Housing for autistic adults
pennypincher
Yellow-bellied Woodpecker

Joined: 1 May 2009
Age: 64
Gender: Female
Posts: 65
Location: Indiana
My brother has been living with my parents. He is in his 40's and I know that eventually they will pass away and he will need a place to live. He is severely autistic, non-verbal, and can get violent if he does not get his way. He only understands approx. 20 words and speaks fewer than that. Where in the U.S. (preferably Indiana) can he live? We have a small home and also I don't want to deal with his occasional violent outbursts. He is able to feed and dress himself and he is potty trained. He can also help my parents by vacuuming and doing laundry. Could he even live in a group home? He cannot understand what people say to him. It would be best if he gets into a place specifically for autistic adults.
Indiana has several Medicaid waiver programs for housing, two of which most people with ASD qualify for. They are the Community Integration and Habilitation Waiver and the Family Supports Waiver. Here is the site with info and an application.
http://www.iidc.indiana.edu/?pageId=3655
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KingdomOfRats
Veteran

Joined: 31 Oct 2005
Age: 41
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK
pennypincher,
am low functioning, severely autistic with mild intelectual disability,though have more language understanding than he/brother does but at the opposite it sounds like am not as able as he is in many areas such as personal care,lifeskills, toileting [am incontinent], severe challenging behavior etc-for the past decade have lived with other autistic and intelectualy disabled people in institutional and residential care,have been detained in a intelectual disability acute hospital for four months between last year/this year due to behavior but ever since then have successfuly been living in a community based care home that is specialist in challenging ASDs though everyone else moving in have much less autistic difficulties/needs than self because its more compatible.
not everyone with severe autism can live with other people;many of us have complex needs which clash to much with other peoples complex needs, behavior might also be to risky for other service users,there may be big safe guarding issues from their behavior, have personaly been thrown out of many residential homes and transfered to even worse ones because of severe challenging behavior clashing with other people,so it is important to make sure the right place has been found, to have a very long transition period [though some autists find it less traumatic to just move straight in or after several weeks].
am not sure of how america works for care but woud strongly recommend he stays out of residential/institutional care and lives in a community based supported living home where he can come and go as he wants to based on his own routine and with his own support, in residential care they dont have the funding to allow that for each resident so its highly restrictive and makes our behavior much worse being stuck in the house day after day after day with no visible structure for us.
-am currently living in a community based care home and have two support staff to self
and have one waking night staff as well as a sleep in staff at night [both for self],this is in the UK though and it may not be that customiseable in america,it may just be a choice of one thing or the other.

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>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
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pennypincher
Yellow-bellied Woodpecker

Joined: 1 May 2009
Age: 64
Gender: Female
Posts: 65
Location: Indiana
I'm in Australia so cannot offer specific advice about the US, but here, accommodation is managed by the states. There is a state government department in all states that offers a variety of services to those with disabiilties. It is how I get my support, although I do not require anywhere near the level of support others require. I was of the understanding that within the US disability services was also managed by the state government where the person resided. I have been told there are state government funded services for people with developmental disabilities in the US, and I would guess they would be the ones to contact. They could very well be offering some services now, and probably should be if they are not. Is he attending any day program or anything of that nature, because they should be able to direct you to the best place to get support from. From those I have communicated with in the US, there are waiting lists and it can be hard to get assistance, although when a crisis exists things are put in place, but always better to plan ahead and not be faced with that crisis, much easier said than done, when the funding does not exist. Peak Autism groups should also be able to point you in the right direction.
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