversation. I just plod along hoping not to step into something.


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goatfish57
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22 Jun 2016, 4:49 am

germanium wrote:
Many of the issues that I have are very mild to the point of not bothering me such as hyper sensitivities are very mild as is the hyposensitivities but the executive functioning, short term memory & uneven intelligence are major major factors for me as is depression and anxiety.

The depression is really bad as in it never truly goes away at all. I just leaned to live with it.

Short term memory is so bad that if you ask me to get three things from the store I will almost always forget one.

In IQ testing I was told that if they only took my strong areas I would have scored 140 but the overall score was 89 so you can guess how bad some scores were.


Depression and anxiety can worsen some of the executive function problems that you mentioned.


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zer0netgain
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22 Jun 2016, 7:22 am

Quote:
Difficulty with transitions and change. Lots of people have a hard time with change — but people with high functioning autism take the issue to a whole new level. Once a pattern is established and comfortable, people with autism (by and large) want to maintain that pattern forever. If a group of friends goes out on Wednesdays for nachos, the idea of going out on Thursdays for chicken wings can throw an autistic adult into a state of anxiety or even anger.


I've found the BEST WAY to cope with unpredictable events is to operate from the presumption that something will likely not go according to plan. It doesn't keep me from being bothered, but I handle the disruption better when I do not operate from the expectation things will go as planned.



drlaugh
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22 Jun 2016, 9:10 pm

Is that sort of like having
Preferences and not expectations or demands?


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22 Jun 2016, 9:41 pm

zeldazonk wrote:
Does anyone else feel like being 'high functioning' just means you can put on a reasonably good show of pretending to be normal? :?


Yes.



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23 Jun 2016, 12:39 am

dianthus wrote:
zeldazonk wrote:
Does anyone else feel like being 'high functioning' just means you can put on a reasonably good show of pretending to be normal? :?


Yes.


Second that.


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Lumi
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23 Jun 2016, 12:46 am

zeldazonk wrote:
Does anyone else feel like being 'high functioning' just means you can put on a reasonably good show of pretending to be normal?


Not me


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23 Jun 2016, 1:03 am

zeldazonk wrote:
Does anyone else feel like being 'high functioning' just means you can put on a reasonably good show of pretending to be normal?


Third.