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ThatDude
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13 May 2016, 1:29 pm

Hello,
I am a self-diagnosed Aspie. However, I think I may have been officially diagnosed when I was young and my mother hid it from me. I have this memory of going to an office where there was an older lady and a bunch of toys and a school desk. My mom left me there for a long time. This lady kept making me take tests and asking me questions. Then she would let me play a while. I asked my mother about this memory and she said “I can’t believe you remember that. They tried to say you have autism, but you don’t have that”. Now for complicated reasons I cannot talk to her anymore about this subject. If I was diagnosed would this diagnosis be in my medical record? Is there some way to find this information? Or, is it possible that if my mother rejected the official diagnoses, it would effectively disappear? This test would have been back in the mid 80’s.

Thank you for any advice.



arielhawksquill
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13 May 2016, 1:48 pm

If it was the 80s in Texas, the records would have been on paper and kept only at the office of the doctor you visited. At this point, it's likely the doctor is no longer in business and the records have been destroyed. There's some slight possibility the test results would have been sent to your regular doctor, if they referred you to the specialist for testing--do you still remember the name of your childhood pediatrician?



ThatDude
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13 May 2016, 1:54 pm

Yes, I remember the name of my GP from those days. However, I know he retired quite a few years ago.



arielhawksquill
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13 May 2016, 2:14 pm

That's too bad. If your mother never sought treatment using the diagnosis there wouldn't be any paper trail (like insurance billing) to follow at this point. Since she rejected the findings I can't see how a diagnosis could have followed you into your modern medical files.



BTDT
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13 May 2016, 2:28 pm

http://www.ageofautism.com/2010/10/back ... -1991.html
Interestingly however, my psychology book published 3 years earlier did indeed mention Autism. That's the picture of page 618 (click image to enlarge) and this is what it says:

"Autistic disorder is rare, occurring in fewer than five children per ten thousand births, but with few exceptions (Lovaas, 1987), it leads to a life of marginal adjustment, often within an institution."



spinelli
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13 May 2016, 7:57 pm

Nope, you're not self dx'd from what I see. Your dx was made but the problem is tracking it down. I had the same problem and for all the same reasons. My family won't talk about it.

You found us. That's a start.☺



League_Girl
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14 May 2016, 12:51 pm

ThatDude wrote:
Hello,
I am a self-diagnosed Aspie. However, I think I may have been officially diagnosed when I was young and my mother hid it from me. I have this memory of going to an office where there was an older lady and a bunch of toys and a school desk. My mom left me there for a long time. This lady kept making me take tests and asking me questions. Then she would let me play a while. I asked my mother about this memory and she said “I can’t believe you remember that. They tried to say you have autism, but you don’t have that”. Now for complicated reasons I cannot talk to her anymore about this subject. If I was diagnosed would this diagnosis be in my medical record? Is there some way to find this information? Or, is it possible that if my mother rejected the official diagnoses, it would effectively disappear? This test would have been back in the mid 80’s.

Thank you for any advice.



Why did your mother say you didn't have autism?

Did any other doctors say you had it too or just them?


_________________
Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.

Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.


Adamantus
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15 May 2016, 2:24 pm

I would just go and see your local GP / family doctor and ask them about it.



ThatDude
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16 May 2016, 6:28 am

League_Girl wrote:
ThatDude wrote:
Hello,
I am a self-diagnosed Aspie. However, I think I may have been officially diagnosed when I was young and my mother hid it from me. I have this memory of going to an office where there was an older lady and a bunch of toys and a school desk. My mom left me there for a long time. This lady kept making me take tests and asking me questions. Then she would let me play a while. I asked my mother about this memory and she said “I can’t believe you remember that. They tried to say you have autism, but you don’t have that”. Now for complicated reasons I cannot talk to her anymore about this subject. If I was diagnosed would this diagnosis be in my medical record? Is there some way to find this information? Or, is it possible that if my mother rejected the official diagnoses, it would effectively disappear? This test would have been back in the mid 80’s.

Thank you for any advice.



Why did your mother say you didn't have autism?

Did any other doctors say you had it too or just them?



I believe my mother was told by the psychologist that I am autistic. From what I read Aspergers was not commonly diagnosed until the early 90's. So my guess is my mom went home and looked up autism and saw the information at that time said it is someone who is severely disabled and needs to be institutionalized. My mom could see I communicate verbally and was keeping up in school, so the doctor must be wrong. Now that more information is available about this being a spectrum it all makes more sense.
I only remember going to that one doctor. I know someone must have seen a need to send me there so it was probably the school that recommended I get tested, then the GP refereed me. This is just my theory though.



helloarchy
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16 May 2016, 9:02 am

You could call the Doctors and ask, chase it up etc, find out for sure. Failing that, seek a new diagnosis?