revertigo wrote:
First post. Very nervous.
I'm going to write a book on helping neurotypicals understand what its like to have aspergers and I would like to know what others think i should include or discuss in it. Thank you.
I think this is an exellent idea. For me, I cannot express accurately just how driven I am by special intense interests. They can occupy almost all of my thinking time. But I also make myself perform my duties of life...but I still am usually thinking about them.
When I am engrossed in interests, I don't want to talk to others. I want others to leave me alone. But yet, I desire to be with my family---it's just that sensory issues can "rudely" interrupt my thoughts in "my world" of interests.
Bright lights, many kinds of noises, touches from others, and certain smells can really interfere with my thought processes. Even if I am relaxing and a certain kind of TV commercial comes on where there is some repetitive sound or overly repeating a 1-800 phone number, I often yell out "Shut up!! !" to the TV. If I am in the kitchen and someone is banging pots and pans around loudly, I express myself vocally in the agony of the noise.
There are many times when someone tries to talk to me, and I just don't know what to say. That is really awkward. I try to avoid these things.
Eye contact can be a challenge. Often, I cannot help but look away and dodge the eye contact. I cannot help it sometimes---my physical being just moves my eyes away. Sometimes when certain people look me in the eye, it is almost painful.
There are other things, but this is some of them.
I want to add that I am very happy with having Asperger's. I enjoy the interests and talents it has given to me. I became obsessed with electronic organs because of the way they looked. I had to have one as a child. After my parents got me one, I played and played and played experimenting with the controls. Today, I am a professional musician because of the obsessive attraction I had for organs as a result of Asperger's.
I am satisfied with who I am. I do not hold my Asperger's as a secret. If people like me...fine, and if they don't...well, that's ok too. But I seem liked---just quite eccentric.
I do not wish to adapt myself to the NT world anymore than I believe and NT would want to adapt themselves to the autistic world. If NTs have their language, that is fine. I will not learn their language. And I do not expect NTs to learn our autistic language. Besides, how can you change a "difference"?
But...I think it is necessary for NTs to understand more about autism and how we think and work and play. They should understand that when I stim it is because it is a natural part of my being, just like breathing or the blinking my eyes. It makes me feel relaxed. If I don't stim, I feel like pressure is building up in a bottle---and it has to release---so I stim.
Good luck on your book. I am also writing a book. Mine is an autobiography based mainly on my childhood with Asperger's. I am taking a somewhat humorous approach with it---though nothing disrespectful.
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"My journey has just begun."